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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: alzheimers funding

Alzheimer’s: When Will the Government Put Their Money Where Their Mouth Is?

03 Tuesday Feb 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Face of Alzheimer's, Facts & Figures, Helpful Resources, Life After Caregiving, NAPA, Research, Ruminations, USAgainstAlzheimer's, Washington

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alzheimers, Alzheimers advocacy, alzheimers funding, alzheimers research, dementia

 


In recent days, staunch supporters including Senators Susan Collins (ME), Edward Markey (MA), Amy Klobuchar (MN), and Jerry Moran (KS) have encouraged President Obama to include an increase for Alzheimer’s research in his FY 2016 budget. After all, what’s a “plan” to end Alzheimer’s by 2025 without the funding necessary to do so?

And the Verdict is in

Disappointment ensued as the Obama Administration released the proposed budget yesterday, and Alzheimer’s was overlooked. In a press release, George Vradenburg, co-founder of USAgainstAlzheimer’s said, “If we as a nation do not make Alzheimer’s research a top priority, we simply cannot meet our national goal of preventing and treating Alzheimer’s by 2025.”

What will it take to convince our government that unless we do something to stop it, Alzheimer’s will be the public health crisis of our lifetime? Perhaps the powers-that-be need to listen carefully to Michael Auslin’s story, or that of Karen Garner, whose husband was diagnosed before his 50th birthday. What about Rebecca Emily Darling, who was just 26-years-old when her mother was diagnosed?

Proof in the Numbers

  • Alzheimer’s is the only cause of death among the top 10 in America that cannot be prevented, cured, or even slowed. More than 500,000 people die annually from Alzheimer’s.
  • Deaths from Alzheimer’s increased 68 percent between 2000 and 2010, while deaths from other major diseases decreased.
  • More than 5 million Americans are living with some form of dementia. If we remain on the current trajectory, that number will rise to 16 million by 2050.
  • Every 67 seconds, someone in the U.S. develops Alzheimer’s. By 2050, it will be every 33 seconds.
  • In 2014, the direct costs to American society of caring for those with Alzheimer’s totaled over $200 billion, including $150 billion in costs to Medicare and Medicaid.
  • Unless something is done to stop it, Alzheimer’s will cost an estimated $1.2 trillion (in today’s dollars) in 2050. Costs to Medicare and Medicaid will increase nearly 500 percent.

For more information, check out the Alzheimer’s Association’s 2014 Facts and Figures report.

Take Action

Consider this: Alzheimer’s research spending currently stands at less than 1% of the cost of care.

Please write or call your Senate and Congressional representatives. Ask them to support the fight to #ENDALZ.

If not now, when?

It’s been said there are two kinds of people: those who have been personally touched by Alzheimer’s and those who will be.

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Collins and Collins: Working Hard to #ENDALZ

05 Monday May 2014

Posted by Ann Napoletan in Advocacy and Awareness, Facts & Figures, Research, Washington

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alzheimers, Alzheimers advocacy, alzheimers funding, alzheimers research, dementia

Please watch (and share) this important clip as U.S. Senator Susan Collins and Dr. Francis Collins, Director of the NIH, discuss Alzheimer’s at a Senate Appropriations Committee hearing this week.

Thank you so much to Senator Collins and Dr. Collins, for helping to push our critical agenda forward!

How can YOU help? Click here to tell YOUR representatives how important it is that we increase Alzheimer’s funding to match that allocated to cancer, heart disease, and HIV/AIDS. As a constituent, your voice counts, so let it be heard! #ENDALZ

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Call to Action: Ask Your Represenatives to Support the Collins-Klobuchar Resolution

25 Tuesday Mar 2014

Posted by Ann Napoletan in Advocacy and Awareness, Facts & Figures, Research, USAgainstAlzheimer's, Washington

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alzheimers, Alzheimers advocacy, alzheimers funding, alzheimers research, dementia

We’ve just learned that Alzheimer’s is much more deadly than we realized. Shocking new data reveals that Alzheimer’s actually rivals cancer as the second most deadly disease in the U.S.

Yet Alzheimer’s research receives relatively little funding – just $550 million annually compared to $5.7 billion annually for cancer research.

Increasing funding for Alzheimer’s research is the only way to find an effective treatment or cure for Alzheimer’s.

Please join me in urging your Senators to double funding for Alzheimer’s research at the NIH in the FY15 budget.

Alzheimer’s champions, Senator Susan Collins and Senator Amy Klobuchar, have introduced a bipartisan resolution that calls on Congress to make stopping Alzheimer’s by 2025 “an urgent national priority.” Continue reading →

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Marilyn, BA (before Alzheimer's)

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