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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Inspiration

The Face of Alzheimer’s

24 Tuesday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, Children and ALZ, Early Onset, Face of Alzheimer's, Inspiration

≈ 3 Comments

Tags

alzheimers story, alzheimers video, dementia, early onset alzheimers, eoad, younger onset alzheimers

In this lovely 7-minute long video, Ashley Bornancin shares her journey through Alzheimer’s. Imagine being a carefree 17-year-old, full of joy and excitement about what life holds in store for you.

And then, your mother is diagnosed with Alzheimer’s. In an instant, your world is turned upside down.

Watch and listen as Ashley tells her poignant story, and please share with others – let’s help the world understand that the face of Alzheimer’s isn’t always what we might expect.

Thank you, Ashley, for so beautifully and courageously sharing your story…

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Alzheimer’s Blues

16 Monday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Events, Humor, Inspiration

≈ 3 Comments

Tags

alzheimer's blues, alzheimers, caregiver stories, dementia

alz-bluesAlzheimer’s Blues. Sounds almost like a song title, doesn’t it? Well, guess what…. not only is it the title of a song, but also of a one-woman show conceived by and starring Erica Herd.

The stage show, co-written by Herd and L.E. Swenson, premiered at the Stage Left Studio in NYC this past summer under the title The Year of Dead Cats. Several rewrites and additional music prompted the new title, which carries with it a touch of both humor and irony.

From Acting to Alzheimer’s

young-katherine-lindAlzheimer’s Blues centers on the story of Herd’s mother, Katherine Lind, who was a sought after New York actress in the 1950s, ‘60s, and ‘70s. Lind had it all – talent, beauty, and rave reviews for her off-Broadway work which included The Diary of Anne Frank, The Seven Year Itch, and I Am A Camera. She was also a touring member of the national and regional casts of shows such as A Little Night Music, Hamlet, The Glass Menagerie, King of Hearts, and A Midsummer Night’s Dream.

And then came schizophrenia, followed by Alzheimer’s in 2010… Yes, Alzheimer’s – that damn dreaded disease that doesn’t care about your background, status, or calling. Stunning New York actress or small town janitor – dementia and Alzheimer’s level the playing field like few other things in life.

Laughter is the Best Medicine

The show addresses many of the challenges Alzheimer’s and dementia caregivers face on a daily basis. In a May 2013 interview for nytheater.com, Herd explained that she chose humor as a path toward healing.

erica“I take a comedic spin on it, try to find a way to heal the pain with laughter. It started as a blog on Open Salon while I was in the throes of dealing with mom’s illness in 2011. And with the help of my director and co-author, we transformed it into a play,” says the actor/playwright.

In the video below, she performs the title song, Alzheimer’s Blues. As I listened to the lyrics – the poignant story of a daughter and her mother – paired with music by blues legend T-Bone Walker, I wasn’t sure whether I should laugh or cry…

Stay tuned for more about Erica and this fascinating one-woman show. Do you have a specific question for her? If so, post a comment below and I’ll incorporate your inquiry into our upcoming Q&A.

For tickets, click here.

– Photos courtesy of Alzheimer’s Blues / Erica Herd

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Nine Months Later: We Walk to #ENDALZ

15 Sunday Sep 2013

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn Central Ohio, Inspiration, Life After Caregiving, Mom, Ruminations, Walk to End ALZ

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Image-1Today marks nine months since Mom left this earth… The stack of cards and notes received upon her passing still sits in the same place it was in December. I keep thinking I’ll sit and read all of them one evening, but the time just hasn’t felt right.

Milestones

We’ve started to think and talk about what we’ll do to mark her birthday next month and then how we’ll spend December 15th. They should be days filled with love and laughter; that’s what Mom would have wanted after all…

I miss her so, so much… Fall was always her favorite time of year, and when we went to pick apples last weekend, I couldn’t help but remember the many times we’d visited that same orchard together over the years. Joyful memories to be sure.4M team.2013.c

Walking to #ENDALZ

Yesterday was our local Walk to End Alzheimer’s and what an event it was. A perfect crisp, cool autumn morning welcomed us to Huntington Park; the sun shone brightly as our ALZ angels smiled down on our new venue. The Central Ohio event has grown by leaps and bounds since 2009 when Marilyn’s Mighty Memory Makers were born. In five years, our little team has raised over $13,390 for Alzheimer’s research and programs, but there is much work yet to be done!

Here are a few photos from our special day in Columbus, Ohio…

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Arriving at the ballpark, bright and early… a beautiful day.

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Opening ceremonies…

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Jennifer Sega, the most AWESOME event organizer in the world! With hubby Bob, team photographer extraordinaire.

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Look at that glorious blue sky…

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Honor, remember, care, fight, – and love.

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The event brought out men, women, children…. and birds…. of all ages!

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Entering the field, nearing the finish.

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And we’ll keep doing it until there’s no more need.

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Marilyn, BA (before Alzheimer's)

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