Tag Archives: dementia

The Angry Side of Alzheimer’s

23 Saturday Jan 2016

Posted by in Advocacy and Awareness, Early Onset, Face of Alzheimer's, Inspiration, Reblog

≈ 2 Comments

Tags

, , ,

Passionate, insightful, and important piece by friend and Alzheimer’s advocate Brian LeBlanc. Thank you, Brian, for sharing your life and experience with all of us! You’re making such a difference in the world!

A Bit of Brian's Brilliance's avatarA Bit of Brian's Brilliance

One of the things that makes me angry about having Alzheimer’s Disease are people that DO NOT WANT TO UNDERSTAND that I, and people like me, still know what’s going on around them and can still carry on an intelligent conversation. Sure, the words may not flow as evenly and smoothly as they did before, the mind may not allow us to remember the conversation an hour or a day or a week from now, but we still enjoy being in the moment.

Before my diagnosis, I had friends . . . lots of friends, or so I thought. These people who I thought were friends kept in contact with me, returned a phone call whether or not I left a message, would interact me with through Social Media or in person. Where in the hell are these people now? I have no idea. Don’t get me wrong, I’m not…

View original post 678 more words

Healthline Best Health Blogs of 2015

30 Wednesday Dec 2015

Posted by in Advocacy and Awareness, Blogging

≈ 4 Comments

Tags

, , ,

vote-best-health-blog-285x285I’m flattered to have been nominated in the annual Healthline Best Health Blogs Contest for the second year in a row!

When I launched this site, I had one mission in mind – to share my experiences and any other information I could to help other families dealing with Alzheimer’s. This contest goes hand in hand with that mission by not only increasing awareness but also by helping me reach more caregivers.

To vote, click here or on the link below and in the “Contestants” search box, type “alzjourney.” This will bring up my blog, The Long and Winding Road. Voters can vote once each day via Facebook and once each day via Twitter. Voting is open until Jan 21. Feel free to share.

Contest URL – Click to Vote
http://www.healthline.com/health/best-health-blogs-contest

 

$350 Million Closer to 2025

26 Saturday Dec 2015

Posted by in Advocacy and Awareness, Helpful Resources, Research, Washington

≈ 2 Comments

Tags

, , , ,

As you may have heard, a massive spending bill was passed by Congress and signed into law by President Obama last week. The bill includes a $350 million increase for Alzheimer’s research and an additional $85 million for the BRAIN Initiative.

We know we have a long way to go if we’re to meet one of NAPA’s fundamental goals: Prevent and effectively treating Alzheimer’s Disease by 2025. We’ll need to see more increases – for FY ’17 and beyond – but this is a big step in the right direction!

NIH director Francis Collins called the funding bill “the most encouraging budget outcome in 12 years,” adding that the increase “comes at just the right time to take advantage of remarkable opportunities to improve human health, powered by dramatic advances in scientific knowledge and technological innovation.” 
Continue reading →