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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Helpful Resources

This Week in Alzheimer’s

05 Saturday Nov 2016

Posted by Ann Napoletan in Advocacy and Awareness, Call to Action, Caregivers, Face of Alzheimer's, Galaxy A List, Helpful Resources, Inspiration, November-National ALZ Awareness Month, Research, Round Up, Support system, Treatments and Therapies, USAgainstAlzheimer's

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a list, alzheimers, alzheimers news, alzheimers research, alzheimers support, alzheimers week in review

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New Alzheimer’s/Cognitive Impairment Benefit from CMS!

On November 3, 2016, it was announced that the Centers for Medicare & Medicaid Services (CMS) has finalized its decision to pay for cognitive and functional assessments and care planning for patients with Alzheimer’s disease and other cognitive impairments. This milestone marks the first time people living with Alzheimer’s disease will have paid access to care planning with a medical professional. Read more here.

Does Deep Brain Stimulation Boost Memory in Alzheimer’s Patients?

Researchers at Toronto Western Hospital and Johns Hopkins University are hopeful about a clinical trial involving deep brain stimulation. One might think of this as a pacemaker for the brain; electrodes are implanted in the brain and deliver a steady stream of electrical impulses to the part of the brain that regulates memory. The study is currently moving into its third and final phase.  Read more here.

Greg O’Brien Honored

Journalist, author, and advocate Greg O’Brien received the inaugural Bea Lerner Valor Award at September’s third annual UsAgainstAlzheimer’s Out of the Shadows Dinner. The award is given to a person living with dementia and is named to honor the mother of UsAgainstAlzheimer’s co-founder, Trish Vradenburg. Read more here. 

National Alzheimer’s Awareness Month

The White House issued a Presidential Proclamation declaring November 2016 as National Alzheimer’ Awareness Month. Read more here. 

Alzheimer’s Talks: Dr. Rudy Tanzi

The transcript and recording from October’s Alzheimer’s Talks call have been posted. The call featured leading researcher, Dr. Rudy Tanzi, who spoke in depth about his new work on a microbial hypothesis of the causes of Alzheimer’s disease.   You can find the transcript and recording here. 

Easy Actions You Can Take to Make a Difference!

  • Take 30 seconds to provide hope to others touched by Alzheimer’s!! Introducing Adversity 2 Advocacy’s Project Hope Exchange! Learn more here.
  • Join the A List 1000 today! It just takes 5 minutes, and gives you an opportunity to help shape the future. Learn more here.
  • Participate in the Health-eBrain Study to help advance the cognitive health of caregivers. Learn more here.
  • Participate in a caregiver study being conducted at Xavier University. Learn more here. 

Looking for Support?

Join the UsAgainstAlzheimer’s Facebook Support Community! We have members all over the world who possess a vast amount of experience and who understand what you’re going through. Although each of our stories is unique, we’re bonded by a common experience – Alzheimer’s (or some other form of dementia). The Community provides a safe place to share fears, frustrations, and the moments of joy we all hunger for.  Find us here.

Book Giveaway

Last but not least, click here to enter for a chance to win a copy of Chicken Soup for the Soul: Living With Alzheimer’s and Other Dementias. In the book, you’ll find 101 stories that will inspire, validate, and comfort you. Winner will be drawn Friday, November 11.

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Alzheimer’s Book Giveaway!!

02 Wednesday Nov 2016

Posted by Ann Napoletan in Books, Caregivers, Giveaways, Helpful Resources, Inspiration, November-National ALZ Awareness Month

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alzheimer's books, alzheimers, alzheimers book giveaway, alzheimers caregivers, national alzheimers awareness month, national family caregivers month

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The contest is closed and our randomly chosen winners are Sandra Collard and Jeffrey Brown (check your inboxes for an email from me!). Thank you to all who entered! 

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Did you know that November is National Family Caregivers Month as well as National Alzheimer’s Awareness Month?

With that in mind, I’ll be giving away two signed copies of Chicken Soup for the Soul: Living With Alzheimer’s and Other Dementias. I’m blessed to have been a contributor to this compilation of 101 stories that will touch your heart and provide inspiration even during the most challenging moments.

To enter the contest, all you need to do is leave a comment on this post. I’ll draw two winners on Friday, November 11. Contest is open to anyone in the contiguous United States.

Good luck!!

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teleCalm Helps Put Alzheimer’s Caregivers in Control

30 Sunday Oct 2016

Posted by Ann Napoletan in Caregivers, Helpful Resources, Mom, Products, Safety, Scam, Technology, The Early Years, Tips

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alzheimers, alzheimers and dementia safety, alzheimers products, dementia, preventing scams, technology for alzheimers caregivers

scamIf you’re caring for someone with Alzheimer’s or another form of dementia, you know the phone can be a real source of consternation. Something as benign as a telephone can not only cause frustration, but also some rather challenging – and expensive – predicaments.

While still living alone and in the early stages of cognitive decline, my mom wrote checks to every single organization that called asking for a donation. It didn’t matter whether she had heard of the charity or not; if they asked for money, she gave. Ultimately, she fell victim to a scam that resulted in thousands of dollars in “donations” to a bogus food pantry/homeless shelter. Unbeknownst to me, it all began with a phone call from a woman who was preying on the elderly.

Solving a Problem

I recently had an opportunity to speak with Tavis Schriefer, Co-Founder and President of teleCalm. His company has introduced a service to help caregivers create a safety net for the person they’re caring for. The idea was born of Schriefer’s own experience caring for his mother when she was in the early stages of dementia.

To help understand the problem they were trying to solve, founders of teleCalm interviewed hundreds of caregivers during the design process. After all, who knows these challenges better than those on the front lines?  The feedback led to a comprehensive, flexible, and easy-to-use service offered at an affordable price point.

teleCalm puts caregivers in control by allowing them to monitor and filter calls. The system considers every caller a “stranger” until they are added as a contact. Rules are then set up to determine how to handle calls. Not only can loved ones be protected from incoming telemarketer or scam calls, but outbound calls to infomercial ads and shopping networks are easily prevented.

Incoming calls from “strangers” can be directed straight to voice mail. Call history and voice mail messages are then accessible to the caregiver through the teleCalm app (available for iPhone and Android). The caregiver can also receive a text message each time a new voice mail comes in.

List of Features

boxToday, teleCalm offers the following capabilities:

  • Block undesired inbound or outbound calls.
  • See who loved one is speaking with in real time via the live dashboard.
  • Set up rules and messages for “quiet hours.”
  • Review call history.
  • Retrieve voicemails from your own (caregiver) cell phone.
  • Set alerts and reminders.

Developers are currently working on a feature that will notify the caregiver via text message if a call was placed to or received from a specific contact. For example, the caregiver might want to be alerted immediately if a call is placed to the doctor or a particular family member. Schriefer told me he expects the company to continue rolling out additional functionality as it becomes available.

The Technology and Cost

phoneThe technology behind the service is a common one referred to as voice over IP (VoIP), and requires only an internet connection and small VoIP box (provided by teleCalm). The unit is about the size of a hockey puck, and set up is as simple as plugging in the power, ethernet cable, and phone.

teleCalm can be used with your loved one’s existing phone and they can keep their existing phone number. Service includes unlimited minutes, free long distance, and free international calling.

At the time of our interview, teleCalm was priced at $49.99/month with an initial $50 activation fee. Keep in mind that in many cases, this can replace existing phone service.

Does this sound like something that could protect your loved one and bring you some peace of mind? I can’t help but think it would have been useful for us when my mom was living independently. I would be curious to hear your thoughts. Feel free to leave a comment if you have an opinion you’d like to share! 

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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