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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Helpful Resources

Staying Organized – App #2

20 Wednesday Mar 2013

Posted by Ann Napoletan in Blogging, Caregivers.com, Helpful Resources, Products, Technology, Tips

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Need some help getting (and staying) organized? Interested in what’s out there as far as caregiver apps? This week, I’m reviewing MobiCare – check it out.

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Tips for the Caregiver in Your Life

11 Monday Mar 2013

Posted by Ann Napoletan in A Place for Mom, Blogging, Caregivers, Caregivers.com, Finding a Facility, Grieving, Guilt and Regrets, Helpful Resources, Products, Safety, Technology, The Early Years, Tips

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I saw this post today at A Place For Mom, and felt it was worth sharing. One of the hardest  parts of this journey is knowing when it’s time for assisted living or some other care arrangement. With that comes finding the right fit, having some very difficult discussions, and dealing with your own guilt and grief. The article provides some excellent information and useful tips; if you feel your family is headed down this path, it’s worth a read:  How To Recognize Signs It’s Time for Assisted Living.
CareZone

Also my Caregivers post today might be of help to you or the caregiver in your life. I’m going to be reviewing several caregiver smartphone apps in the coming weeks, and today I’m taking a look at CareZone. It’s a great little tool that’s definitely worth a look. I can say without question, it would have made my life easier all the way back to when Mom was still living independently. Check it out and share with anyone who might benefit: Getting Organized: There’s an App for That!

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An Afternoon of Remembrance

10 Sunday Mar 2013

Posted by Ann Napoletan in Grieving, Helpful Resources, HomeReach, Hospice, Inspiration, Kobacker House, Life After Caregiving, Mom, Support system

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In Remembrance...
This afternoon, HomeReach Hospice and Kobacker House held a non-denominational memorial service for the families of their patients who died between October and January. I’d had it on my calendar for over a month, having RSVP’d immediately when I received the invitation.

Well, beginning Friday, as I thought about my weekend plans, I felt as though I was forgetting something, but couldn’t think what it was. My daughter and I went to brunch this morning, and on the way back, she needed to stop and pick something up at her apartment. By chance, we passed North Broadway United Methodist Church and it must have been between services as there were a lot of people outside.

It hit me immediately – that was the location of the memorial service! I had completely forgotten about it and must have missed it. Once I got my wits about me, I remembered it was actually scheduled for 3pm, so I was fine. I firmly believe that whole experience was a God wink… there was a reason we had to stop at Jess’ place, which took us on a completely different route than we would have otherwise taken. Mama was sending a reminder from Heaven… “Aren’t you forgetting something??”

The service was just beautiful, and the church was almost full. The officiating chaplain, from HomeReach, was incredible. Every single word she said resonated with me. I couldn’t believe it – it was as though she was talking directly to me. I cried through the entire service, as did many around me. It was so heartfelt and honest and simple, yet with a depth greater than I can describe.

At the end of the service, they lit candles and read the names of the loved ones of all families in attendance. When your special person’s name was read, you stood and someone brought you a flower. It was done so tastefully; the next name was never read before the previous person/family had received their flower and been reseated. In essence, this created an individualized tribute for each person rather than just someone standing at the lectern reading a list of names.

I continue to be awed by the times I think I have it together – like today – and then find out how completely wrong I was. I had barely gotten inside the church before my eyes welled up and I felt that all too familiar lump in my throat. Tears continued steadily throughout the hour, and I realized at one point that I couldn’t watch other families receive their flowers because the look of grief on their faces was too much to bear.

It was a bit surreal to look around that large sanctuary, realizing that every person there was just like me – they had recently lost someone they loved, and they are trying to figure out life without that person that was such an integral part of them. None of us knew each other, yet we shared so much. Difficult to describe, but definitely like nothing I had ever experienced.

As I said, everything the chaplain talked about touched me, but a few things stood out. One of those things was the fact that the people we love are the fabric of our lives, and when they die, we find ourselves struggling to find our own identity. We don’t know who we are in this new life that doesn’t include them. That’s exactly how I feel, and hearing her say it out loud made me realize it’s not just me… it’s normal to feel this way.

We must remember that those of us left behind are an important part of our loved one’s legacy. It’s probably not by chance that a loss like this causes us to reexamine our priorities and our lives as a whole. What we’re doing. What we should be doing. What’s truly important, and what isn’t. The fact that life is short and we need to make the most of it. This experience has taught us things about ourselves that we never knew; those are the things we are meant to share with the world as we move forward.

Thank you, HomeReach, for all that you do on a daily basis, and for taking the time to continue caring for us well beyond the point in time when we leave the comforting compassion of Kobacker House.

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Marilyn, BA (before Alzheimer's)

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