Tags
Let your tears come. Let them water your soul.
– Eileen Mayhew
“The week” is here.
Two years ago at this time, I was sitting at Mom’s bedside focused on every subtle change in her breathing. The end was days, if not hours, away.
Final Days: The Vigil
Watching a loved one die is a surreal experience. Somewhere in the far reaches of your mind, you have this misguided, nonsensical notion that she’s going to get better. But your logical self knows that isn’t the case. You know that ultimately, you will be packing up her things and leaving this place without her. Just the thought of it leaves you with a knot the size of Texas in your stomach.
One minute, you are quietly talking to God asking Him to take her, praying that her suffering will finally come to an end. And then you find yourself begging Him for just one more day with her.
That last day comes; something is different. You know the end is near. You watch as she takes her final breath, and it’s as though you can feel her soul being lifted toward the Heavens. It’s a moment etched in your memory forever. You’ll replay that last breath in your mind a million times. Even two years later, it feels like just yesterday.
Did she know I was right there with her until the end? Did she know how much I loved her and how sorry I was for those early years when I didn’t handle things as well as I could or should have?
Did she just squeeze my hand? Did she blink? No, that must have been my imagination. Or was it?
All I Want for Christmas Is… My Old Memories
This year, for the first time ever, I decided not to put up the tree. I feel overwhelmed and quite honestly, I’m really looking forward the holidays being over. I know there will be moments of joy, especially with the little ones, but the holidays will never be what they once were.

Christmas at Eason House, 2010
I’m angry that we were robbed of so many years. And, I’m sad that I can’t actually remember the last GOOD Christmas we had at Mom’s.
Even now my most vivid memory of Christmas Eve dinner was the last year she cooked and hosted. We were so mired in denial that we tried to go on as if things were fine. But they weren’t fine at all.
Mom was frazzled; preparing the meal was no longer enjoyable for her. It was a strain. She couldn’t get the timing quite right. There wasn’t enough food for everyone. When we sat down for the annual game of penny rummy, she said she didn’t feel like playing. The reality was, she didn’t remember how to play. She had done all these things a million times, but it was clear now that Alzheimer’s was winning. It was the end of an era. And dammit, that’s what I remember about Christmas at Mom’s.
New Traditions

Circa 1988. Mom at age 52.
Last year, realizing how difficult December 15th would be, we decided to do something fun that Mom would have enjoyed. We would make the best of the day and honor her memory. Baking Christmas cookies made the most sense.
Oh how she loved to bake, and her cookie trays always looked just perfect. Thus began a new tradition, “Gram’s Cookie Day.” So, this weekend instead of drowning in tears over what’s been lost, we’ll bake some old favorites. I’ve no doubt she’ll be watching over us to be sure everything is up to her standards. (((smile)))
Yesterday, Today, and Tomorrow
My mom adored Christmas. She loved the decorations and traditions, loved being in the kitchen baking and cooking, and loved being surrounded by family. She was generous beyond words and it gave her such joy to watch as everyone opened the gifts she had carefully chosen.
I want to love the holidays as much as I used to; as much as Mom did. But, I fear those days may be gone forever. Now it seems the arrival of Thanksgiving is little more than a reminder of 2012.
December 15th will always arrive with a vengeance ten days before Christmas. There’s simply no way around it.
I hope in time your memories of Christmas will turn further back in time and be happy ones. You are still in the grieving process and it’s so understandable Christmas is a memory of her death and her disease for you now. Your honesty helps others and gives them support to get through the holidays.
LikeLike
Thank you, Nancy. Happy Holidays to you and yours….
LikeLike
So beautiful, poignant, and in the end just sad. Thank you, Ann. I love it when you combine memoir and your Alzheimer’s advocacy. Lots of fuel in those tears and so much love. I look forward to sharing this with others.
LikeLike
Thank you so much, Elaine. Sending you holiday blessings across the miles.
LikeLike
What a touching piece about regret, rejoicing and the promise of hope. Thank you.
Re: “One minute, you are quietly talking to God asking Him to take her, praying that her suffering will finally come to an end. And then you find yourself begging Him for just one more day with her.”
I know EXACTLY what you mean. I wrote a poem about those mixed and contradictory feelings here:
http://myalzheimersstory.com/2014/05/14/a-daughters-prayer-to-god/
LikeLiked by 1 person
Oh Susan…. I shared your poem not long ago right here on my blog. It truly touched my heart. What a gift to those of us who understand exactly what those feelings are like but can’t put them into words.
https://alzjourney.com/2014/09/26/susan-macaulay-alzheimers-daughters-prayer/#more-4404
LikeLike
Oh…Hmmmmm…Thanks for the compliment on the poem.
LikeLike
Yes, that’s exactly what it’s like. I’m there now with my mother so I see and feel the words of your poem. Beautifully expressed. Thank you.
LikeLiked by 1 person
thanks and sorry for the painful parts of your journey… ❤
LikeLike
I am that woman you all speak about in your poems. I am a daughter who just lost a mother. The sadnes has overtaken my ability to want to do anything for Christmas, Jesus’ Birthday. My mother is in the presence of The Lord for she knew Him intimately and believed in His promise of eternal life. I know she is with Him. I know I will see her again, but is the agonizing time that I must wait to be united,with The Lord too.
Just like the others, my mother loved our Norwegian Christmas traditions that she taught us, but this year I just cannot manage to accomplish much. I need to be assured that it is ok if I don’t do what I normally do. I want to hold her hand again, touch her face, sing praise and worship songs,Christmas carols while we bake our 7 different types of cookies. I just want to remember all that she was to me and our family. Jesus take away the emptiness that I feel.
I forever love you Mom. 💙
LikeLiked by 1 person
I’m so sorry for your loss, Linda… I just posted in a support group about the importance of not feeling pressured to overdo the holidays. I spent a good while beating myself up earlier this month before I finally accepted that I just don’t want to do *everything* this year. I opted for a small potted Norfolk pine and a few decorations. Maybe next year will be different; I don’t know. But for now I’m at peace with doing what feels right to me. Nothing more, nothing less. Sending you prayers, my friend.
LikeLike
As I sit her reading your post the tears are flowing. In three days, December 20th, it will be 1 year since my Momma went home to her Momma. I’m dreading the day…especially since she was in hospice care in my home. Thank you so much for sharing your story💜
LikeLike
Michele, my heart hurts for you. Having just made it through the three year anniversary of my mom’s passing earlier this week, I can empathize with what you’re feeling. That first year is the hardest and it’s especially painful when it comes around the holidays when we’re all supposed to feel so “jolly”…
Sending prayers for you – may you find comfort in happy memories over the next week. Be gentle with yourself and go with your feelings. I decided long ago that I’m not going to apologize for my struggles, my bad days, or my tears. We all handle grief and the grieving process differently and on our own timeline. I think we have to trust our hearts to guide us.
Blessings,
Ann
LikeLike