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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: dementia

Film Review: Angel’s Perch

31 Saturday Aug 2013

Posted by Ann Napoletan in Advocacy and Awareness, Celebrities, Events, Films, Humor, Inspiration

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Tags

alzheimers, alzheimers awareness, Angel's Perch, dementia

ap3Part 1 of 2. Stop back in the coming days for an interview with talented filmmakers J.T. Arbogast and Kimberly Dilts.

I’ve always said that caring for a loved one who has Alzheimer’s is like joining a club you never wanted to be a part of. It’s truly an experience that can only be understood by those who have been through it and witnessed its wrath.

Independent Filmmaking At Its Finest

Obviously, my curiosity was piqued immediately when I heard about Angel’s Perch, an independent film released earlier this summer. The filmmaker, J.T. Arbogast, lost his grandmother to Alzheimer’s in 2008, so it was logical that he would be more than qualified to make a movie on the subject.  …And was he ever!!

Angel's Perch - ColumbusWe hosted a sold out screening of Angel’s Perch here in Columbus and received a myriad of rave reviews. Sometimes even silence speaks volumes, and that was the case when at the end of the movie as the credits rolled, not a soul moved. You could have heard a pin drop in the theater – it was as though we all needed a few moments to absorb the tremendous story we had just seen played out on the giant screen before us. I really don’t have words to describe how I felt as I was leaving the event.

A Picture Painted Through Real Life Experience

jackThe story begins with Jack (played by Arbogast) on the verge of winning a potentially career-changing contract for his architectural firm. Like so many of us, one minute, life is normal – and then the phone rings, and in a split second the world is turned upside down.

His grandmother had just been found wandering, and her long-time caregiver, Betsy, was calling to explain what had happened. The incident sparked increased worries that living alone was beginning to compromise Polly’s safety. Understandably very concerned, in the midst of preparing for an important client presentation, Jack packed a bag, jumped in the car, and drove to West Virginia.

grandmakaneOne of the most poignant scenes in the film takes place when Arbogast’s character walks into his Polly’s house, sets his things down, and quietly gazes around the living room. Photographs and reminders of happier days; memories of special times spent with his grandmother over the years whirl through his mind.

I knew that feeling, as I had experienced similar moments in my own mother’s house. Later, I learned much of the filming, including that scene, actually took place in Arbogast’s grandmother’s house. Is it any wonder Jack’s experience felt so real?

From Historic Logging Town to Movie Set

cassmapThe film is set in Cass, West Virginia, a tiny spec of a town that was home to a booming paper mill in the early 1900’s. After the industry’s collapse, Arbogast’s grandparents had a hand in saving the town by convincing the powers-that-be to make it part of the state park system. In 1961, it became Cass Scenic Railroad State Park.

The same steam engine used to transport logs still carries many visitors on a scenic ride that combines a bit of history with some absolutely stunning views. Ironically, we had taken my mom to Cass for an autumn ride on the railroad several years before Alzheimer’s began to slowly wage war on her mind. Looking back, such a fond memory.

I don’t want to give away too much because you must find a way to see Angel’s Perch yourself. However, I can promise you a beautifully tender story peppered with moments of humor that will strike a chord with anyone who has traveled the Alzheimer’s journey. Only a member of our special “club” could make a movie so on point; there were scenes that could have literally been plucked right out of my life.

Flawless Casting

JoyceThe cast is phenomenal. Joyce Van Patten plays Polly so perfectly that you really forget she’s acting; I don’t know how she prepared for the role, but her portrayal is brilliant. Likewise, Arbogast’s Jack is authentic and believable – watching him deal with the emotional rollercoaster ride that comes with the disease was at times like looking in the mirror.

Ellen Crawford played Polly’s long-time caregiver and family friend beautifully. Her character, Betsy, clearly wrestled with her own emotions as she watched the Alzheimer’s progress, just as I watched my mom’s caregivers struggle with what was happening to the woman they had come to love.

Rounding out the cast were Ashley Jones as Jack’s adorable “girl-next-door” childhood friend, Ally Walker, who played a hilarious Judy – the resident beautician and town busybody and gossip, Jesse Sharp as Jack’s ambitious business partner, Kevin, and Elisabeth Hower as Jack’s wife, Sarah. Last but not least, two of Cass’ own made their big screen debuts in the film!

Local Talent Shines

DelbertDoc Snyder was portrayed by Green Bank resident, Mike Holstine, and Homer Hunter, of Stony Bottom, played Delbert, the endearing postman who was apparently rather popular with the ladies. Arbogast hit the nail on the head, saying Hunter “just about steals the film way from everyone else… he’d never acted a day in his life, but you sure wouldn’t have known it by his performance.” There was no question that the audience fell in love with him!

What is Tugg?

Arbogast and his wife, producer Kimberly Dilts, released the film through a relatively new distribution channel that allows people just like you and I to bring the film to our own local theaters. Kim said the grassroots method of getting the film in theaters “requires much more elbow grease, but it’s very gratifying.”

tuggIf you’re interested in hosting a local screening, visit Tugg.com to learn more. All of the folks I dealt with there were extremely encouraging and helpful; my primary promotional tool was social media, and as mentioned, we sold all of the seats! I definitely recommend giving it a go; through the experience I met some lovely people and we were able to raise almost $300 for our local chapter of the Alzheimer’s Association.

Made With Love and It Shows

APgenericIn closing, let me say that from the cast to the cinematography to the story itself, this film is a winner.  Made on a shoestring budget that began with a Kickstarter campaign, in my opinion, Angel’s Perch would easily stand up alongside any film on the festival circuit. I hope it reaches each and every person reading this post; in just 90 short minutes, it will make you laugh, cry, and feel every emotion in between. This movie was made with love, and I promise it will truly touch your heart.

_____

J.T. Arbogast is a Los Angeles-based writer, actor, and producer with a number of stage, film, and television credits. Prior to his arrival in LA, he spent four years as the Associate Director of the critically acclaimed National Comedy Theatre in New York, of which he was also an original cast member.

Kimberly Dilts is a producing artist who works as an actor, director, choreographer, writer, and teacher. She has a number of stage and television credits, and enjoys voicing Anime. She also served as Director of Operations for The Haitian Education and Leadership Program for several years.

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Guide to Evaluating Residential Dementia Care

22 Thursday Aug 2013

Posted by Ann Napoletan in A Place for Mom, Caregivers, Caregivers.com, Emeritus, Finding a Facility, Helpful Resources, Mom, Pat Summitt, The Early Years, Tips

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Tags

alzheimers, assisted living, dementia, long term care

Pat Summitt Foundation Guide

Kudos to the Pat Summitt Foundation for putting together this free 50+ page publication on evaluating long-term care options. 

Extracting my head from the sand

Long-term care decisions are among the most difficult you will ever face, and unfortunately it’s often a “baptism by fire” situation. That was certainly the case for us; my mom had been in the hospital and I’ll never forget standing in the hallway, numb, as the OT, PT, and social worker told me she couldn’t go home. Living independently was no longer an option. 

I shouldn’t have been caught off guard, but I was. Oh yes, I knew in my heart the day was coming, but I had buried my head deeply in the sand on the vast beach of denial. I didn’t know a darn thing about long-term care. Nothing.

So, with one week to find a facility and get Mom moved in, I dove in head first armed with — not much of anything. I had enlisted assistance from A Place For Mom, which helped immensely, but oh how I wish I’d had the Pat Summitt Foundation guide. This was all uncharted territory for me, and I learned as I went.

Business is business

While it would be lovely if everyone had their heart in the right place, the bottom line is – well, the bottom line. It comes down to dollars and cents, sales, and monthly numbers. All too often, the focus is on keeping the building full regardless of whether or not the facility can provide adequate care to meet the needs of potential residents.

In fact, a recent Frontline exposé on Emeritus Senior Living points out that facilities sometimes even seek out advanced dementia cases. Why? Well, those residents require a higher level of care, which equates to a higher monthly payment. And after all, it IS all about the bottom line, isn’t it? The facility may not be equipped or staffed to handle the care, but somehow that becomes secondary to filling the building. 

Asking the right questions

This is why it’s so very important to know exactly what to look for – and what to ask – when you’re evaluating options. The Summitt Foundation guide is divided into five chapters:

  • Dementia care options and services
  • Publicly available information about quality of care
  • Who to interview and what to ask
  • The value of observation
  • Strategies for being the best advocate you can be + list of additional resources

In addition, the e-booklet provides valuable interview guides specific to staffing, satisfaction surveys, chronic pain screening, and food service, as well as a worksheet for documenting observations. These comprehensive tools also include scoring guides and rationale to help you quantify your findings.

Eyes wide open

My nuggets of advice for families embarking on this journey:

  • Don’t wait until the last minute; start early so you’re somewhat prepared when the time comes.
  • Ask tons of questions and observe, observe, observe while you’re in the building.
  • Make unannounced visits at various times of the day/evening.
  • Talk to current residents and family members.
  • Listen to your gut – it will rarely lead you astray. If your instincts tell you something doesn’t feel right, trust yourself.
  • Download How to Evaluate the Quality of Residential Care for Persons With Dementia, by Sandra F. Simmons, Ph.D., John F. Schnelle, Ph.D., and Anna N. Rahman, Ph.D., and put it to good use!

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Week in Review…

10 Saturday Aug 2013

Posted by Ann Napoletan in Alzheimers.net, Blogging, Care Options, Caregivers, Caregivers.com, Emeritus, Helpful Resources, Mom, Neglect and Abuse, The Early Years, Tips

≈ 3 Comments

Tags

alzheimers, assisted living, dementia

week-in-reviewHaving spent the last two days in bed slathered with Vicks and sleeping in a Nyquil-induced haze, I’m starting to feel human again. What a miserable couple of days it’s been.

I guess I feel like I’ve been a little out of sorts since the Frontline piece on Emeritus aired; it brought back memories I’d rather forget. And yes, years later, I’m still so angry at myself for trusting the staff at Outlook Manor the way I did. How I hope Mom knows I did the best I could at the time with the knowledge I had. There are no second chances in matters like this, but the opportunity remains to educate people so they won’t make the same mistakes… at least that’s something.

What in the World is Dementiaville?

This week on Alzheimer.net, I did a piece about Hogewey Village (aka Dementiaville) in the Netherlands. How wonderful it would be to imagine that someday, care like this could be available all over the world. Right now, the biggest barrier to adoption is one we’re all too familiar with – cost. It took a cool $25 million-plus to build Hogewey, not to mention the astronomical cost of running it.

Still, it’s not something we should immediately dismiss as impossible. Perhaps there are aspects of this model that can be repeated on a less grand, but still effective, scale. The current model in the U.S. is in large part not working, and it’s our responsibility to figure out how best to take care of those who took care of us for so many years.

Dementia Dogs

Monday’s Caregivers post introduced readers to Kaspa and Oscar. These two dogs from Scotland have been specially trained to provide assistance to dementia patients, and the results have been overwhelmingly positive. In addition to helping with prompts,  reminders, companionship, and exercise, they also have a knack for sensing when a period of agitation is coming on, and they can often redirect their owner before things escalate.

Is It Time to Consider Assisted Living?

Also this week, I did a post on Caregivers calling out 8 signs that may indicate it’s time to start thinking about assisted living. Making that decision is one of the most gut wrenching things we’ll ever face, and when the time comes, it’s much easier to stick your head in the sand than face reality. Ask me how I know…

I hope that perhaps this list will allow you to step back and evaluate things a bit more objectively. The decision is extremely personal, and no two families or situations are the same.

Until You’ve Walked in Their Shoes….

Last but not least, this week I’ve seen several extremely harsh comments concerning placement in assisted living. I want to stress that, for a variety of reasons, not everyone is able to take care of loved ones at home. I find it terribly unfair to suggest that placing a spouse or parent in a care facility means they are loved any less. That is simply ludicrous. We must all do what’s best in our own situations.

Bottom line, never judge another until you’ve walked in their shoes. Although I do believe the system very much broken, there are without question some wonderful facilities that provide loving, compassionate care. Planning ahead is the best way to ensure adequate time for the due diligence necessary to find the right option for your family.

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