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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Face of Alzheimer’s

Mom Day 2017

16 Saturday Dec 2017

Posted by Ann Napoletan in Face of Alzheimer's, Grieving, Holidays, Inspiration, Life After Caregiving, Mom, Ruminations, Saying Goodbye

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Tags

alzheimers, dementia, grief and loss, grieving, holiday memories, mom day, remembering mom

Five years ago, today, my mom became whole again. She found peace after a long, valiant battle against Alzheimer’s. She gained her angel wings. December 15, 2012.

I try to take this day off every year. I prefer to spend it quietly, alone or with my daughter, allowing my mind to go where it will. If tears come, let them come; I really don’t want to be distracted by the minutia of the outside world, nor do I want to hide my emotions whatever they may be.

I started the day with a cup of hot coffee enhanced with a generous pour of Bailey’s – one of my mom’s favorite things!  I planned to spend the day baking as I often have on this day over the past five years. Some of my best, happiest (and earliest) memories are of December days spent baking Christmas cookies.

Mom loved to bake and when I was a child, the variety of beautiful cookies on her holiday trays was something to behold. Her cookies were part of the magic of Christmas. My love of baking is no doubt a result of those fond memories and of course, her influence. For years I’ve enjoyed recreating many of the recipes that have been handed down for generations, as well as adding some new ones.

I didn’t rush today. I didn’t get as much done as I had planned, but I really enjoyed the day. I listened to Christmas music, wrapped some presents, had lunch with Jess (sharing some laughs as we always do), and spent a good bit of time simply sitting with my thoughts. I cried and I smiled, thinking of years gone by, and tonight, I poured a glass of wine in her memory.

Another year has passed, and this year, I lost my dad as well. This will be my sixth Christmas without Mom and first without Dad. I’m sad, but there are also moments of peace in knowing they are with their beloved parents and others who have gone before them – the ones they loved so much. Most importantly, they are free of pain. And today, I felt both of them with me…

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Veterans and Alzheimer’s Disease

11 Saturday Nov 2017

Posted by Ann Napoletan in Advocacy and Awareness, Face of Alzheimer's, Facts & Figures, Helpful Resources, USAgainstAlzheimer's

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alzheimers, dementia, veterans, veterans and alzheimers risk, veterans day, veteransagainstalzheimers

Did you know that UsAgainstAlzheimer’s recently launched their newest network, VeteransAgaintAlzheimer’s?

Our vets face increased risk factors for Alzheimer’s, including traumatic brain injury, successive concussion syndrome, post-traumatic stress, and depression – all resulting from their service to our country. According to a recent UsA2 paper, older veterans who have suffered TBI are 60% more likely to develop dementia than those who have never experienced a traumatic brain injury.

Consider the fact that 22% of combat wounds suffered in Afghanistan and Iraq were brain injuries. That means our younger veterans face increased risk of Alzheimer’s disease as they grow older. And today, the US Department of Veteran’s Affairs estimates over 750,000 veterans are living with Alzheimer’s and other forms of dementia.

Please take a moment to read this important briefing, Veterans and Alzheimer’s: Meeting the Crisis Head On, to learn more.

You can also click here to add your voice to VeteransAgainstAlzheimer’s, and click here to register for the next Alzheimer’s Talks, on November 14, featuring Dr. David Cifu. Dr. Cifu is a Senior TBI Specialist at the U.S. Department of Veterans Affairs, and will be discussing the unique risks veterans face, as well as what science is learning about Alzheimer’s from veterans.

 

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Think Like a Scientist: Inside Alzheimer’s Disease

05 Sunday Nov 2017

Posted by Ann Napoletan in Advocacy and Awareness, Face of Alzheimer's, Films, Inspiration, Research, Video

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Tags

alzheimers, alzheimers inspiration, alzheimers research, alzheimers story, greg obrien, rudy tanzi, think like a scientist

Once or twice in a lifetime, if we’re lucky, we have a chance to meet a real life hero.

Greg O’Brien, author of OnPluto: Inside the Mind of Alzheimer’s, is one of those people for me. I had followed his story for years and finally had the privilege of meeting him a few years ago at the UsAgainstAlzheimer’s Summit in Washington. Greg’s courage, humor, and willingness to share his story in such an honest and unfiltered way, combined with his journalistic excellence, are beyond inspiring.

Also featured in this short film is Dr. Rudy Tanzi, arguably the leading AD scientist/researcher in the United States. Dr. Tanzi co-discovered all three early-onset familial Alzheimer’s disease genes and, as leader of the Alzheimer’s Genome Project, discovered several others. In 2014, he and Dr. Doo Yeon Kim, used Alzheimer’s disease genes to create “Alzheimer’s in a Dish,” effectively taking Alzheimer’s research to a new level.

Please take six minutes to watch this moving short film.

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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