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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: caregivers

Round Up: The Latest From Around the Web

26 Tuesday Aug 2014

Posted by Ann Napoletan in Advocacy and Awareness, Books, Caregiver Burnout, Caregivers, Early Onset, Face of Alzheimer's, Helpful Resources, Music and Art, Round Up, Safety, Sandwich Generation, Silver Alert, Technology, Tips, Wandering, Washington

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alzheimers, alzheimers art, caregivers, caregiving, dementia, sandwich generation, wandering

lasso.gifCheck out these tidbits gathered from around the web over the past week….

Listen to this edition of the Diane Rehm radio show as Emmy award winning journalist, Meryl Comer, talks about her new book, Slow Dancing with a Stranger. Meryl’s husband was diagnosed with early onset Alzheimer’s at age 58, and she cared for him at home for two decades. Dr. Harvey Gralnick led hematology and oncology research at the National Institutes of Health; a brilliant man and a sobering reminder that Alzheimer’s does not discriminate. Don’t miss this poignant and enlightening conversation.

Kudos to U.S. Senator Bob Casey who announced his plans to introduce the Caregiver Corps bill. This legislation is intended to empower community agencies to build and train a pool of volunteer caregivers to provide assistance to families in need. Read more about Casey’s proposed bill in this article from LancasterOnline.

With the percentage of the U.S. population age 65 and older exploding in coming years, what exactly are we doing to prepare? As Anne Hays Egan suggests in this piece for NonProfits Online, communities should be addressing plans for the “Silver Wave” now. Time is of the essence – we can’t afford to wait.

Alzlive shares an interesting article about Evermind, a small device that plugs into wall outlets and connects to various household appliances (e.g. coffee maker, television, bedside lamp). The gadget monitors when each appliance is turned off or on and sends notifications via text message or email. A change in routine serves as an alert to distant caregivers that they should check in to ensure their loved one is okay.

This fascinating piece from The Atlantic explores the emergence of artistic talents after a dementia diagnosis. How is it that someone with severe dementia can sometimes communicate beautifully through music or art? The key is in understanding that while dementia doesn’t impact the entire brain. Undamaged areas may actually “wake up” to reveal these artistic abilities that had been previously suppressed by healthy parts of the brain.

Learn more about Project Lifesaver, a program aimed at finding missing persons and returning them safely to their homes.  Over 1,300 first responder agencies in 47 states participate, and PLI states their recovery times average 30 minutes – 95% less than standard search operations. Members wear a small GPS device that tracks their whereabouts, and rescuers are trained in how to approach and communicate with individuals suffering from cognitive impairment.

In her recent article for MariaShriver.com, Ellen Woodward Potts focuses on the sandwich generation, offering coping tips for caregivers who are stretched too thin. More and more Americans find themselves caring for aging parents while still raising children, and the associated stress can be overwhelming at best and a serious health risk at worst.

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Rabbi Steven M. Glazer: Heroes Among Us

26 Wednesday Feb 2014

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Guilt and Regrets, Helpful Resources, Inspiration

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alzheimers, caregivers, caregiving, dementia, faith, inspiration

Every now and then, you come across something that touches you so deeply you want to share it as widely as possible. That is the case with this sermon from Rabbi Steven M. Glazer. The words he writes about caregiving are profound, whatever your faith. I believe they have the power to provide comfort to many struggling caregivers.

Source:  http://www.glazerconsulting.com/_assets/heroes_among_us.pdf

Heroes Among Us

Rabbi Steven Glazer
September 29, 2011
Rosh Hashanah First Day Sermon

If some of what I am about to say sounds vaguely familiar to a number of you, it is because this morning I am revisiting a topic I addressed on Yom Kippur in 2005! It will be clear in a just a few moments why I have chosen to do so. I want to speak with you today about “everyday heroes.” Not military heroes, or others who have performed deeds that we customarily define as “acts of heroism,” but rather the countless numbers of women and men, some of whom are sitting in this sanctuary right now, who everyday perform “acts of heroism” which we do not usually recognize as such.

These are the people who, day in and day out, week in and week out, month in and month out, carry out the enormously challenging, the enormously draining, and the enormously difficult task, of being caregivers to those who are afflicted with one of those diseases that ravage the bodies and consume the souls of the people with whom their lives are bound. Today I want to talk with you about what we should do and how we should cope when someone whom we love is stricken with a debilitating disease. Continue reading →

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Valentine’s Day Sweepstakes from A Place for Mom!

09 Sunday Feb 2014

Posted by Ann Napoletan in A Place for Mom, Caregivers, Giveaways

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a place for mom, caregivers, giveaway

apfm

My friends at A Place for Mom are holding a Valentines’s Day Sweepstakes!!

All you have to do to enter is Share Your Lessons of Love.

Deadline is February 12th, so hurry!

 

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Marilyn, BA (before Alzheimer's)

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