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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: living with alzheimers

Alzheimer’s Roundup

22 Sunday Jan 2017

Posted by Ann Napoletan in Advocacy and Awareness, Care Options, Diagnosis, Early Onset, Expectations, Face of Alzheimer's, Prevention, Round Up

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alzheimers, alzheimers diet, caregivers, caregiving, dementia, dementia village, living with alzheimers

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Who will care for the caregivers?

“There are some 40 million Americans like my patient’s daughter. Every day, they help a parent, grandparent, relative or neighbor with basic needs: dressing, bathing, cooking, medications or transportation. Often, they do some or all of this while working, parenting, or both. And we — as doctors, employers, friends and extended family — aren’t doing enough to help them.”  ~Dhruv Khullar, M.D.      Read full article

After the diagnosis…

You’re worried. Your mom has shown increasing forgetfulness for months. She even got lost going to the grocery store she frequents. You hoped things would resolve themselves, but instead, they kept getting worse. You took her to the doctor, hoping the problem was due to a bad interaction of her many medicines or a treatable infection. Instead, you got the dreaded diagnosis: Alzheimer’s. Now what?    Read full article

Dementia Village coming to San Diego

A San Diego nonprofit is taking an unorthodox approach to help seniors cope with Alzheimer’s disease. It’s building a village for them to spend time during the day. It’s not residential. But the village is modeled on San Diego in the 1950s, complete with vintage cars, period music, payphones and shops from the pre-shopping mall, pre-Wal-Mart era. The nonprofit says research suggests this type of visual reminder might improve cognitive function and quality of life of Alzheimer’s patients over 65.   Read full article

Eating for good brain health

“Diet absolutely does play a role. The brain is like any other organ that is susceptible to (foods) that can protect against oxidation damage. … Think of oxidation like a fire getting started. These (good) foods act like little tiny fire extinguishers that help put out those fires that otherwise would cause damage leading to loss of brain function.” ~Liz Applegate, Professor, UC Davis    Read full article

Living with early stage Alzheimer’s

“These days my ministry is Alzheimer’s. I am so much happier now that I’ve accepted my diagnosis. There’s a stigma associated with memory-loss disorders and oftentimes people are afraid to ask for help; I believe my calling is to help reduce that shame. You don’t have to be embarrassed to have Alzheimer’s.”  ~Rev. Cynthia Huling Hummel, D.Min  Read full article

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The Angry Side of Alzheimer’s

23 Saturday Jan 2016

Posted by Ann Napoletan in Advocacy and Awareness, Early Onset, Face of Alzheimer's, Inspiration, Reblog

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alzheimers, dementia, living with alzheimers, understanding alzheimers

Passionate, insightful, and important piece by friend and Alzheimer’s advocate Brian LeBlanc. Thank you, Brian, for sharing your life and experience with all of us! You’re making such a difference in the world!

A Bit of Brian's Brilliance's avatarA Bit of Brian's Brilliance

One of the things that makes me angry about having Alzheimer’s Disease are people that DO NOT WANT TO UNDERSTAND that I, and people like me, still know what’s going on around them and can still carry on an intelligent conversation. Sure, the words may not flow as evenly and smoothly as they did before, the mind may not allow us to remember the conversation an hour or a day or a week from now, but we still enjoy being in the moment.

Before my diagnosis, I had friends . . . lots of friends, or so I thought. These people who I thought were friends kept in contact with me, returned a phone call whether or not I left a message, would interact me with through Social Media or in person. Where in the hell are these people now? I have no idea. Don’t get me wrong, I’m not…

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Audio-Visual Books for People Living With Dementia

11 Friday Sep 2015

Posted by Ann Napoletan in Activities for Your Loved One, Books, Caregivers, Helpful Resources, Products

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books for people living with dementia, living with alzheimers, living with dementia

novelsWhat if you were once a voracious reader, but mild cognitive impairment, and ultimately full-blown Alzheimer’s took away one of your greatest pleasures?

Last week, Dr. Tonia Vojtkofsky announced the release of her Audio-Visual Books for Dementia explaining, “They are short stories that have text, narration, and pictures all together, so a person who enjoys reading but now finds it difficult because of dementia, can still have the experience of reading.

They can follow the text along with the narration, reinforcing their reading ability, and then as they decline, they can just listen to the familiar story. So these books are both cognitive stimulation and entertainment.”

Dr. Vojtkofsky says she is curious to see over time as someone declines if they will find it comforting to hear the familiar voice, see same pictures, etc, repetitively, finding it calming and reassuring. She will be testing these stories at a memory care facility to get clients’ feedback.

The books are available for download (onto any electronic device: computer, tablet or phone) on the CCS website for a small fee $3.50 per book or 4 for $12.

Learn more at http://cognitivecaresolutions.com/books/.

___

Tonia Vojtkofsky, Psy.D. is Founder and President of Cognitive Care Solutions​ and a researcher at UC Irvine MIND & ADRC. She is also a founding member of WomenAgainstAlzheimer’s, a network under the UsAgainstAlzheimer’s ​umbrella. This summer she released her first book, Keep Your Brain Stronger For Longer, 201 Brain Exercises for People With Mild Cognitive Impairment.

 

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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