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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Tips

Upcoming – Central Ohio Event!!!

14 Monday Jan 2013

Posted by Ann Napoletan in ALZ Assn Central Ohio, Caregivers, Events, Helpful Resources, Tips

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Here is a fantastic educational opportunity for Central Ohioans – The Central Ohio Alzheimer’s Association’s Monthly “First Fridays Club” begins in February.

It’s your chance to hear physicians and other subject matter experts discuss topics of interest to caregivers. Our friends at the Central Ohio ALZ Association even provide respite care during the luncheon and lecture!

February’s luncheon is a caregiver panel discussion.

“Planning, Coping with Stress and the Importance of Staying Connected”

Friday, February 1st, 2013
Time: 11:30-1:00PM

Location: The Worthington United Methodist Church, 600 N. High Street, Worthington, OH, 43085

The cost for the lunch and lecture is $5.00. The cost for professionals requiring CEU’s is $10.00

*Bring your loved one living with dementia to our respite program called “The Club.” The Club meets during the education lecture to provide an opportunity for socialization, activities and entertainment for individuals living with memory loss.*

Please call to register for the lecture and The Club

For more information or to register please contact The Alzheimer’s Association at 1-800-272-3900.

___

In March, Dr. Donald Freidenberg (my mom’s neurologist) will talk about differentiating between dementia and normal aging. He’s a fascinating speaker.

All of the info you need is included below; registration is required and there is a $5 fee for each month’s event ($10 for professionals needing CEU credits). Please share this with anyone who might find it useful. Each month offers a new topic.

first_fridays

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This ‘n’ that over at Caregivers…and a little update…

11 Friday Jan 2013

Posted by Ann Napoletan in A Place for Mom, Blogging, Caregivers.com, Grieving, Helpful Resources, Mom, Ruminations, Saying Goodbye, Tips

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AngelsExcellent piece by Jeff Anderson at A Place For Mom; great tips to help caregivers start the year off right:  5 Caregiver Resolutions: A To-Do List for the New Year

And, an update on my feelings about hospice following our experience in December:   Hospice: Why I’m a Believer

As for me, I spent about 48 hours in bed nursing major sinus issues and a bad cough, and am finally back amongst the living. Spent this afternoon making just a tiny dent in the mess that I call home. It’s going to feel so good to get things back in order, and hopefully organizing my things will translate to making me feel like my life is a bit more organized as well.

There are things I haven’t touched – mom’s clothes are still sitting in the dresser drawers awaiting my attention. Same goes for boxes brought back from Eason House and stuff from the memorial this past weekend. I haven’t done a thing about probate yet, aside from checking the website for information on how to get started and finding myself frustrated, annoyed, and in no mood to deal with any of it.

I’m slowly catching up on ‘thank you’ notes, and I put away all of the Christmas stuff today; you may recall that two of my very favorite elves surprised me by decorating while we were at Kobacker House. I took my time taking everything down. Lots of Christmas memories in all of those treasured ornaments. So many emotions bubbling up.

I thought I had been mourning the loss of my mom year in and year out as her disease progressed, but now I’m beginning to wonder. I feel like I’m starting from square one. With the Celebration of Life complete, there is some finality around the whole thing and it’s time for life to move on. I’m finding that I’m infinitely sad – not just for the loss of Mom on December 15th, but for the loss that started all the way back in 2004. For all the memories we didn’t get to make and all the time we didn’t have together before ALZ reared its ugly head. Now the magnitude of my loss is hitting home…

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…A deep breath, and a step toward closure…

06 Sunday Jan 2013

Posted by Ann Napoletan in Blogging, Caregivers.com, End of Life Planning, Grieving, Mom, Saying Goodbye, Smiles, Support system, Tips

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Yesterday was an exhausting, amazing, wonderful, tearful, blur of a day. I wrote a bit about it for Caregivers, specifically, “Goodbye” Doesn’t Have To Be Conventional.

Once I catch my breath, I’ll write some more thoughts about a Celebration of Life that came together just perfectly – with a great deal of help from my incredible daughter and some fantastic friends. I wouldn’t change a single thing about it, except perhaps to have been able to spend more time with the people who I don’t often see.

This is one of the images that will be etched in my mind forever…

reuben - ascension

Photo Credit: Reuben Gainey

 

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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