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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Caregivers

The Longest Day

21 Sunday Jun 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Behaviors, Caregivers, Facts & Figures

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alzheimers, Alzheimers advocacy, alzheimers awareness, alzheimers caregivers, alzheimers facts and figures, dementia, the longest day

sunriseJune 21st. Summer Solstice. The Longest Day…

Each year, the Alzheimer’s Association holds their Longest Day event on the summer solstice. It’s a sunrise-to-sunset event symbolizing the challenging journey faced by those living with Alzheimer’s and their caregivers.

Alzheimer’s doesn’t discriminate, and it certainly never takes a vacation. This brutal disease is hard at work day and night, 24x7x365, dishing out anxiety, agitation, and even terror for the person in its throes. Each day, it tosses out new challenges – memory impairment, yes, but how about some hallucinations and a bit of aggression and paranoia to keep things interesting.

For caregivers, Alzheimer’s has a healthy serving of depression, grief, stress, and uncertainty. Add to that financial worries, lack of sleep, and the emotional distress of watching a loved one slip away slowly. Respite? You must be kidding – who has the time or resources for respite?

This is life for 15.7 million family members and friends who provide care to people with Alzheimer’s and other dementias in the United States alone. That’s an estimated 17.9 billion hours of unpaid care valued at $217.7 billion.

What I’ve described here really only scratches the surface. Until you’ve lived it firsthand, you just can’t imagine the destruction Alzheimer’s leaves in its path.

For those who haven’t experienced it, I hope you never will. However, I must tell you the odds are not in your favor. Without a medical breakthrough, it is estimated 13.8 million Americans will be living with Alzheimer’s by the year 2050.

What will you do to make a difference today, tomorrow, and in the weeks and months to come?

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50 Years of Love

14 Sunday Jun 2015

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Face of Alzheimer's

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alzheimers, alzheimers caregiving, dementia

“She’s my princess, and I’m her William…”

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Caring for the Caregiver: Essential Oils

24 Sunday May 2015

Posted by Ann Napoletan in Caregiver Burnout, Caregivers

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Tags

alzheimers, alzheimers caregiving, caregivers, caregiving, essential oils

I was recently introduced to essential oils, and have become very interested in their therapeutic properties. Up to this point, my experience had been limited. I knew they smelled good and that lavender was said to decrease stress and improve sleep, but it didn’t go much further than that. It was really conversations with a few friends that piqued my curiosity.

Why Essential Oils?

Essential oils are nothing new; in fact, they’ve been around for centuries. However, with increasing concerns over use of harmful chemicals in everything from household cleaners to shampoo, there is definitely a heightened interest in natural alternatives. Oils have many practical household applications, but I’m most interested in what they can do for our mind, body, and spirit. Continue reading →

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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