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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: USAgainstAlzheimer’s

Demand Action Now: Help End Alzheimer’s

15 Thursday Jan 2015

Posted by Ann Napoletan in Advocacy and Awareness, USAgainstAlzheimer's, Washington

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alzheimers, Alzheimers advocacy, dementia, state of the union

Please take a couple of minutes to lend your support; USAgainstAlzheimer’s makes it easy! Visit http://salsa3.salsalabs.com/dia/track.jsp?v=2&c=J6sJlT6rpSFpIBC3FnFwnzRTy45204Z7

*** From the Desk of George Vradenburg ***

In just five days, President Obama will deliver the State of the Union address. Washington and the nation will pause to hear the president’s vision, and we need him to publicly commit to stopping Alzheimer’s. The nation already has adopted a national plan that sets as goal one preventing and treating Alzheimer’s by 2025. But this is now just 10 years away and much work remains.

President Obama could issue a “moon shot” for ending Alzheimer’s, like John F. Kennedy did for a moon landing in 1961. But it won’t happen absent a relentless push by those impacted by this dreaded disease.

Help us plant a flag for ending Alzheimer’s by adding your voice now. Join with our USAgainstAlzheimer’s networks and thousands of activists nationwide to encourage the president to address Alzheimer’s during his speech.

Click here to take a moment to ask President Obama to set a marker for ending Alzheimer’s in his State of the Union on Tuesday.

The annual global cost of treating Alzheimer’s in 2010 was an estimated $604 billion –one percent of global GDP. Without new treatments, the number of Alzheimer’s cases and its associated costs are predicted to quadruple in the next 40 years.

That’s not even mentioning the personal toll it takes on families. More than 5 million Americans suffer from this cruel, unforgiving disease, and their loved ones suffer along with them.

We can’t wait for action. If we are going to stop this terrifying trajectory, we need to get bold. We need leadership.

President Obama has a chance to cast a vision for ending Alzheimer’s during his speech. We need to let him know how important it is that he does.

Add your name: Call on President Obama to address the threat of Alzheimer’s in his State of the Union address.

There’s a path to a cure, but it demands commitment from everyone. If we get it, we’ll beat this disease.

Thank you,

George

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#PetsAgainstAlzheimers

22 Monday Dec 2014

Posted by Ann Napoletan in Advocacy and Awareness, USAgainstAlzheimer's

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#petsagainstalzheimers, alzheimers, alzheimers awareness, dementia

Our friends at USAgainstAlzheimer’s are asking our pets to get involved in the fight to stop Alzheimer’s! If your 4-legged friend would like to help raise awareness, just tweet or post a photo of him/her using the hashtag #PetsAgainstAlzheimers … Help take a BITE out of this brutal disease!

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Giving Thanks…

30 Sunday Nov 2014

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, God Winks, Holidays, Hospice, Inspiration, Life After Caregiving, Mom, Quotes, Ruminations, USAgainstAlzheimer's

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Tags

alzheimers, Alzheimers advocacy, caregivers, caregiving, dementia, gratitude, thanksgiving

IMG_3830-beattieThe arrival of the holidays brings a flood of competing emotions for me. Exactly two years ago today, we brought hospice on board. It was a time of both despair and relief; things were changing moment to moment, and we had reached a whole new level of helplessness and desperation.

No matter how hard we fought, it seemed as though Alzheimer’s might be winning. Engaging compassionate hospice professionals brought a measure of comfort to a very uncomfortable situation – comfort in knowing we were surrounded by angels who were not only knowledgable, but also caring and empathetic. They were “all in” from the moment they arrived, and I felt like we were the most important family in the world to them.

Two years ago, we still held onto hope that with the intensive support, loving care, and indisputable expertise of hospice, mom might rebound one more time. However, that wasn’t meant to be. So, Thanksgiving remains a powerful, heart wrenching reminder of those final few weeks…

But this is also a time to reflect on the many blessings that have enriched my life over the past year. First and foremost, of course, are my family, faith, friends, and health. Without these, none of the rest would be possible.

I’m incredibly grateful for the opportunity to touch and be touched by so many caregivers and advocates through this blog, my Facebook page, the USAgainstAlzheimer’s Support Group, and Chicken Soup for the Soul: Living with Alzheimer’s and Other Dementias.

I’m grateful to have attended the WomenAgainstAlzheimer’s Out of the Shadows Summit this fall in Washington, DC, to be a founding member of ClergyAgainstAlzheimer’s and a contributor to the group’s first book, Seasons of Caring (December 2014). I’m thankful to have been a member of the steering committee for our local Walk to End Alzheimer’s and for the friends and supporters that generously contributed to our team, Marilyn’s Mighty Memory Makers.

I’ve crossed paths with some of the most passionate, inspiring people on the planet and been presented with countless opportunities to make a difference over the past year. I took a leap of faith, leaving the company I’d been with for almost 27 years, to join an organization with a strong mission I believe in. Five months later, I can say with confidence it was the right move and I’m finally where I was meant to be. For those things, I’m grateful.

I’m thankful I have been able to keep my mom’s memory alive, and that her spirit shines brightly on the world every single day. I’m thankful she’s still teaching me new lessons, inspiring me, and that she continues to touch thousands of lives. And I’m thankful to feel her presence on a regular basis.

To say I’m blessed is an understatement, but oh how I miss my mama.

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The Long and Winding Road

Marilyn, BA (before Alzheimer's)

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