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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Grieving

This ‘n’ that over at Caregivers…and a little update…

11 Friday Jan 2013

Posted by Ann Napoletan in A Place for Mom, Blogging, Caregivers.com, Grieving, Helpful Resources, Mom, Ruminations, Saying Goodbye, Tips

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AngelsExcellent piece by Jeff Anderson at A Place For Mom; great tips to help caregivers start the year off right:  5 Caregiver Resolutions: A To-Do List for the New Year

And, an update on my feelings about hospice following our experience in December:   Hospice: Why I’m a Believer

As for me, I spent about 48 hours in bed nursing major sinus issues and a bad cough, and am finally back amongst the living. Spent this afternoon making just a tiny dent in the mess that I call home. It’s going to feel so good to get things back in order, and hopefully organizing my things will translate to making me feel like my life is a bit more organized as well.

There are things I haven’t touched – mom’s clothes are still sitting in the dresser drawers awaiting my attention. Same goes for boxes brought back from Eason House and stuff from the memorial this past weekend. I haven’t done a thing about probate yet, aside from checking the website for information on how to get started and finding myself frustrated, annoyed, and in no mood to deal with any of it.

I’m slowly catching up on ‘thank you’ notes, and I put away all of the Christmas stuff today; you may recall that two of my very favorite elves surprised me by decorating while we were at Kobacker House. I took my time taking everything down. Lots of Christmas memories in all of those treasured ornaments. So many emotions bubbling up.

I thought I had been mourning the loss of my mom year in and year out as her disease progressed, but now I’m beginning to wonder. I feel like I’m starting from square one. With the Celebration of Life complete, there is some finality around the whole thing and it’s time for life to move on. I’m finding that I’m infinitely sad – not just for the loss of Mom on December 15th, but for the loss that started all the way back in 2004. For all the memories we didn’t get to make and all the time we didn’t have together before ALZ reared its ugly head. Now the magnitude of my loss is hitting home…

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…A deep breath, and a step toward closure…

06 Sunday Jan 2013

Posted by Ann Napoletan in Blogging, Caregivers.com, End of Life Planning, Grieving, Mom, Saying Goodbye, Smiles, Support system, Tips

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Yesterday was an exhausting, amazing, wonderful, tearful, blur of a day. I wrote a bit about it for Caregivers, specifically, “Goodbye” Doesn’t Have To Be Conventional.

Once I catch my breath, I’ll write some more thoughts about a Celebration of Life that came together just perfectly – with a great deal of help from my incredible daughter and some fantastic friends. I wouldn’t change a single thing about it, except perhaps to have been able to spend more time with the people who I don’t often see.

This is one of the images that will be etched in my mind forever…

reuben - ascension

Photo Credit: Reuben Gainey

 

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Loss

03 Thursday Jan 2013

Posted by Ann Napoletan in Blogging, Grieving, Inspiration, Saying Goodbye

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Once again, just when I thought I was doing great, I found myself in tears on four different occasions today. All it takes is a nice word or an act of kindness, a thought, or even just a look. It catches me off guard time and time again. I have so much thinking to do and a million things I want to read to try and understand the unexplainable. And write… I suddenly feel as though I could write for days and days.

I recently (and thankfully) crossed paths with a lovely woman through my Caregivers writing; earlier this week she shared part of a beautiful poem by Naomi Shihab Nye on her blog. The full poem can be found here, but what follows is the first stanza – it truly spoke to me. Thank you, Elaine, for sharing this at just the right moment.

Kindness
Before you know what kindness really is
you must lose things,
feel the future dissolve in a moment
like salt in a weakened broth.
What you held in your hand,
what you counted and carefully saved,
all this must go so you know
how desolate the landscape can be
between the regions of kindness…
~Naomi Shihab Nye

 

 

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Marilyn, BA (before Alzheimer's)

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