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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Author Archives: Ann Napoletan

The Longest Day

21 Sunday Jun 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Behaviors, Caregivers, Facts & Figures

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alzheimers, Alzheimers advocacy, alzheimers awareness, alzheimers caregivers, alzheimers facts and figures, dementia, the longest day

sunriseJune 21st. Summer Solstice. The Longest Day…

Each year, the Alzheimer’s Association holds their Longest Day event on the summer solstice. It’s a sunrise-to-sunset event symbolizing the challenging journey faced by those living with Alzheimer’s and their caregivers.

Alzheimer’s doesn’t discriminate, and it certainly never takes a vacation. This brutal disease is hard at work day and night, 24x7x365, dishing out anxiety, agitation, and even terror for the person in its throes. Each day, it tosses out new challenges – memory impairment, yes, but how about some hallucinations and a bit of aggression and paranoia to keep things interesting.

For caregivers, Alzheimer’s has a healthy serving of depression, grief, stress, and uncertainty. Add to that financial worries, lack of sleep, and the emotional distress of watching a loved one slip away slowly. Respite? You must be kidding – who has the time or resources for respite?

This is life for 15.7 million family members and friends who provide care to people with Alzheimer’s and other dementias in the United States alone. That’s an estimated 17.9 billion hours of unpaid care valued at $217.7 billion.

What I’ve described here really only scratches the surface. Until you’ve lived it firsthand, you just can’t imagine the destruction Alzheimer’s leaves in its path.

For those who haven’t experienced it, I hope you never will. However, I must tell you the odds are not in your favor. Without a medical breakthrough, it is estimated 13.8 million Americans will be living with Alzheimer’s by the year 2050.

What will you do to make a difference today, tomorrow, and in the weeks and months to come?

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50 Years of Love

14 Sunday Jun 2015

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Face of Alzheimer's

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alzheimers, alzheimers caregiving, dementia

“She’s my princess, and I’m her William…”

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Smitten in Memory Care: Me and Mr. Z.

04 Thursday Jun 2015

Posted by Ann Napoletan in Face of Alzheimer's, Inspiration, Life After Caregiving, Ruminations, Smiles, Volunteering

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Tags

alzheimers, dementia, memory care, memory care volunteer

Your hollow expression was the first thing I saw as I returned from a walk with one of your neighbors. Seeing you alone in your wheelchair, eyes slightly downward in a vacant stare, I wondered if you might enjoy some company. Still, I was unsure of how my advance would be received.

Just then, you looked up at me and my doubts disappeared. Those vacant eyes were suddenly alive and sparkling with joy, as a wide smile completed the picture. Just like that, you were fully present and engaged, holding out both hands as you greeted me, “Hello beautiful!” Continue reading →

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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