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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: dementia

Alzheimer’s: Accepting a New Reality

15 Tuesday Apr 2014

Posted by Ann Napoletan in Caregivers, Expectations, Grieving, Guilt and Regrets, Helpful Resources, Inspiration, Life After Caregiving, Mom, Quotes, Ruminations, Saying Goodbye, The Early Years

≈ 1 Comment

Tags

alzheimers, alzheimers acceptance, alzheimers denial, dementia

I read a lot about Alzheimer’s and dementia. A lot. Still, every now and then I come across something that grabs hold of me and won’t let go, because it reads exactly – and I mean exactly – like my own experience. Despite the fact that I tell people all the time, “we’re in this together” and “what you’re feeling is normal,” I sometimes forget those things apply to me, too!

Tonight, I read one of the most poignant essays I’ve ever seen discussing a topic that’s very close to my heart. In fact, it’s the subject of my contribution (Learning Acceptance) to Chicken Soup for the Soul: Living With Alzheimer’s and Other Dementias.

In his piece for Maria Shriver’s blog, Dr. Daniel C. Potts writes about reaching a point of acceptance – realizing that your loved one as you once knew them is gone, but their core remains very much intact. Always. Even dementia can’t strip them of their essence. It simply cannot.  Continue reading →

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…What Life Throws At Us…

11 Friday Apr 2014

Posted by Ann Napoletan in Advocacy and Awareness, Blogging, Caregivers, Grieving, Inspiration, Life After Caregiving, Ruminations

≈ 4 Comments

Tags

alzheimers, caregiving, dementia

I’d like to thank my friends at The Ostrich Group way over yonder, across the pond, for having me as a guest on their blog this week. This piece looks at what happens when life doesn’t unfold quite the way we planned. As they say, sometimes bad things happen to good people… so, what then?

Every day, good people find themselves in various situations that they didn’t ask for and certainly don’t want. However, it’s how we handle those situations that makes all the difference in the world. I hope you’ll enjoy Twists, Turns, and Transformations.

 

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The Numbers Tell the Story

09 Wednesday Apr 2014

Posted by Ann Napoletan in Advocacy and Awareness, Alzheimers.net, Facts & Figures, Research, Washington

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alzheimers, alzheimers research, alzheimers statistics, dementia

Thank you to our friends at Alzheimers.net for sharing this infographic that so simply, yet powerfully, illustrates the inequitable distribution of research funding. Consider the fact that our government is spending over $200 billion annually on care for Alzheimer’s and related forms of dementia, while the funds allocated for research equate to less than 1% of that number.

Bear in mind also that the recent study published in the Journal of the American Academy of Neurology estimates total annual deaths resulting from Alzheimer’s and other dementias are likely over 500,000, which puts it right behind heart disease and cancer as the 3rd leading cause of death in the United States.

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Marilyn, BA (before Alzheimer's)

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