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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Author Archives: Ann Napoletan

Progress…

27 Friday Jul 2012

Posted by Ann Napoletan in Pharma, Prevention, Research

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This evening, I ran across this Huffington Post article and thought it worth sharing. Does Alzheimer’s Have to Bankrupt Us? was published earlier this week, as the Alzheimer’s Association’s International Conference was held in Vancouver.

Michael Hodin is the Executive Director of the Global Coalition on Aging, and he offers some stunning facts around the cost of Alzheimer’s, as well as the hope that today’s research offers.

Did you know that the total costs related to Alzheimer’s are currently a whopping 1% of global GDP? That’s certainly nothing to sneeze at, nor is the fact that right now, there are over 35 million people living with this disease worldwide. The projections for 2030 and 2050 are 65 million and 115 million, respectively, which I find astounding. 

On the bright side, continuing research is yielding some positive results. We’re learning more and more about factors that seem to contribute to the disease, and with that we can begin to take steps toward prevention. Perhaps most interesting is the research related to Souvenaid, described as “a nutrient mixture that promotes new connections between brain cells.” Several clinical trials have already been conducted or are underway, and that’s certainly a huge step in the right direction.

Ultimately, meetings like the Alzheimer’s Association’s International Conference are signs that the worldwide spotlight is beginning to shine on this disease, and that alone brings us hope where there once was none.

 

Source: http://www.huffingtonpost.com/michael-hodin/alzheimers_b_1694309.html?utm_hp_ref=fb&src=sp&comm_ref=false

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Friendship: The Good, the Bad, and the Ugly

26 Thursday Jul 2012

Posted by Ann Napoletan in Inspiration, Mom, Smiles, Support system

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Let’s face it, everyone has “stuff.” Whether it’s ALZ or some other chronic illness, kid issues, financial hardship, or whatever, we are all dealing with the challenges life throws at us. It’s true; life isn’t always what we bargained for, but if you have a strong support system, you can make it through anything.

This past weekend, I was reminded of how fortunate Jess and I are to have such beautifully caring, supportive friends. Walter Winchell wisely said, “a real friend is one who walks in when the rest of the world walks out,” and it’s so true. It’s easy to be there for someone during the happy times, but not quite as much fun when things aren’t all sunshine and roses.

It’s the people who don’t run when times get tough – those are your true friends. They stand right beside you every step of the way, grounding you, reminding you that you aren’t alone, and helping you see that you’re strong enough to get through anything, but it’s okay to have moments of weakness.

The photos below were taken at Eason House last weekend when my oldest and dearest friend, Debby, came to visit and take video of Rodney’s special song for my mom.  When we were in high school, she practically lived at our house, and my mom thought of her as a second daughter.

One of the most memorable of our escapades was the time Debby got into a spat with her parents, packed up all of her dresser drawers (literally), and moved (with the drawers) into our small apartment! That was just one of our many exploits, and here we are 30 years later, still the best of friends…through thick and thin, the good, the bad, and even the ugly.

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Wonderful world, indeed.

22 Sunday Jul 2012

Posted by Ann Napoletan in Eason House, Inspiration, Mom, Music and Art

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We have the most incredible people in our lives… ♥ One of the things that makes me sad is that my mom – such a lover of great music – was never able to enjoy The Conspiracy Band with us. Unfortunately, our Conspiracy family didn’t come into our lives until she was already ill. But today, Rodney came to the house and sang one of my mom’s favorite songs to her – Wonderful World.

It was amazing and very bittersweet. I know that the woman who adores music and loves to dance is still there, deep down inside, and that she enjoyed today immensely. But, for anyone who knew my mom, watching this was also heartbreaking…  Tears of joy and tears of sadness were shed, and ultimately I’ll truly treasure this memory forever.

Rodney, Sherrie, Erin, and Michael – Please know how grateful we are to have you in our lives. Your hearts are huge beyond measure, and you gave my mom such moments of joy today, while giving us a beautiful memory we’ll always hold close. Rodney… I’m pretty sure you have a new #1 fan. ♥

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