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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: alzheimers research

Think Like a Scientist: Inside Alzheimer’s Disease

05 Sunday Nov 2017

Posted by Ann Napoletan in Advocacy and Awareness, Face of Alzheimer's, Films, Inspiration, Research, Video

≈ 1 Comment

Tags

alzheimers, alzheimers inspiration, alzheimers research, alzheimers story, greg obrien, rudy tanzi, think like a scientist

Once or twice in a lifetime, if we’re lucky, we have a chance to meet a real life hero.

Greg O’Brien, author of OnPluto: Inside the Mind of Alzheimer’s, is one of those people for me. I had followed his story for years and finally had the privilege of meeting him a few years ago at the UsAgainstAlzheimer’s Summit in Washington. Greg’s courage, humor, and willingness to share his story in such an honest and unfiltered way, combined with his journalistic excellence, are beyond inspiring.

Also featured in this short film is Dr. Rudy Tanzi, arguably the leading AD scientist/researcher in the United States. Dr. Tanzi co-discovered all three early-onset familial Alzheimer’s disease genes and, as leader of the Alzheimer’s Genome Project, discovered several others. In 2014, he and Dr. Doo Yeon Kim, used Alzheimer’s disease genes to create “Alzheimer’s in a Dish,” effectively taking Alzheimer’s research to a new level.

Please take six minutes to watch this moving short film.

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Call to Action: Contact Your Representative Before the Budget Vote!

25 Tuesday Apr 2017

Posted by Ann Napoletan in Advocacy and Awareness, Call to Action, Research, USAgainstAlzheimer's, Washington

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Tags

alzheimers, alzheimers funding, alzheimers research, dementia, fy 2017 budget, nih funding, nih research

Hello friends! As you have likely heard in the news, we’re facing a government shut down on Friday, 4/28, unless Congress passes an FY 2017 budget quickly! You may also know that President Trump is pushing to slash NIH funding in a big way, which will have a detrimental effect on critical medical research – including Alzheimer’s research. 

Click below, enter your street address and zip code, and your representative’s contact information will be at your fingertips. It’s quick and easy. Call and urge him or her to keep all planned funding for Alzheimer’s research *IN* the 2017 budget! Be sure to mention that you’re a constituent. It just takes a minute and your voice matters! 

Click here –> Find My Representative

Thank you to UsAgainstAlzheimer’s for making this action so simple!

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Call to Action: Online Caregiver Survey for Research Study

06 Sunday Nov 2016

Posted by Ann Napoletan in Advocacy and Awareness, Call to Action, Caregivers, Research

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Tags

alzheimers, alzheimers caregiver research, alzheimers caregiving, alzheimers research, dementia

survey

Friends, please take a look at this opportunity from Xavier University. I would encourage you to participate if you qualify and are able. Research regarding caregivers is so critical.

__

You are invited to take part in a research study regarding dementia caregivers. This study is being led by Amy Olzmann, M.A. and Amy Houston, M.A., and supervised by John Barrett, Ph.D. at Xavier University.

The study involves answering a series of online questionnaires designed to increase our understanding of caregiving. We are inviting participants (age 18 and older) who are primary caregivers for friends or family members with dementia to complete an online survey. Caregiver participants must be able to read English. It is anticipated that this survey will take approximately 30 minutes of your time to complete. The survey is completely anonymous.

However, if you would like to enter a drawing for one of sixteen $25 Amazon gift cards as thanks for participating, you will be asked to enter your email address at the end of the survey. Email addresses will be collected on a separate survey, and your name will not be linked with your survey responses.

In addition, we request that you forward/share the survey link with other individuals caring for friends or family members with dementia who may wish to participate in this study so that they may have the opportunity to assist us in gathering information about dementia caregiving.

Please click on the following link if you are interested in learning more about the research study: http://tinyurl.com/z4ukpcw

Amy Olzmann, M.A.
Email: olzmanna@xavier.edu

Amy Houston, M.A.
Email: houstona1@xavier.edu

 

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Marilyn, BA (before Alzheimer's)

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