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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: womenagainstalzheimers

WomenAgainstAlzheimer’s Launches Shadow Box Memory Project!

28 Tuesday Oct 2014

Posted by Ann Napoletan in Advocacy and Awareness, Face of Alzheimer's, Inspiration, Life After Caregiving, Mom, November-National ALZ Awareness Month, USAgainstAlzheimer's, Washington

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alzheimers, alzheimers awareness, dementia, shadow box memory project, usagainstalzheimers, womenagainstalzheimers

Last month, I had the pleasure of attending the WomenAgainstAlzheimer’s Out of the Shadows Summit held in Washington, DC. While there were many memorable moments over those two days, one of the highlights was our evening at the National Museum of Women in the Arts.  That night, the WomenAgainstAlzheimer’s (WA2) Network launched its Shadow Box Memory Project.

Photo Credit: WomenAgainstAlzheimer’s

Prior to the Summit, attendees were invited to create shadow boxes containing pictures and memorabilia honoring loved ones affected by Alzheimer’s disease. Each shadow box was as unique and beautiful as the person that inspired it. Seeing the display was a powerful, moving reminder of why we are determined to keep fighting until we stop Alzheimer’s in its tracks.

Now WomenAgainstAlzheimer’s wants to know what you think about expanding this project, creating a national campaign to raise awareness about the disease – much like the AIDS Quilt did for AIDS. Did you know the quilt boasts an impressive 48,000 panels and a nomination for the Nobel Peace Prize??!

As we prepare to mark the beginning of National Alzheimer’s Awareness Month, please take 2-3 minutes to respond to this brief survey. Your feedback is very valuable to WomenAgainstAlzheimer’s, and your time and opinions are truly appreciated.

Click here to take the survey:  https://www.surveymonkey.com/s/GLLXNHK

Thank you so much and feel free to share this with others who have been touched by Alzheimer’s. Together we can and will make a difference!

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Mad as Hell: Creating a Movement

28 Sunday Sep 2014

Posted by Ann Napoletan in Advocacy and Awareness, Facts & Figures, USAgainstAlzheimer's, Washington, World ALZ Month

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alzheimers, alzheimers research, dementia, usagainstalzheimers, womenagainstalzheimers, world alzheimers month

PLEASE contact your representatives… please. If you aren’t sure who or how, click here to find your House representative and here to find your Senate representatives.

We MUST let Washington know that we’re mad as hell and need their support NOW.

When I was in DC at the WomenAgainstAlzheimer’s Out of the Shadows Summit earlier in the month, we heard research leaders Reisa Sperling (Brigham and Women’s, Harvard), Kate Zhong (Cleveland Clinic), and others, talking about the great work being done in labs across the country. Hope is there, we just need funding to match that of the other leading causes of death: cancer, heart disease, and HIV/AIDS.

Don’t think your voice doesn’t count. You + your neighbor + his brother + his co-worker + her neighbor + so on and so on and so on. It’s time to make this a movement, just like the movement to cure cancer and HIV/AIDS. Time is of the essence.

What do we want them to do?

  • Increase funding for the National Institute on Aging by at least $100 million from the fiscal year 2014 level.
  • Recognize the immense contributions of family caregivers by enacting the Social Security Caregiver Credit Act.
  • Honor Legendary Coach and Alzheimer’s champion Pat Summitt with the Congressional Gold Medal.

200 vs 465

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The Long and Winding Road

Between 2009 and 2015, Marilyn’s Mighty Memory Makers have raised over $22,000 in the fight to #ENDALZ! To all who have supported us, THANK YOU!!

Marilyn, BA (before Alzheimer's)

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