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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Signs and Symptoms

Weekly Roundup

27 Saturday Jul 2013

Posted by Ann Napoletan in A Place for Mom, Advocacy and Awareness, Alzheimers.net, Blogging, Care Options, Caregivers, Caregivers.com, Events, Expectations, Family, Films, Finding a Facility, Grieving, Helpful Resources, Saying Goodbye, Signs and Symptoms, Tips

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animated_cowboy-cartoon

I honestly can’t believe it’s Friday again, and even more incredible is the fact that August 1st is just a few days away! Sometimes, I wish life would slow down just a bit.

Promotion for our Columbus screening of Angel’s Perch continues, and with 10 days left before our deadline, we’ve got 21 tickets left to go. I’m really hoping they’ll be reserved by the middle of next week… fingers are crossed. If you’re in the area and would like to join us for what promises to be a very special evening, you can reserve tickets here.

What’s Happening on ALZ.net?

Alzheimers.net is currently undergoing some exciting changes, so there was no post this week. However, stay tuned for an interesting piece on Alzheimer’s and turmeric coming soon. I learned a lot doing the research for this one and joke that now I’ll be drinking turmeric tea daily and following it with a coconut oil chaser…  (((smile)))

This Week on Caregivers

Did you know there are various conditions that can cause excessive confusion in the elderly? Not only can they exacerbate symptoms in dementia patients, but they can also wreak havoc on the mental status of individuals with no previous diagnosis. Learn about several of these issues and find out what signs to be on the lookout for in 3 Causes of Sudden Confusion in the Elderly.

Mothers Day_022On Thursday, I discussed the challenges of parenting your parent, providing tips on navigating the often rough and uncertain waters that come along with life’s ultimate role reversal. It’s not easy, but the sooner you begin to face the issues head on, the better. Preparation is so important. Read more in Parenting Your Parent: 6 Things I’ve Lived and Learned.

VoiceQuilt

Earlier this week, VoiceQuilt posted Memorial Ideas: Breaking Away From Tradition, a piece I recently wrote about creating a memorial befitting the person being honored. It’s a very personal decision, and different for every family, but the underlying point is, there is no “right” or “wrong.” ♥

Other Tidbits of Interest

I see so many articles each week, but today I want to share a few of the best from the past 7 days. There’s just such a wealth of wonderful information out there.

Martha Stettinius (Inside Dementia) featured a guest post by Ram Meyyappan, an expert on Social Security benefits. This piece does a great job of demystifying some of the benefits and eligibility requirements for dementia patients. Take a look at Dementia and Social Security Disability Benefits.

ghpThis week, NPR featured an enlightening and very relevant segment on The Green House Project, and it’s well worth listening to the clip. If you aren’t familiar with the concept, I guarantee after this 5-minute introduction, you’ll be sold on the unique alternative to traditional assisted living and skilled nursing.

Last but not least, Jeff Anderson from A Place for Mom did an informative article on how to check for assisted living violations. In 10 States that Make it Easy to Check Assisted Living Violations, he tells us what states do the best job of making sure this data is appropriately detailed, easily accessible, and updated frequently. If there’s one thing I’ve learned, it’s the importance of thorough due diligence; never choose a facility based simply on a tour of the building. Appearances are not necessarily what they seem and it’s critically important to research audit histories, make surprise visits, and speak to family members of current and, if possible, past, residents.

That’s about it for now – I hope you and yours have a lovely weekend and beautiful last few days of July. Until next time, carpe diem…

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Maria Shriver Looks at Early Diagnosis

17 Wednesday Jul 2013

Posted by Ann Napoletan in Advance Directives, Advocacy and Awareness, ALZ Assn - National, Early Onset, Genetic Testing, Research, Signs and Symptoms

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Source: http://www.today.com/health/life-more-precious-now-why-early-detection-alzheimers-important-6C10647845

Linda Carroll
TODAY contributor

The memory problems started when Nancy Albertson hit her late 50s. Some may have blamed stress or poor sleep for difficulties finding words, but Albertson’s mother had died from Alzheimer’s disease and she knew it the early warning signs.

An articulate woman who taught English as a second language, Albertson wasn’t used to searching for a word and coming up empty.

“I wanted to say something or write something and I thought, I can’t get that word,” she told NBC News special anchor Maria Shriver, who also lost a parent to the disease. “I’m not sure what that word is that I want to use.”

Her family doctor initially assumed there must be some other cause for Albertson’s memory loss. “I think it’s something that you don’t think of in people under the age of 60 very often,” Dr. Gordon Golden, a primary care physician told TODAY.

But then Albertson’s husband, Rick, added some more detail.

“Her husband Rick was very concerned that this was not the same Nancy he had known and loved for years,” Golden said.

Golden referred Nancy to a neurologist who eventually diagnosed her with early onset Alzheimer’s disease.

And just like that Nancy Albertson became one of the faces of a disease that is becoming epidemic. More than 5 million people in the United States have Alzheimer’s and that number is expected to nearly triple by the year 2050, according to the Alzheimer’s Association.

About 4 percent of that 5 million, or about 200,000 people, have early onset disease, just like Nancy Albertson, according to the Alzheimer’s Association.

Because Alzheimer’s is so much less common among people under the age of 65, doctors often assume that there might be another explanation for symptoms.

But there are signs that should ring the alarm, including:

  • Memory loss that disrupts daily life
  • Challenges in planning or solving problems
  • Confusion with time or place
  • Difficult with language or reading
  • Changes in mood and personality

New guidelines being presented at the Alzheimer’s Association International Conference in Boston this week may help doctors more easily diagnose the disease. Other researchers at the meeting are reporting scanning studies that allow doctors to diagnose the disease earlier – even before a patient has any observable signs. The hope is that a treatment will be found that will halt the disease that attacks the brain some 20 years before it causes symptoms.

While there is no cure for Alzheimer’s right now, there are medications that help ameliorate its symptoms. Those medications have helped Nancy Albertson live a more normal life – for now at least.

While some people might shy away from getting an early diagnosis when there isn’t a cure, NBC chief medical editor Dr. Nancy Snyderman says it’s extremely important to find out.

“I can’t underscore enough the need to get family business in order and knowing that you are legally and financially OK,” she said. “And having that conversation.”

The other reason to find out, Snyderman said, is to have an opportunity to participate in clinical trials testing out new medicines.

Once Nancy Albertson knew she had Alzheimer’s, she struggled trying to decide how to tell her four siblings about her diagnosis.

In the end she decided to write them a letter, in which she explained, “one thing I am fortunate for is that I am able to get more help than mom did.”

She also told them that they shouldn’t worry about her. “I feel much closer to God. And between God, my husband, and the medicine, I think my life is better now – because life is more precious now.”

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Dementia Care: Dos and Don’ts – An Interview

09 Saturday Feb 2013

Posted by Ann Napoletan in A Place for Mom, Behaviors, Blogging, Caregivers, Helpful Resources, Mom, Ruminations, Signs and Symptoms, The Early Years

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Earlier this week, Sarah Stevenson from A Place For Mom interviewed me for this piece providing some tips on how to deal with difficult behaviors, Dementia Care Dos & Don’ts: Dealing with Dementia Behavior Problems.

It was an interesting experience for me, as I looked back on years old blog posts for some reminders on how things evolved over time. I suppose with everything changing so quickly, you tend to live your life in reactionary mode most of the time. You deal with the issues at hand and then tuck them away just in time to address whatever comes next. You really do forget the details…

In an odd way, I’m really glad I chronicled so much of it through blogging. Some people may think that’s strange – why would you want to go back and relive it? I can’t quite find the words to explain, but somehow there is a unique comfort in having the experiences – good, bad, and ugly – documented…

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Marilyn, BA (before Alzheimer's)

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