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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Finding a Facility

Being the Squeaky Wheel

24 Thursday Jan 2013

Posted by Ann Napoletan in Blogging, Caregivers.com, Finding a Facility, Guilt and Regrets, Neglect and Abuse, Tips

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As caregivers, we do what we have to do; unfortunately, that often requires us to be the squeaky wheel clamoring for some grease.

I just heard another story this week that drives home the importance of being an advocate for your senior. My friend’s mother, who has dementia and cannot communicate, developed severe symptoms a few days ago prompting the nursing home to transport her to the hospital.

Once there, they began running tests to determine what was going on. The medical team kept coming back to one particular diagnosis, but my friend just didn’t think the pieces added up. She pushed for the doctors to check a few other things, and sure enough, the initial dx was incorrect and would have required an entirely different course of treatment.

Thankfully, my friend’s mother had someone there to advocate for her and to raise questions when things didn’t seem quite right. Docs do their best, but they’re not perfect. You know your loved one better than anyone, so when what you’re hearing doesn’t make sense, speak up. The worst that can happen is that you’re wrong, but at least you will have expressed your concerns.

The same holds true for long-term care. The only way to make sure your loved one is receiving proper care is to remain involved. Ratios in traditional style facilities are ridiculous, and in a business where nobody should be “cutting corners,” it happens all the time.

My latest piece on Caregivers talks more about this topic.

Click here to check it out —> Caregiving 101: Be the Squeaky Wheel.

Remember that everything isn’t always as it seems on the surface, and changes are bound to occur over time. Staying on top of things day in and day out will help to ensure quality care, as well as lessen your chances of having regrets or guilt down the road.

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Thoughts on Long-Term Care Insurance

21 Monday Jan 2013

Posted by Ann Napoletan in Blogging, Care Options, Caregivers.com, Finances, Finding a Facility, Helpful Resources, Long Term Care Insurance, Mom, Tips

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sunsetToday on Caregivers, some thoughts on long-term care insurance: Long-Term Care Insurance: This Caregiver is a Believer.

As I mention in the piece, long-term care insurance was never really on my radar. I’d never had a reason to think about it. And then my mom got sick, eventually needing long-term care. Who knew what an costly proposition this could be. We were in for the shock of a lifetime, and let’s face it, care for a loved one is not something you want to skimp on…

LTC insurance really is something that everyone should consider. You can’t give your family a better gift than peace of mind.

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Let’s not upset the apple cart…

08 Monday Oct 2012

Posted by Ann Napoletan in Blogging, Caregivers.com, Finding a Facility, Long Term Care Insurance, Mom, Pharma, Smiles

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So I returned Friday’s call to the neurologist’s office today. He wanted to bump up her Buspar, and I decided against it. Right now, I see no reason to change anything. Yes, she has had some horrible nights, but since we know there will never be a perfect balance, I have to go with the lesser of two evils. I’d rather a few nights than 24×7. Not taking that risk. We’ll re-evaluate next Monday.

That being said, I got a text from Susie tonight that blew my mind. Mom was on her second plate of meatloaf, potatoes, and carrots. Yes, REAL FOOD. I just told someone today that I doubted she would ever eat “normally” again, and whad’ya know – she proved me wrong! We’ll see if it’s a trend or a fluke, but I am stunned! Who would have ever thought…

The pictures below were texted to me at various times throughout the day. Enjoy!

(And, check out today’s piece on Caregivers – some tips on the dreaded search for long-term care. Major key to success: trust your gut.)

20121008-205800.jpg

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Marilyn, BA (before Alzheimer's)

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