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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Kobacker House

To Tweet Or Not To Tweet…

31 Wednesday Jul 2013

Posted by Ann Napoletan in Grieving, Kobacker House, Saying Goodbye, Support system

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This week, NPR host Scott Simon tweeted from his mother’s bedside as she reached the end of her journey on Earth. And of course, people chimed in with their two cents about whether or not sharing such intimate moments with the world was appropriate. 

My mom has been gone for 7 1/2 months now, but I remember those last days like they were yesterday…

A particularly special and treasured memory … one of my dearest friends and I painting Mom’s nails as she lay quietly sleeping. By then, we knew it wouldn’t be long – the end was near. The wonderful staff at Kobacker House dressed her in a pretty fresh nightgown each morning and she needed pretty pink nails to match…

mom handsI’d give anything to hold her hand again. Such a simple thing, yet so often we forget it’s those simple things that matter when nothing else does. We lose sight of what is truly important as we go about our busy lives. But holding someone’s hand – that’s important.

“When she asked for my help last night, we locked eyes. She calmed down.
A look of love that surpasses understanding.” ~Scott Simon

There has been considerable debate over whether Scott’s tweets have been too personal… some people don’t feel this type of sharing was appropriate. But, I understand Scott’s need to express himself this way. As I sat with my mom in those final days, I found connecting with people via my blog and FB very comforting. Sharing those moments – it was cathartic in a way. It’s impossible to explain; I guess I needed for people to understand what we were going through. I needed to know people cared and that I wasn’t alone.

Everyone handles things differently. I heard a psychologist weigh in on the topic last night, saying that this form of expression is understandable and can be extremely therapeutic for some people. Just as we don’t criticize those who prefer to grieve in silence, neither should we criticize those who find some solace in connecting with others – through whatever means they choose.

May Scott’s mother rest in peace, and may he find peace as well…

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Daughters Mourning Mothers: A Targeted Workshop

30 Tuesday Apr 2013

Posted by Ann Napoletan in Grieving, HomeReach, Kobacker House, Life After Caregiving, Mom, Ruminations, Support system

≈ 1 Comment

Tonight, I attended the Daughters Mourning Mothers workshop presented by HomeReach Hospice. As an aside, I dropped out of the Grief Recovery program a couple of weeks ago, and that falls under the heading: Another Story For Another Day. Suffice to say I think Grief Recovery is a very good program, but it wasn’t for me – at least not right now.

The workshop tonight was exactly what I was hoping it would be. Small group of women who are grieving the loss of their mothers. Very focused, very specific. This is just what I needed. I felt like they “got me,” and I “got them.”

Our stories were different, yet very much the same. The complexity and depth of the mother/daughter relationship is unique; there’s no other relationship quite like it. I believe that until you’ve lost your mother, you can’t understand this special kind of grief.

Make no mistake, I’m not suggesting that my grief is any deeper or more painful than that of a person experiencing a different kind of loss. But, the key word is different. I don’t think anyone can understand what it’s like to lose your mother like another woman who has lost her mother. I would assume the same applies for loss of child, spouse, et cetera.

In any case, I left Kobacker House tonight wishing that this was an ongoing group rather than just a one-off workshop. Unfortunately, due to lack of resources, they don’t offer a support group specifically for daughters who have lost mothers, but apparently it’s a popular request. Perhaps someday.

I need to spend some time processing everything I took in this evening, but look for more in an upcoming Caregivers piece.

 

 

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An Afternoon of Remembrance

10 Sunday Mar 2013

Posted by Ann Napoletan in Grieving, Helpful Resources, HomeReach, Hospice, Inspiration, Kobacker House, Life After Caregiving, Mom, Support system

≈ 4 Comments

In Remembrance...
This afternoon, HomeReach Hospice and Kobacker House held a non-denominational memorial service for the families of their patients who died between October and January. I’d had it on my calendar for over a month, having RSVP’d immediately when I received the invitation.

Well, beginning Friday, as I thought about my weekend plans, I felt as though I was forgetting something, but couldn’t think what it was. My daughter and I went to brunch this morning, and on the way back, she needed to stop and pick something up at her apartment. By chance, we passed North Broadway United Methodist Church and it must have been between services as there were a lot of people outside.

It hit me immediately – that was the location of the memorial service! I had completely forgotten about it and must have missed it. Once I got my wits about me, I remembered it was actually scheduled for 3pm, so I was fine. I firmly believe that whole experience was a God wink… there was a reason we had to stop at Jess’ place, which took us on a completely different route than we would have otherwise taken. Mama was sending a reminder from Heaven… “Aren’t you forgetting something??”

The service was just beautiful, and the church was almost full. The officiating chaplain, from HomeReach, was incredible. Every single word she said resonated with me. I couldn’t believe it – it was as though she was talking directly to me. I cried through the entire service, as did many around me. It was so heartfelt and honest and simple, yet with a depth greater than I can describe.

At the end of the service, they lit candles and read the names of the loved ones of all families in attendance. When your special person’s name was read, you stood and someone brought you a flower. It was done so tastefully; the next name was never read before the previous person/family had received their flower and been reseated. In essence, this created an individualized tribute for each person rather than just someone standing at the lectern reading a list of names.

I continue to be awed by the times I think I have it together – like today – and then find out how completely wrong I was. I had barely gotten inside the church before my eyes welled up and I felt that all too familiar lump in my throat. Tears continued steadily throughout the hour, and I realized at one point that I couldn’t watch other families receive their flowers because the look of grief on their faces was too much to bear.

It was a bit surreal to look around that large sanctuary, realizing that every person there was just like me – they had recently lost someone they loved, and they are trying to figure out life without that person that was such an integral part of them. None of us knew each other, yet we shared so much. Difficult to describe, but definitely like nothing I had ever experienced.

As I said, everything the chaplain talked about touched me, but a few things stood out. One of those things was the fact that the people we love are the fabric of our lives, and when they die, we find ourselves struggling to find our own identity. We don’t know who we are in this new life that doesn’t include them. That’s exactly how I feel, and hearing her say it out loud made me realize it’s not just me… it’s normal to feel this way.

We must remember that those of us left behind are an important part of our loved one’s legacy. It’s probably not by chance that a loss like this causes us to reexamine our priorities and our lives as a whole. What we’re doing. What we should be doing. What’s truly important, and what isn’t. The fact that life is short and we need to make the most of it. This experience has taught us things about ourselves that we never knew; those are the things we are meant to share with the world as we move forward.

Thank you, HomeReach, for all that you do on a daily basis, and for taking the time to continue caring for us well beyond the point in time when we leave the comforting compassion of Kobacker House.

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Marilyn, BA (before Alzheimer's)

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