• Home
  • Helpful Resources
  • Reading List
  • Recommended Blogs
  • Marilyn’s Legacy: A World Without Alzheimer’s
  • About Me
  • Contact Me

The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: usagainstalzheimers

The Impact of Long-Term Caregiving and Dementia

13 Wednesday Nov 2013

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, USAgainstAlzheimer's

≈ Leave a comment

Tags

Alzheimers advocacy, alzheimers awareness, caregiver, caregiving, dementia awareness, usagainstalzheimers

“This is unacceptable for our future…” ~Meryl Comer, President, Geoffrey Beene Foundation, Alzheimer’s Initiative

Please watch this short video and then share it with several others. It’s a step toward increasing awareness and understanding…

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

From the Desk of George Vradenburg: Please Take Action Now

30 Monday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, USAgainstAlzheimer's, Washington

≈ Leave a comment

Tags

alzheimers awareness, alzheimers funding, alzheimers research, dementia awareness, usagainstalzheimers

usa2_logo_email_header

Dear Friends,

Elected officials in
Washington are playing
games with lifesaving
research.
Researchers say we can
end Alzheimer’s in the
next decade, but not
without an investment in
research.
Tell Congress that finding
a cure starts now – stop
the cuts to biomedical
research.

While Republicans and Democrats play partisan politics over Obamacare and a government shutdown, their antics are threatening the nation’s commitment to critical Alzheimer’s research. Alzheimer’s research is not just another line item in the budget – you and I both know that it’s the key to ending the years of pain and suffering that families face as they battle this disease.

Draconian budget cuts – known as “the sequester” – went into effect earlier this year and have cut funding for Alzheimer’s research and other programs. Right now, Congress is considering multiple bills to keep the government from shutting down while a longer-term spending bill is negotiated. Unless we put pressure on Congress to stop the sequester, deep cuts to Alzheimer’s research are likely to continue for years to come.

Join thousands of other supporters to speak out before Monday’s budget deadline. We can’t let these cuts become the new normal.

Tell Congress: Quit playing games with the well-being of our loved ones. Stop the sequester and invest in Alzheimer’s research.

A day doesn’t go by without more stories documenting the devastating effects of sequestration’s cuts:

  • The current NIH budget for Alzheimer’s research is down $20 million from the previous year.1 Alzheimer’s is already grossly underfunded, and this reduction wipes out previous modest gains.

  • Some researchers are being forced to take out personal loans to avoid having their labs shut down.2

  • Fewer physician scientists are being trained. One in ten slots were eliminated this past year.3

The story gets even worse: Republicans and Democrats agree that these cuts to research funding are a bad idea. They agree! But this bipartisan consensus is being drowned out by sequester politics.

That’s why it’s so important for constituents like you and me to contact our lawmakers. It’s easy for them to put Alzheimer’s on the back burner unless we mobilize and speak out.

Ask your members of Congress to work out a deal that protects critical research funding. Keep the pressure on right now – before the upcoming budget deadline.

Researchers say with adequate resources we can end Alzheimer’s in the coming decade. We can’t afford to wait. We can’t afford to let these cuts stand.

Thank you for being part of this movement.

Sincerely,

George Vradenburg
Chairman and Co-Founder
USAgainstAlzheimer’s

1. http://blogs.marketwatch.com/encore/2013/07/09/budgeting-for-the-alzheimers-fight/
2. http://fcnp.com/2013/08/21/congressman-morans-news-commentary-sequester-cuts-disrupting-nih-projects/
3. http://www.baltimoresun.com/news/opinion/oped/bs-ed-biomedical-research,0,6244826.story

More than 350 leading Alzheimer’s researchers agree that we can prevent and effectively treat Alzheimer’s by 2025 – and it could even be sooner if critical investments and reforms are made. We must SUBSTANTIALLY INCREASE funding for Alzheimer’s research in the next 5 years and we must DRAMATICALLY SHRINK the time it takes to get new, safe therapies to market.USAgainstAlzheimer’s is a community of enraged and engaged individuals who have been touched by Alzheimer’s disease and are committed to achieving the bold and attainable goal of ending Alzheimer’s.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Friday Potpourri

27 Friday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, Books, Caregivers, Children and ALZ, Events, Giveaways, Helpful Resources, Inspiration, Support system, USAgainstAlzheimer's, World ALZ Month

≈ Leave a comment

Tags

alzheimer's books, alzheimers awareness, caregiver, caregiver stories, usagainstalzheimers, world alzheimers month

heroJust a couple of tidbits that may be of interest…

  • In honor of her mother, World Alzheimer’s Month, and the upcoming NYC Walk to #ENDALZ, author and caregiver Lisa Hirsch will be offering her ebook, My Mom My Hero: Alzheimer’s – A Mother and Daughter’s Bittersweet Journey free of charge for 4 days, Sept 28 through Oct 2. Visit Amazon to download your copy. Thank you for your generosity Lisa!
  • Oct 3 USAgainstAlzheimer’s Conference Call – Register NOW!

From Ginny Biggar of USA2:

Please join me on Thursday, October 3 from 12-1 pm Eastern time for the next ActivistsAgainstAlzheimer’s Network conference call focused on Personal Stories. I may be familiar to some of you. For those that don’t know me, I’m the director of the Activists Network at USAgainstAlzheimer’s. I work with individuals around the country who are coping with Alzheimer’s every day.

usa2_logo_email_header

Part of my focus is listening to the stories that you and others tell about how Alzheimer’s is affecting your lives. Telling these stories is a critical way we can raise awareness about Alzheimer’s.

Why_Did_Grandma_Put

  • Last but not least, don’t forget to enter for a chance to win Max Wallack’s fantastic book, Why Did Grandma Put Her Underwear in the Refrigerator?  All you have to do is – click here – and leave a comment on the contest post. A winner will be chosen at random on Sunday evening (Sep 29).

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...
Newer posts →
© Copyright 2025
All Rights Reserved
The Long and Winding Road

Marilyn, BA (before Alzheimer's)

Contributor

Contributor

Recent Posts

  • The Latest Alzheimer’s Research Developments
  • National Caregivers’ Day: February 21, 2025
  • June 7, 2021: A Historic Day
  • UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!
  • Happy 84th Birthday, Mom.

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 443 other subscribers

Archives

Blog Directory & Business Pages at OnToplist.com

Blog Stats

  • 142,053 hits

Meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com
stats for wordpress

Categories

Popular Posts

  • About Me
  • Thank you!
  • A Special Bond
  • Monday ... on Caregivers
  • Telling the Story
  • Hiding In the Canned Goods Aisle...and Other Stuff
  • Walking a mile in his shoes...
  • CGSN: Focus on YOU!
  • Look for me on VoiceQuilt!
  • Caregiving: Imperfections, Weaknesses, Acceptance, and Forgiveness

Recent Comments

  • Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s | The Long and Winding Road… (alzjourney.com) | Ann Campanella on Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s
  • Betty Trimble on Film Review: Angel’s Perch
  • Carol on Caregiver PTSD: Fact or Fiction?
  • (3) Ritamae Reichardt on When Caring Takes Courage: A MUST HAVE Caregiving Guide
  • Mary Jo George on June 7, 2021: A Historic Day

Pages

  • 2013-2014 News Archive
  • Helpful Resources
  • Latest News & Events
  • Postmaster General Letter – Alzheimer’s Semipostal
  • R E S I S T Resources
  • Reading List
  • Recommended Blogs
  • About Me
  • Contact Me
Coming Soon!
Marilyn's Legacy: A World Without Alzheimer's, Inc.
Stay tuned!!

Blog at WordPress.com.

  • Subscribe Subscribed
    • The Long and Winding Road...
    • Join 443 other subscribers
    • Already have a WordPress.com account? Log in now.
    • The Long and Winding Road...
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d