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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Life After Caregiving

Love Is… A Warm Butterscotch Cookie

05 Wednesday Feb 2014

Posted by Ann Napoletan in Grieving, Inspiration, Life After Caregiving, Mom, Ruminations, Smiles

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Tags

alzheimers, childhood memories, grief, grieving

How do you define love?

I think we all have our own definitions, and the word means different things in different situations and at different times in our lives…

As the days have passed since my mom’s death – it’s been almost 14 months – I’ve been all over the map with regard to emotions. Memories are brought to life by so many things: an old photo, a beloved tradition, running into one of her old friends, or a card found tucked away in the drawer.

And food.

Food is such a powerful trigger for me. I don’t remember a ton of details about my childhood like some people seem to. Some of the most vivid memories I do have, though, are of my mom in the kitchen. She loved to cook and bake, and boy was she good at it!

In our world, food was comfort and joy, but most of all food was love. The most prominent ingredient in every single one of mom’s kitchen creations was L-O-V-E.

I have three boxes crammed full with her recipes – folded up bits of paper, index cards, typewritten, handwritten, scribbled in her own secret shorthand, backs of envelopes, magazine and newspaper clippings. I didn’t realize all those years ago just how much of a treasure they would be someday.

I’ve been thinking about Mom’s butterscotch chip cookies for a week now. It’s been at least 20 years (maybe 30) since I’ve had them, so tonight I finally pulled out the boxes and searched until I found the recipe.

It’s one of the most “well loved” of all the cards – so much so that it’s barely decipherable. Her uniquely flawless handwriting, faded ink on a plain card yellowed with age and splattered with misdirected ingredients of years gone by.

The cookies came out of the oven piping hot and beautifully golden brown. They tasted just like I remembered…  like L-O-V-E…

Miss you, Mom.

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From Lonna Whiting: ‘D’ Word x 100

11 Saturday Jan 2014

Posted by Ann Napoletan in Caregivers, Expectations, Guilt and Regrets, Life After Caregiving, Reblog, Ruminations, Signs and Symptoms, The Early Years

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Tags

alzheimers, caregiving, dementia

This post from Lonna Whiting is one of the most poignant pieces I’ve seen. So many of these are things I’ve felt or experienced – plenty I’m not proud of. But, it’s raw, unfiltered reality. It’s confirmation that only someone who has experienced this disease can truly understand. Incredibly sad, yet oddly comforting. In time, if we’re lucky, we reach a point of acceptance; we love and enjoy the time we have left with our loved ones despite the fact they aren’t who they once were. But at the end of the day, we still HATE this disease more than words can say… Thank you for your courage and honesty, Lonna.

Visit Lonna’s blog at http://lonnawhiting.wordpress.com

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Believing in Angels

15 Sunday Dec 2013

Posted by Ann Napoletan in Grieving, Holidays, Life After Caregiving, Mom, Ruminations, Saying Goodbye

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Tags

alzheimers, dementia, grief, holidays

December 14, 2013.  11:24pm.  A few minutes ago, I finished decorating the Christmas tree, turned out the lights, and sat down to enjoy it. The tears flowed easily as I gazed at all of the memories on that tree. As I was hanging ornaments, it struck me – I didn’t realize how many angels I had, but this year they seem to have taken on new meaning.

A year ago on this day, I knew we were nearing the end. Tonight I sit here looking at pictures, and it doesn’t seem possible that she’s even gone – let alone gone an entire year.

It was just after noon on December 15, 2012, that she went home.

What a dichotomy… the sorrow of missing her so much that it physically hurts, yet gratitude in knowing she’s no longer suffering. 

The thing about life, I guess, is that our faith is constantly tested. We are reminded by virtue of the word itself, faith – we’re asked to trust in the illogical and the uncertain. It’s one of the most difficult things of all, isn’t it? Believing what you can’t see or touch… trusting that a Higher Power has control of everything, even when we don’t…

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Marilyn, BA (before Alzheimer's)

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