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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: alzheimers awareness

Mad as Hell – at Alzheimer’s

24 Thursday Apr 2014

Posted by Ann Napoletan in Advocacy and Awareness, Face of Alzheimer's, Grieving, Life After Caregiving, Mom, Ruminations

≈ 4 Comments

Tags

alzheimers, Alzheimers advocacy, alzheimers awareness, dementia

Tonight, I don’t feel like beating around the proverbial bush – let’s just get right to it.

I’m MAD. Pissed. Irate. Infuriated.

Angry as hell that I don’t have my mom. Mad that when I have a day like I had today I can’t pick up the phone and talk to her about it. Furious that Alzheimer’s took her away just when she was supposed to be starting to enjoy the retirement she worked so hard for.

I know I’m not the only one who has ever felt this way, but at the moment it doesn’t matter. I want to shout from the rooftops. I want to shake the people who have the power, yet don’t do anything to change this situation. I want the world to know what this disease does and that it’s so much more than memory loss. I want them to realize this is not just a disease of the elderly; people are diagnosed in their 40’s and 50’s – sometimes even younger. I want the masses to be well aware that Alzheimer’s has NO SURVIVORS.

 

Mom would be 77-years-old if she were here today. She lived until two months past her 76th birthday. When she died, it had been nearly a decade since we’d been able to travel together and almost that long since we could sit and have a normal conversation. We missed out on all of those precious years together. At 77, she should have been able to travel to Napa with us a couple of weeks ago. Oh how she would have loved that trip!

My mom’s body was healthy and strong; had it not been for Alzheimer’s, I have no doubt she would be here enjoying an active retirement just like so many of her friends. And, right now I’d be on the phone telling her about my day while she reminded me that everything happens for a reason even if we don’t know what it is….

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I Am Woman, Hear Me Roar

30 Sunday Mar 2014

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Beating Alzheimer's By Embracing Science (B.A.B.E.S), Facts & Figures, Fundraising, Helpful Resources, Research

≈ 2 Comments

Tags

alzheimers, Alzheimers advocacy, alzheimers awareness, b.a.b.e.s., beating alzheimers by embracing science, dementia

The 2014 Facts & Figures report recently released by the Alzheimer’s Association shines a bright spotlight on the fact that women are disproportionately affected by AD. Consider these statistics:

  • Almost two-thirds of Americans with Alzheimer’s are women.
  • A woman’s estimated lifetime risk of developing Alzheimer’s at age 65 is 1 in 6, compared with nearly 1 in 11 for a man.
  • As real a concern as breast cancer is to women’s health, women in their 60s are about twice as likely to develop Alzheimer’s during the rest of their lives as they are to develop breast cancer.
  • More than 60 percent of Alzheimer’s and dementia caregivers are women.
  • Nearly 19 percent of women Alzheimer’s caregivers had to quit work due to caregiving responsibilities.

Those numbers are staggering, so what can we, as women, do to make a difference?

I’d like to introduce you to Beating Alzheimer’s By Embracing Science (B.A.B.E.S), founded by Jamie Tyrone. This grassroots organization channels the power and energy of women who share a common passion – ending Alzheimer’s and other related forms of dementia. Continue reading →

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Be Brave and #ENDALZ

22 Saturday Mar 2014

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn Central Ohio, Fundraising, Mom, Products

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Tags

alzheimers, alzheimers awareness, bravelets, dementia, Walk to End Alzheimer's

 

Help us #ENDALZ!

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Support Marilyn’s Mighty Memory Makers in the 2014 Walk to End Alzheimer’s. For each bracelet purchased, $10 goes directly to the Central Ohio Alzheimer’s Association!

 
 
 

Click HERE to purchase a Bravelet!

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