• Home
  • Helpful Resources
  • Reading List
  • Recommended Blogs
  • Marilyn’s Legacy: A World Without Alzheimer’s
  • About Me
  • Contact Me

The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Support system

An Afternoon of Remembrance

10 Sunday Mar 2013

Posted by Ann Napoletan in Grieving, Helpful Resources, HomeReach, Hospice, Inspiration, Kobacker House, Life After Caregiving, Mom, Support system

≈ 4 Comments

In Remembrance...
This afternoon, HomeReach Hospice and Kobacker House held a non-denominational memorial service for the families of their patients who died between October and January. I’d had it on my calendar for over a month, having RSVP’d immediately when I received the invitation.

Well, beginning Friday, as I thought about my weekend plans, I felt as though I was forgetting something, but couldn’t think what it was. My daughter and I went to brunch this morning, and on the way back, she needed to stop and pick something up at her apartment. By chance, we passed North Broadway United Methodist Church and it must have been between services as there were a lot of people outside.

It hit me immediately – that was the location of the memorial service! I had completely forgotten about it and must have missed it. Once I got my wits about me, I remembered it was actually scheduled for 3pm, so I was fine. I firmly believe that whole experience was a God wink… there was a reason we had to stop at Jess’ place, which took us on a completely different route than we would have otherwise taken. Mama was sending a reminder from Heaven… “Aren’t you forgetting something??”

The service was just beautiful, and the church was almost full. The officiating chaplain, from HomeReach, was incredible. Every single word she said resonated with me. I couldn’t believe it – it was as though she was talking directly to me. I cried through the entire service, as did many around me. It was so heartfelt and honest and simple, yet with a depth greater than I can describe.

At the end of the service, they lit candles and read the names of the loved ones of all families in attendance. When your special person’s name was read, you stood and someone brought you a flower. It was done so tastefully; the next name was never read before the previous person/family had received their flower and been reseated. In essence, this created an individualized tribute for each person rather than just someone standing at the lectern reading a list of names.

I continue to be awed by the times I think I have it together – like today – and then find out how completely wrong I was. I had barely gotten inside the church before my eyes welled up and I felt that all too familiar lump in my throat. Tears continued steadily throughout the hour, and I realized at one point that I couldn’t watch other families receive their flowers because the look of grief on their faces was too much to bear.

It was a bit surreal to look around that large sanctuary, realizing that every person there was just like me – they had recently lost someone they loved, and they are trying to figure out life without that person that was such an integral part of them. None of us knew each other, yet we shared so much. Difficult to describe, but definitely like nothing I had ever experienced.

As I said, everything the chaplain talked about touched me, but a few things stood out. One of those things was the fact that the people we love are the fabric of our lives, and when they die, we find ourselves struggling to find our own identity. We don’t know who we are in this new life that doesn’t include them. That’s exactly how I feel, and hearing her say it out loud made me realize it’s not just me… it’s normal to feel this way.

We must remember that those of us left behind are an important part of our loved one’s legacy. It’s probably not by chance that a loss like this causes us to reexamine our priorities and our lives as a whole. What we’re doing. What we should be doing. What’s truly important, and what isn’t. The fact that life is short and we need to make the most of it. This experience has taught us things about ourselves that we never knew; those are the things we are meant to share with the world as we move forward.

Thank you, HomeReach, for all that you do on a daily basis, and for taking the time to continue caring for us well beyond the point in time when we leave the comforting compassion of Kobacker House.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

The Early Years…. Coping

25 Monday Feb 2013

Posted by Ann Napoletan in ALZ Assn - National, ALZ Assn Central Ohio, Blogging, Caregivers, Caregivers.com, Expectations, Helpful Resources, Mom, Support system, The Early Years

≈ Leave a comment

The earliest years of the journey through Alzheimer’s are filled with fear, denial, frustration, and anger…  They are painful, difficult years… so many questions, so few answers. It’s important to know that you aren’t alone. The wide array of emotions you’re experiencing at this time are completely normal, and now is the time to engage available resources…  for more, check out today’s piece on Caregivers:  The Early Years: How to Cope

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

An Unexpected Therapy Session

15 Friday Feb 2013

Posted by Ann Napoletan in Grieving, Guilt and Regrets, Life After Caregiving, Mom, Ruminations, Support system

≈ 4 Comments

I’ve been having sinus issues and coughing – off and on – since this past fall. Just when I think it’s going away, it pops back up, so I (finally) gave in and went to the doc today. Hopefully a course of antibiotics will clear things up once and for all.

I love my doc, and this visit was more emotional than I expected. You see, she was my mother’s physician first. She was the one I contacted when I finally came to the realization that something more than “she’s just getting older” was going on… I remember making an appointment, then emailing her ahead of time since I knew I wouldn’t be able to give her the full story in front of Mom without upsetting her terribly.

She was the first to administer the MMSE, which, of course, confirmed our fears, and together we watched the score decline with each future exam. She was the one I went to for guidance when I knew Mom just couldn’t drive anymore. She was the one we cried with, more than once. Oh, we were in that office so often for awhile, it was like a second home.

After some time passed, I knew Doc could understand; she could truly relate because her father-in-law was having the same issues. I was surprised to find out today that he passed away just 10 days before my mom, on December 5. As we shared stories, there were some striking similarities.

She let me cry on her shoulder (literally) as she assured me everything I’m feeling right now is perfectly “normal” and that it takes time. A long time. And that while everyone else is just going on with life, it’s natural for me to be screaming internally, “Wait a damn second, NOTHING is normal… Life.is.not.back.to.normal!! I lost my ROCK, people. How dare you just act like life is normal!”

She reminded me that I really DID do the best I could each step of the way and that back in the early days when I lost my patience, it was because I was human. She talked about how her FIL drove her nuts at times, emphasizing the point that we’re all human. And she shared some of their funny stories, which in turn reminded me that even up until those last several weeks, we did have GOOD times. And joy. And laughter. And love. Always love.

It was a good talk. I went in for a sinus infection and ended up getting 45 minutes of therapy, which I apparently needed as much as the antibiotic… Thanks Doc.

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...
← Older posts
Newer posts →
© Copyright 2025
All Rights Reserved
The Long and Winding Road

Marilyn, BA (before Alzheimer's)

Contributor

Contributor

Recent Posts

  • The Latest Alzheimer’s Research Developments
  • National Caregivers’ Day: February 21, 2025
  • June 7, 2021: A Historic Day
  • UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!
  • Happy 84th Birthday, Mom.

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 443 other subscribers

Archives

Blog Directory & Business Pages at OnToplist.com

Blog Stats

  • 144,745 hits

Meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com
stats for wordpress

Categories

Popular Posts

  • About Me
  • Thank you!
  • A Special Bond
  • Monday ... on Caregivers
  • Telling the Story
  • Hiding In the Canned Goods Aisle...and Other Stuff
  • Walking a mile in his shoes...
  • CGSN: Focus on YOU!
  • Look for me on VoiceQuilt!
  • Caregiving: Imperfections, Weaknesses, Acceptance, and Forgiveness

Recent Comments

  • Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s | The Long and Winding Road… (alzjourney.com) | Ann Campanella on Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s
  • Betty Trimble on Film Review: Angel’s Perch
  • Carol on Caregiver PTSD: Fact or Fiction?
  • (3) Ritamae Reichardt on When Caring Takes Courage: A MUST HAVE Caregiving Guide
  • Mary Jo George on June 7, 2021: A Historic Day

Pages

  • 2013-2014 News Archive
  • Helpful Resources
  • Latest News & Events
  • Postmaster General Letter – Alzheimer’s Semipostal
  • R E S I S T Resources
  • Reading List
  • Recommended Blogs
  • About Me
  • Contact Me
Coming Soon!
Marilyn's Legacy: A World Without Alzheimer's, Inc.
Stay tuned!!

Blog at WordPress.com.

  • Subscribe Subscribed
    • The Long and Winding Road...
    • Join 443 other subscribers
    • Already have a WordPress.com account? Log in now.
    • The Long and Winding Road...
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d