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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: alzheimers awareness

November: Alzheimer’s Awareness Month

03 Sunday Nov 2013

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Facts & Figures, Helpful Resources, November-National ALZ Awareness Month, Petition, Research, Ruminations, USAgainstAlzheimer's, Washington

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Tags

Alzheimers advocacy, alzheimers awareness, dementia awareness, national alzheimers awareness month

Image-1November is Alzheimer’s Awareness Month – a great time for everyone to help shine a spotlight on this impending national health crisis.  It’s estimated that 5.3 million Americans are currently living with Alzheimer’s, and 4% of those cases qualify as younger onset, attacking people in their 30’s, 40’s, and 50’s.

The Facts

ALZ org bar-graphAD is the 6th leading cause of death in the United States (5th among those over age 65).  It’s also the only one of the top 10 causes of American deaths that can’t be prevented, cured, or even slowed.  Simply put, there are no survivors.

Between 2000 and 2010, Alzheimer’s deaths rose 68% while deaths from all other major diseases, including heart disease, cancer, stroke, and HIV, have dropped.

Big numbers? Well, consider this:

  • Within the next 12 years, there will be 7.2 million adults, age 65 and older, living with Alzheimer’s and other dementias.
  • Unless there is a major medical breakthrough, it’s projected that 13.8 million older Americans (age 65 and over) will have Alzheimer’s by 2050.

ALZ org pie-graph

Cost of Care

The cost of care is astronomical and growing every day. Estimates indicate that this year alone, the direct costs of caring for those living with Alzheimer’s will total $203 billion.  At the rate we’re going, without significant progress toward preventing or treating the disease, costs will rise to $1.2 trillion (in current dollars) by 2050.

Research Dollars

graph-2011_national_institutes_of_healthResearch funding isn’t where it needs to be – not by a long shot. The National Institutes of Health spends over $6 billion/year on cancer research, over $4 billion/year on heart research, and over $3 billion/year on HIV/AIDS research. Less than $500 million/year is spent on Alzheimer’s – the disease that’s shaping up to be the health crisis of our generation.

Government can’t afford additional funding? Well, the alternative only exacerbates that situation. Should we reach the numbers mentioned above by 2050, we’re looking at a 500% increase in Medicare and Medicaid spending. Now who wants to talk about breaking the bank????

Facing the Fear and Raising Awareness

The fact is, there’s a generation of Alzheimer’s caregivers who are terrified about what the future may hold. I know because I’m one of them. Am I destined to follow in my mother’s footsteps? The thought of putting my daughter through that is – well, there’s no doubt – it’s my worst nightmare.  sunday-w-mom-1

The time is NOW, not tomorrow, next week, or next year. Sign a petition, contact your lawmakers, support organizations like USAgainstAlzheimer’s and the Alzheimer’s Association, and TALK ABOUT IT every time an opportunity presents itself.

We need to get this issue out in the forefront and do everything we can to keep it there for as long as necessary, so that someday we won’t need an Alzheimer’s Awareness Month.

 

Source for statistics and graphs: http://www.alz.org

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OstrichUK Guest Blog

13 Sunday Oct 2013

Posted by Ann Napoletan in Advocacy and Awareness, Blogging, Caregivers, Expectations, fear, Guilt and Regrets, Helpful Resources, Life After Caregiving, Mom, Ruminations, The Early Years

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alzheimers awareness, alzheimers story, caregiving, dementia, dementia aware communities, purple angel

ostrich-logoA huge thank you to OstrichUK for inviting me to be a guest blogger on their site this past Friday. I truly appreciate the opportunity and love everything this company is doing to help #ENDALZ.

Did you know that earlier this year, the wonderful folks at Ostrich donated thousands of window stickers and information posters to Norman McNamara’s Purple Angel campaign? Their generosity is helping to create dementia aware communities all over the world!

Here’s a link to my guest blog, a bit on the journey from denial to acceptance and the lessons learned in between. I hope it will strike a chord with other caregivers and loved ones, so please feel free to share Life After Caregiving.

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From the Desk of George Vradenburg: Please Take Action Now

30 Monday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, USAgainstAlzheimer's, Washington

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Tags

alzheimers awareness, alzheimers funding, alzheimers research, dementia awareness, usagainstalzheimers

usa2_logo_email_header

Dear Friends,

Elected officials in
Washington are playing
games with lifesaving
research.
Researchers say we can
end Alzheimer’s in the
next decade, but not
without an investment in
research.
Tell Congress that finding
a cure starts now – stop
the cuts to biomedical
research.

While Republicans and Democrats play partisan politics over Obamacare and a government shutdown, their antics are threatening the nation’s commitment to critical Alzheimer’s research. Alzheimer’s research is not just another line item in the budget – you and I both know that it’s the key to ending the years of pain and suffering that families face as they battle this disease.

Draconian budget cuts – known as “the sequester” – went into effect earlier this year and have cut funding for Alzheimer’s research and other programs. Right now, Congress is considering multiple bills to keep the government from shutting down while a longer-term spending bill is negotiated. Unless we put pressure on Congress to stop the sequester, deep cuts to Alzheimer’s research are likely to continue for years to come.

Join thousands of other supporters to speak out before Monday’s budget deadline. We can’t let these cuts become the new normal.

Tell Congress: Quit playing games with the well-being of our loved ones. Stop the sequester and invest in Alzheimer’s research.

A day doesn’t go by without more stories documenting the devastating effects of sequestration’s cuts:

  • The current NIH budget for Alzheimer’s research is down $20 million from the previous year.1 Alzheimer’s is already grossly underfunded, and this reduction wipes out previous modest gains.

  • Some researchers are being forced to take out personal loans to avoid having their labs shut down.2

  • Fewer physician scientists are being trained. One in ten slots were eliminated this past year.3

The story gets even worse: Republicans and Democrats agree that these cuts to research funding are a bad idea. They agree! But this bipartisan consensus is being drowned out by sequester politics.

That’s why it’s so important for constituents like you and me to contact our lawmakers. It’s easy for them to put Alzheimer’s on the back burner unless we mobilize and speak out.

Ask your members of Congress to work out a deal that protects critical research funding. Keep the pressure on right now – before the upcoming budget deadline.

Researchers say with adequate resources we can end Alzheimer’s in the coming decade. We can’t afford to wait. We can’t afford to let these cuts stand.

Thank you for being part of this movement.

Sincerely,

George Vradenburg
Chairman and Co-Founder
USAgainstAlzheimer’s

1. http://blogs.marketwatch.com/encore/2013/07/09/budgeting-for-the-alzheimers-fight/
2. http://fcnp.com/2013/08/21/congressman-morans-news-commentary-sequester-cuts-disrupting-nih-projects/
3. http://www.baltimoresun.com/news/opinion/oped/bs-ed-biomedical-research,0,6244826.story

More than 350 leading Alzheimer’s researchers agree that we can prevent and effectively treat Alzheimer’s by 2025 – and it could even be sooner if critical investments and reforms are made. We must SUBSTANTIALLY INCREASE funding for Alzheimer’s research in the next 5 years and we must DRAMATICALLY SHRINK the time it takes to get new, safe therapies to market.USAgainstAlzheimer’s is a community of enraged and engaged individuals who have been touched by Alzheimer’s disease and are committed to achieving the bold and attainable goal of ending Alzheimer’s.

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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