• Home
  • Helpful Resources
  • Reading List
  • Recommended Blogs
  • Marilyn’s Legacy: A World Without Alzheimer’s
  • About Me
  • Contact Me

The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Helpful Resources

Friday Potpourri

27 Friday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, Books, Caregivers, Children and ALZ, Events, Giveaways, Helpful Resources, Inspiration, Support system, USAgainstAlzheimer's, World ALZ Month

≈ Leave a comment

Tags

alzheimer's books, alzheimers awareness, caregiver, caregiver stories, usagainstalzheimers, world alzheimers month

heroJust a couple of tidbits that may be of interest…

  • In honor of her mother, World Alzheimer’s Month, and the upcoming NYC Walk to #ENDALZ, author and caregiver Lisa Hirsch will be offering her ebook, My Mom My Hero: Alzheimer’s – A Mother and Daughter’s Bittersweet Journey free of charge for 4 days, Sept 28 through Oct 2. Visit Amazon to download your copy. Thank you for your generosity Lisa!
  • Oct 3 USAgainstAlzheimer’s Conference Call – Register NOW!

From Ginny Biggar of USA2:

Please join me on Thursday, October 3 from 12-1 pm Eastern time for the next ActivistsAgainstAlzheimer’s Network conference call focused on Personal Stories. I may be familiar to some of you. For those that don’t know me, I’m the director of the Activists Network at USAgainstAlzheimer’s. I work with individuals around the country who are coping with Alzheimer’s every day.

usa2_logo_email_header

Part of my focus is listening to the stories that you and others tell about how Alzheimer’s is affecting your lives. Telling these stories is a critical way we can raise awareness about Alzheimer’s.

Why_Did_Grandma_Put

  • Last but not least, don’t forget to enter for a chance to win Max Wallack’s fantastic book, Why Did Grandma Put Her Underwear in the Refrigerator?  All you have to do is – click here – and leave a comment on the contest post. A winner will be chosen at random on Sunday evening (Sep 29).

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

The What, Why, and How of Snoezelen Therapy

26 Thursday Sep 2013

Posted by Ann Napoletan in Behaviors, Helpful Resources, Mom, Music and Art, Pharma, Ruminations, Treatments and Therapies

≈ 2 Comments

Tags

alzheimer's therapy, alzheimers, dementia, multi-sensory environments, snoezelen

Snoezelen RoomFor some reason, when I see the word Snoezelen, I think one of my favorite Sesame Street characters, the adorable Mr. Snuffleupagus. Of course, the two aren’t even remotely related, but for some reason I can’t get the image of that adorable woolly mammoth out of my head!

Why Snoezelen?

The term itself is derived from the Dutch words “snuffelen” (sniffing) and “doezelen” (dozing). Snoezelen originated in the Netherlands as a way compensate for sensory deprivation in the profoundly disabled. One study suggests that the average healthy person touches up to 300 different surfaces every 30 minutes, whereas a person with a severe disability will often touch less than ten surfaces in the same amount of time.

In the 1960’s and 1970’s, researchers found that in the absence of adequate stimulation, the brain begins to hallucinate to make up for what’s missing. Subsequent studies, including one led by Dr. Jason A. Staal, at Beth Israel Medical Center in NYC, have proven that augmenting the environment with various sensory stimuli can actually reduce agitation, depression, and apathy in patients.

How Does It Work?

Snoezelen RoomIn Snoezelen therapy, multi-sensory environments are created using visual, auditory, tactile, and aromatherapy stimulation. The concept has been successful with people of all ages, and in this safe, comfortable setting, Alzheimer’s and dementia patients have found peace and solace. The “treatment” can elicit calmness, an overall feeling of wellbeing, and a sense of security. In some cases, memories are awakened through the process.

Depending on how they are used, light, sound, and scents can evoke a variety of responses, and there is a risk of overstimulation. For this reason, when creating a “Snoezelen room,” it’s important to tailor the setting to each individual’s unique needs. Ideally, patients should be presented with a variety of options and have the freedom to choose the sensory experiences they find most pleasing.

Case Study

In a 2011 interview, Angela Green of Christian Care Centers in Mesquite, Texas, discussed the success they’ve had with Snoezelen rooms in their Alzheimer’s/Memory Care unit.

“The agitated individual that’s not able to communicate verbally [and] that has a lot of frustration from the stimulation they’re receiving will go into the Snoezelen room and find peace and to relax and enjoyment… We found that the colors and the sound and the motion and the touch that they’re able to experience, all of those things involve all of their senses and give them a complete enjoyment of their surroundings and something to interact with. It’s not uncommon to see one laughing or dancing when they’re in the environment, and even having good memory recall to the point that they can answer questions.”

Snoezelen RoomSnoezelen and Alzheimer’s

I don’t know about you, but this is something I would have jumped at the opportunity to try with my mom. The obvious question: Why aren’t we hearing more about alternative treatments like this here in the United States? We all agree that research is critical, but we also owe the best quality of life possible to those who are living with Alzheimer’s right now, don’t we??

I could rattle off the litany drugs that Mom’s neurologist prescribed during the course of her illness – everything from citalopram for depression to heavy-duty psych drugs like Risperidone, Divalproex (Depakote), Olanzapine (Zyprexa), and Lorazepam (Ativan)… and the list goes on.

The last couple of years, the psychotropic drugs rarely eased her agony and terror. I have to wonder if something like Snoezelen therapy could have helped to calm and relax her during those horrible spells. Mom is gone now, so I’ll never know – but it’s certainly something other families should have the option of considering…

For more information on Snoezelen and Multi-Sensory Environments, consider visiting these sites:

  • American Association of Multi-Sensory Environments
  • International Snoezelen Association
  • Stepping Stones
  • WorldWideSnoezelen.com

Photo credit: WorldWideSnoezelen.com

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

World Alzheimer’s Month: Free Streaming of Critically Acclaimed Documentary

11 Wednesday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, Behaviors, Films, Helpful Resources, Mom, Ruminations, World ALZ Month

≈ 4 Comments

xposter-smallIn recognition of World Alzheimer’s Month, Independent Lens|PBS will offer free streaming of the documentary You’re Looking at Me Like I Live Here and I Don’t from 9/15 through 9/25!

Told exclusively from the perspective of Lee Gorewitz, a woman living with Alzheimer’s, all of the filming took place in an Alzheimer’s care unit. The film originally aired on PBS’ Independent Lens series and has received rave reviews from the Alzheimer’s community as well as film critics far and wide.

This riveting film grabbed my attention immediately and held it through the final scene. When it ended I felt sad — not because of the subject matter but because I wanted to spend more time with this unique and endearing woman with whom I’d fallen in love. I missed her, so I turned around and watched the entire movie again. – Marie Marley, Huffington Post

I must say that after reading just a bit about Mrs. Gorewitz, I am very anxious to see the documentary. Described as a charismatic, “exceptional and resilient soul… who often shakes a tail feather long after the music has stopped… and who will not let us forget her, even as she struggles to remember herself,” I can’t help but think how much that sounds like my mom!

The following synopsis was taken from the film’s website:

In Danville, California, Lee Gorewitz wanders on a soul-searching odyssey through her Alzheimer’s & Dementia care unit. Confined by the limits of her physical boundaries, she scavenges for reminders of her life in the outside world. Yet her search is for more than a word, or a memory, or a familiar face. It is a quest for understanding.

A total immersion into the fragmented day-to-day experience of mental illness, You’re Looking at Me Like I Live Here and I Don’t is the first documentary filmed exclusively in an Alzheimer’s & Dementia care unit, and the first told from the perspective of someone suffering from Alzheimer’s disease. The film reveals Lee’s penetrating ruminations and charismatic vitality, challenging our preconceptions of illness and aging. Here is the journey of a woman who will not let us forget her – even as she struggles to remember herself.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...
← Older posts
Newer posts →
© Copyright 2025
All Rights Reserved
The Long and Winding Road

Marilyn, BA (before Alzheimer's)

Contributor

Contributor

Recent Posts

  • The Latest Alzheimer’s Research Developments
  • National Caregivers’ Day: February 21, 2025
  • June 7, 2021: A Historic Day
  • UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!
  • Happy 84th Birthday, Mom.

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 443 other subscribers

Archives

Blog Directory & Business Pages at OnToplist.com

Blog Stats

  • 142,592 hits

Meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com
stats for wordpress

Categories

Popular Posts

  • About Me
  • Thank you!
  • A Special Bond
  • Monday ... on Caregivers
  • Telling the Story
  • Hiding In the Canned Goods Aisle...and Other Stuff
  • Walking a mile in his shoes...
  • CGSN: Focus on YOU!
  • Look for me on VoiceQuilt!
  • Caregiving: Imperfections, Weaknesses, Acceptance, and Forgiveness

Recent Comments

  • Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s | The Long and Winding Road… (alzjourney.com) | Ann Campanella on Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s
  • Betty Trimble on Film Review: Angel’s Perch
  • Carol on Caregiver PTSD: Fact or Fiction?
  • (3) Ritamae Reichardt on When Caring Takes Courage: A MUST HAVE Caregiving Guide
  • Mary Jo George on June 7, 2021: A Historic Day

Pages

  • 2013-2014 News Archive
  • Helpful Resources
  • Latest News & Events
  • Postmaster General Letter – Alzheimer’s Semipostal
  • R E S I S T Resources
  • Reading List
  • Recommended Blogs
  • About Me
  • Contact Me
Coming Soon!
Marilyn's Legacy: A World Without Alzheimer's, Inc.
Stay tuned!!

Blog at WordPress.com.

  • Subscribe Subscribed
    • The Long and Winding Road...
    • Join 443 other subscribers
    • Already have a WordPress.com account? Log in now.
    • The Long and Winding Road...
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d