Tags
alzheimers, alzheimers research, dementia, usagainstalzheimers, womenagainstalzheimers, world alzheimers month
PLEASE contact your representatives… please. If you aren’t sure who or how, click here to find your House representative and here to find your Senate representatives.
We MUST let Washington know that we’re mad as hell and need their support NOW.
When I was in DC at the WomenAgainstAlzheimer’s Out of the Shadows Summit earlier in the month, we heard research leaders Reisa Sperling (Brigham and Women’s, Harvard), Kate Zhong (Cleveland Clinic), and others, talking about the great work being done in labs across the country. Hope is there, we just need funding to match that of the other leading causes of death: cancer, heart disease, and HIV/AIDS.
Don’t think your voice doesn’t count. You + your neighbor + his brother + his co-worker + her neighbor + so on and so on and so on. It’s time to make this a movement, just like the movement to cure cancer and HIV/AIDS. Time is of the essence.
What do we want them to do?
- Increase funding for the National Institute on Aging by at least $100 million from the fiscal year 2014 level.
- Recognize the immense contributions of family caregivers by enacting the Social Security Caregiver Credit Act.
- Honor Legendary Coach and Alzheimer’s champion Pat Summitt with the Congressional Gold Medal.

I saw this poem for the first time tonight and felt compelled to share. I remember feeling torn, much in the way Susan Macaulay describes, two years ago. The internal struggle and conversations with God. Bargaining. Begging. Questioning. Not wanting her to suffer any longer, yet not wanting to let her go. Because at least when she was here, I could hold her hand, see her face, hear her voice, and just simply be with her. Susan found just the right words – this is beautiful and heartbreaking.