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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Caregiver Burnout

Alzheimer’s Caregiving: Thoughts for the New Year

28 Sunday Dec 2014

Posted by Ann Napoletan in Advocacy and Awareness, Books, Caregiver Burnout, Caregivers, Guilt and Regrets, Helpful Resources, Ruminations, Support system, Tips

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alzheimer's books, alzheimers, alzheimers caregivers, alzheimers support, caregiver stress, caregiving, dementia, respite care

As 2014New Year 2015 draws to a close, I’ve been thinking a lot about the pressure caregivers feel to be perfect. I see this on a regular basis through my role as co-moderator of the USAgainstAlzheimer’s online support community. Family members find themselves drowning in guilt because they’ve set unreasonably high expectations for themselves; often these expectations are so lofty that no human being could possibly live up to them.

I think an admirable goal for 2015 is to be more gentle with yourself. Pay attention to your self-talk, and when you realize you’re beating yourself up, make a conscious decision to S-T-O-P. I know it’s easier said than done, but try and have faith in the decisions you make, for there is no doubt you are doing the very best you can.

As don Miguel Ruiz reminds us in The Four Agreements, your “best” will be different from day to day, perhaps from hour to hour. When you are sick with a winter cold or exhausted due to lack of sleep or simply at your wit’s end, your best will be different from when you are feeling 100%. That is a fact, and that, my friend, is okay.

Here are four things I hope you’ll consider in the coming year.

  • Join a support group. Check with your local Alzheimer’s Association chapter or look into an online support community like the USAgainstAlzheimer’s Facebook Community. There is immeasurable comfort in simply knowing you aren’t alone. I resisted seeking support during my mom’s illness, and by doing so, I shouldered more on my own than I needed to.
  • If you care for a loved one at home, seek respite. There is no shame in caring for yourself. In fact, it’s a necessity. Your ability to do what’s best for your loved one depends on your own physical, emotional, and mental wellbeing. The National Respite Locator is a wonderful place to start when searching for assistance.
  • Check out Seasons of Caring: Meditations for Alzheimer’s & Dementia Caregivers. This one-of-a-kind book was recently published by ClergyAgainstAlzheimer’s (CA2). Available for only $3.99 on Kindle and less than $15 in a lovely paperback edition, all proceeds benefit CA2 in their work to support caregivers and stop Alzheimer’s. This interfaith book contains over 140 original meditations by 70 leaders in the faith community, care specialists, and caregivers. I’m proud to be a contributor to a book I believe will provide infinite amounts of hope and encouragement to dementia caregivers around the world.
  • Do something to raise awareness or support other caregivers. Whether you simply share an article on social media or write a blog post, participate in your local Walk to End Alzheimer’s, or offer support to a fellow caregiver online or in person, paying it forward will give you a sense of purpose. The single thing that has helped me most in this journey has been reaching out to others.

I wish each and every person who visits this page a blessed 2015. May you find support, comfort, and peace of mind in the coming year.

With love,
Ann

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National Alzheimer’s Awareness Month: Health-eBrain Study

31 Friday Oct 2014

Posted by Ann Napoletan in Advocacy and Awareness, Caregiver Burnout, Caregivers, November-National ALZ Awareness Month, Research, Sandwich Generation, USAgainstAlzheimer's

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alzheimer's caregiver, alzheimers, alzheimers caregiver research, alzheimers caregiving, dementia

Here’s a great way to participate in National Alzheimer’s Awareness Month!

If you are one of the 15 million caregivers looking after a loved one with Alzheimer’s or another form of dementia, your input is crucial to the success of the Caregivers’ Health-eBrain Study! Please join Meryl Comer, advocate, journalist, author, and caregiver, as a participant in this important online study.

Just 30 minutes of your time will help scientists understand how the caregiving lifestyle impacts brain performance. And you can complete the questions right from your home computer! 

You may be reading this and thinking, “I’m not caring for my parent/spouse/loved one 24×7 at home. I just oversee her care and help out with things. I’m not really a caregiver.”

I get that line of thinking. There was a time when I thought being a caregiver meant caring for a loved one at home, period. However, the definition is much broader than that.

You’re a caregiver if:

  • You’re a son or daughter supporting a parent with memory problems. They might live three doors down or in another state, but regardless, you are a caregiver.
  • You missed your daughter’s school play because you were called into action to handle a crisis with your loved one. You are a caregiver.
  • You’ve had to take time off work to drive a parent to doctor’s appointments or run home to handle a crisis. You are a caregiver.
  • On Sunday afternoon, you can be found at Mom’s house setting up her meds for the coming week. You are a caregiver.
  • You’re sandwiched right between the children you’re still raising and the parent who needs your support on a regular basis. You are a caregiver.
  • You spend your lunch hour on the phone making medical appointments and dealing with insurance companies. You are a caregiver.
  • You couldn’t get away for your usual summer vacation this year. Who would look after Mom while you were away, and what if there was an emergency? You are a caregiver.
  • You coordinate in home assistance or oversee the care provided to your loved one in a care facility. You are a caregiver.
  • You can often be found at your loved one’s house helping with household tasks like cooking, cleaning, yard maintenance, caring for pets, or shopping. You are a caregiver.

If any of these sound familiar, we hope you’ll take just 30 minutes to participate in the Caregivers’ Health-eBrain Study and share the link with others.

To begin click here –> https://www.health-ebrainstudy.org

 

 

 

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Stress Buster: Aqua Aerobics

18 Thursday Sep 2014

Posted by Ann Napoletan in Caregiver Burnout, Caregivers, Exercise, Prevention, Tips

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alzheimers caregiver stress, alzheimers caregiving, alzheimers prevention, caregiver exercise, water aerobics

heartHeart healthy is brain healthy. It seems to be the new prevention mantra, so this guest post by Kaitlin Gardner of AnApplePerDay.com is timely. Although there is no known, certain way to prevent Alzheimer’s, researchers believe that overall health and fitness is a big step in the right direction.

Further, caregiving is a high stress proposition. Caregivers are prime candidates for  burnout and stress related illnesses. Depression is understandably common, and as friends slowly drift away and loved ones demand more care, isolation can be a big issue. If any of this sounds familiar, think about aqua aerobics as a stress buster and mood booster! 

Why I Love Aqua Aerobics

poolBy: Kaitlin Gardner

I have been regular about exercise for many years. I’ve done a lot of different routines, from weight work to running. After a while, I found myself in a rut with my workout – I just needed a renewing spark for my exercise. That’s when I discovered aqua aerobics, and fell in love with this creative way to use the pool. Continue reading →

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Marilyn, BA (before Alzheimer's)

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