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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Mom

Wednesday on Caregivers…

10 Wednesday Oct 2012

Posted by Ann Napoletan in Blogging, Caregivers, Family, Mom

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Caregiving is chock full of challenges, and sometimes the weight feels even heaver if you’re an only child. It’s important to remember, though, that having a wide range of feelings about the situation is completely normal.  AND, you really don’t have to walk this path by yourself.

Read my piece today at Caregivers to see that Only doesn’t have to mean Alone.

Mom had another good day. I received pictures of her eating a sandwich at lunchtime, and eating dinner by herself (with a fork) this evening. It looks like we’ll definitely have something extra special celebrate on her birthday in a couple of days!

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Triumphant Tuesday

09 Tuesday Oct 2012

Posted by Ann Napoletan in Inspiration, Mom

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Well, today (((knock on wood))) was another good one. I ended up working late, so I didn’t get to Eason House, but received several messages and photos throughout the day. Emily visited and said mom was in very good spirits! Like the rest of us, I think she is blown away by these latest changes.

In summary, great mood, bright eyes, no clapping, hitting, or yelling. Didn’t eat as much as yesterday, but she did eat.

It’s so funny, I have a friend in the UK whose mother is the same age as mine, and her progression with the disease has been eerily similar. Seemed like when one would move to the next stage, the other was never far behind.

Well, when Mom stopped eating and took such a dive, Sue wrote and said she didn’t want to give me false hope, but wanted to share what had happened with her mum several months ago. She had also stopped eating and drinking, was sleeping for hours on end, and otherwise either unresponsive or screaming. Like me, Sue thought it was the end and even told her mother it was okay to go (I had done the same at one point).

She said this lasted for weeks rather than months, and then all of a sudden… her mum started responding, talking, and laughing again. I didn’t dare hope the same would be the case for Mom. It sounded absolutely impossible. But, here we are about five weeks out, and it certainly sounds like once again, these two ladies are almost in sync. Two complete strangers with over 4,000 miles and an ocean between them, walking a nearly identical path… Two daughters sometimes just hanging on by a thread, but still being amazed every day by the most important women in their lives.

I am so grateful. Every day is a gift. ♥

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Let’s not upset the apple cart…

08 Monday Oct 2012

Posted by Ann Napoletan in Blogging, Caregivers.com, Finding a Facility, Long Term Care Insurance, Mom, Pharma, Smiles

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So I returned Friday’s call to the neurologist’s office today. He wanted to bump up her Buspar, and I decided against it. Right now, I see no reason to change anything. Yes, she has had some horrible nights, but since we know there will never be a perfect balance, I have to go with the lesser of two evils. I’d rather a few nights than 24×7. Not taking that risk. We’ll re-evaluate next Monday.

That being said, I got a text from Susie tonight that blew my mind. Mom was on her second plate of meatloaf, potatoes, and carrots. Yes, REAL FOOD. I just told someone today that I doubted she would ever eat “normally” again, and whad’ya know – she proved me wrong! We’ll see if it’s a trend or a fluke, but I am stunned! Who would have ever thought…

The pictures below were texted to me at various times throughout the day. Enjoy!

(And, check out today’s piece on Caregivers – some tips on the dreaded search for long-term care. Major key to success: trust your gut.)

20121008-205800.jpg

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Marilyn, BA (before Alzheimer's)

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