• Home
  • Helpful Resources
  • Reading List
  • Recommended Blogs
  • Marilyn’s Legacy: A World Without Alzheimer’s
  • About Me
  • Contact Me

The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: alzheimers

Love Is… A Warm Butterscotch Cookie

05 Wednesday Feb 2014

Posted by Ann Napoletan in Grieving, Inspiration, Life After Caregiving, Mom, Ruminations, Smiles

≈ Leave a comment

Tags

alzheimers, childhood memories, grief, grieving

How do you define love?

I think we all have our own definitions, and the word means different things in different situations and at different times in our lives…

As the days have passed since my mom’s death – it’s been almost 14 months – I’ve been all over the map with regard to emotions. Memories are brought to life by so many things: an old photo, a beloved tradition, running into one of her old friends, or a card found tucked away in the drawer.

And food.

Food is such a powerful trigger for me. I don’t remember a ton of details about my childhood like some people seem to. Some of the most vivid memories I do have, though, are of my mom in the kitchen. She loved to cook and bake, and boy was she good at it!

In our world, food was comfort and joy, but most of all food was love. The most prominent ingredient in every single one of mom’s kitchen creations was L-O-V-E.

I have three boxes crammed full with her recipes – folded up bits of paper, index cards, typewritten, handwritten, scribbled in her own secret shorthand, backs of envelopes, magazine and newspaper clippings. I didn’t realize all those years ago just how much of a treasure they would be someday.

I’ve been thinking about Mom’s butterscotch chip cookies for a week now. It’s been at least 20 years (maybe 30) since I’ve had them, so tonight I finally pulled out the boxes and searched until I found the recipe.

It’s one of the most “well loved” of all the cards – so much so that it’s barely decipherable. Her uniquely flawless handwriting, faded ink on a plain card yellowed with age and splattered with misdirected ingredients of years gone by.

The cookies came out of the oven piping hot and beautifully golden brown. They tasted just like I remembered…  like L-O-V-E…

Miss you, Mom.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Register Now: USAgainstAlzheimer’s Activists Network Call

31 Friday Jan 2014

Posted by Ann Napoletan in Advocacy and Awareness, Events, Helpful Resources, Pharma, Research, USAgainstAlzheimer's

≈ Leave a comment

Tags

alzheimers, alzheimers clinical trials, alzheimers research, sniff insulin study, usagainstalzheimers

Two major Alzheimer’s clinical trials will soon begin enrolling participants — the Insulin Study (also know as SNIFF) and the so-called A-4 Trial.

Join USAgainstAlzheimer’s on Thursday, February 6 from 12-1pm ET for the next Activists Network conference call to hear Dr. Suzanne Craft of Wake Forest Medical School, who is the director of the Insulin Study (SNIFF). This study will examine whether a type of insulin, when administered as a nasal spray, improves memory in adults with a mild memory impairment or mild Alzheimer’s disease. Dr. Craft will explain SNIFF and answer your general trial questions, including who is eligible, study locations and how to sign up. Enrollment is scheduled to begin in the coming weeks.

To register for this call please go to: http://actions.usagainstalzheimers.org/p/salsa/web/common/public/signup?signup_page_KEY=8587.

Ginny Biggar at USAgainstAlzheimer’s can answer any questions you have. Her email is vbiggar[at]usagainstalzheimers.org.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Please Lend Your Voice

30 Thursday Jan 2014

Posted by Ann Napoletan in Advocacy and Awareness, Facts & Figures, Research, USAgainstAlzheimer's, Washington

≈ 4 Comments

Tags

alzheimers, Alzheimers advocacy, alzheimers research, dementia awareness

graph-2011_national_institutes_of_healthDid you know….

The National Institutes of Health spends over $6 billion a year on cancer research, over $4 billion on heart disease research and over $3 billion on HIV/AIDS research. But it spends only $480 million on Alzheimer’s research. While passage of the recent omnibus bill will add another $100 million, we are still well below where we need to be.

President Obama made broad supportive comments regarding the nation’s priorities in innovation and federally-funded research in his State of the Union address last night, but we are disappointed that he did not take the opportunity to advance America’s internationally-recognized leadership in the global fight against Alzheimer’s.

PLEASE lend your voice. This is one fight we cannot afford to lose. Urge President Obama to make this crucial investment by clicking this link ->  Lend Your Voice

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...
← Older posts
Newer posts →
© Copyright 2025
All Rights Reserved
The Long and Winding Road

Marilyn, BA (before Alzheimer's)

Contributor

Contributor

Recent Posts

  • The Latest Alzheimer’s Research Developments
  • National Caregivers’ Day: February 21, 2025
  • June 7, 2021: A Historic Day
  • UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!
  • Happy 84th Birthday, Mom.

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 443 other subscribers

Archives

Blog Directory & Business Pages at OnToplist.com

Blog Stats

  • 145,450 hits

Meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com
stats for wordpress

Categories

Popular Posts

  • About Me
  • Thank you!
  • A Special Bond
  • Monday ... on Caregivers
  • Telling the Story
  • Hiding In the Canned Goods Aisle...and Other Stuff
  • Walking a mile in his shoes...
  • CGSN: Focus on YOU!
  • Look for me on VoiceQuilt!
  • Caregiving: Imperfections, Weaknesses, Acceptance, and Forgiveness

Recent Comments

  • Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s | The Long and Winding Road… (alzjourney.com) | Ann Campanella on Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s
  • Betty Trimble on Film Review: Angel’s Perch
  • Carol on Caregiver PTSD: Fact or Fiction?
  • (3) Ritamae Reichardt on When Caring Takes Courage: A MUST HAVE Caregiving Guide
  • Mary Jo George on June 7, 2021: A Historic Day

Pages

  • 2013-2014 News Archive
  • Helpful Resources
  • Latest News & Events
  • Postmaster General Letter – Alzheimer’s Semipostal
  • R E S I S T Resources
  • Reading List
  • Recommended Blogs
  • About Me
  • Contact Me
Coming Soon!
Marilyn's Legacy: A World Without Alzheimer's, Inc.
Stay tuned!!

Blog at WordPress.com.

  • Subscribe Subscribed
    • The Long and Winding Road...
    • Join 443 other subscribers
    • Already have a WordPress.com account? Log in now.
    • The Long and Winding Road...
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d