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The Long and Winding Road…

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Tag Archives: alzheimers story

The Face of Alzheimer’s: Michael Ellenbogen

03 Thursday Oct 2013

Posted by Ann Napoletan in Advocacy and Awareness, Books, Early Onset, Face of Alzheimer's, Helpful Resources, Mom, Ruminations, The Early Years

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alzheimer's books, alzheimers, alzheimers story, dementia, early onset alzheimers

bookI recently read Michael Ellenbogen’s book From the Corner Office to Alzheimer’s and found this poignant account of living with the disease to be touching, heartbreaking, and eye-opening to say the least.

Ellenbogen, a former IT exec and self-proclaimed workaholic, was diagnosed with Early Onset AD in 2008. At that time, he was just 49-years-old and had noticed his earliest symptoms ten years earlier – before his 40th birthday. His forthright style helps us to understand what it’s like – from noticing the initial subtle changes, to trying to keep the wheels on the bus, so to speak, and live a “normal” life, to the search for a diagnosis, and beyond.

Yesterday, Ellenbogen wrote an enlightening post on katiecouric.com. When you have a few moments, pop over there and read My Name is Michael, and I Am Living with Alzheimer’s.

Stories like this not only serve to help crush the stereotype and stigma surrounding dementia, but they allow us – the family members, friends, and caregivers – to understand what it feels like to be that person.

In those early years with my mom, we didn’t know what was happening, and even once we did, we tended not to talk about it to avoid upsetting her. Maybe we thought if we buried our heads in the sand, it would go away. We spent years living in denial. I so wish we’d handled it differently.

Courageous people like Michael Ellenbogen who are willing to share their story are helping today’s families see that it’s okay to talk about it. In fact, it’s really only through talking that we have any chance of solving the problem…

Learn more about Michael by visiting The Michael Ellenbogen Movement on the web.

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The Face of Alzheimer’s

24 Tuesday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, Children and ALZ, Early Onset, Face of Alzheimer's, Inspiration

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alzheimers story, alzheimers video, dementia, early onset alzheimers, eoad, younger onset alzheimers

In this lovely 7-minute long video, Ashley Bornancin shares her journey through Alzheimer’s. Imagine being a carefree 17-year-old, full of joy and excitement about what life holds in store for you.

And then, your mother is diagnosed with Alzheimer’s. In an instant, your world is turned upside down.

Watch and listen as Ashley tells her poignant story, and please share with others – let’s help the world understand that the face of Alzheimer’s isn’t always what we might expect.

Thank you, Ashley, for so beautifully and courageously sharing your story…

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