• Home
  • Helpful Resources
  • Reading List
  • Recommended Blogs
  • Marilyn’s Legacy: A World Without Alzheimer’s
  • About Me
  • Contact Me

The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: USAgainstAlzheimer’s

Mad as Hell: Creating a Movement

28 Sunday Sep 2014

Posted by Ann Napoletan in Advocacy and Awareness, Facts & Figures, USAgainstAlzheimer's, Washington, World ALZ Month

≈ Leave a comment

Tags

alzheimers, alzheimers research, dementia, usagainstalzheimers, womenagainstalzheimers, world alzheimers month

PLEASE contact your representatives… please. If you aren’t sure who or how, click here to find your House representative and here to find your Senate representatives.

We MUST let Washington know that we’re mad as hell and need their support NOW.

When I was in DC at the WomenAgainstAlzheimer’s Out of the Shadows Summit earlier in the month, we heard research leaders Reisa Sperling (Brigham and Women’s, Harvard), Kate Zhong (Cleveland Clinic), and others, talking about the great work being done in labs across the country. Hope is there, we just need funding to match that of the other leading causes of death: cancer, heart disease, and HIV/AIDS.

Don’t think your voice doesn’t count. You + your neighbor + his brother + his co-worker + her neighbor + so on and so on and so on. It’s time to make this a movement, just like the movement to cure cancer and HIV/AIDS. Time is of the essence.

What do we want them to do?

  • Increase funding for the National Institute on Aging by at least $100 million from the fiscal year 2014 level.
  • Recognize the immense contributions of family caregivers by enacting the Social Security Caregiver Credit Act.
  • Honor Legendary Coach and Alzheimer’s champion Pat Summitt with the Congressional Gold Medal.

200 vs 465

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

The Reality of Younger Onset Dementia

16 Saturday Aug 2014

Posted by Ann Napoletan in Advocacy and Awareness, Early Onset, USAgainstAlzheimer's

≈ 2 Comments

Tags

alzheimers, alzheimers awareness, dementia, early onset alzheimers, younger onset dementia

One of the most critical messages in this fight:  Dementia is not just a disease of the elderly. 

Consider Jim Garner, Michael Ellenbogen, Norrms McNamara, Chris Roberts, and Rick Phelps to name just a few. 

Help spread the word…. help to educate the world. 

early

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...

Could This Biomarker Study Be a Game Changer?

09 Friday May 2014

Posted by Ann Napoletan in Advocacy and Awareness, Events, Helpful Resources, Research, USAgainstAlzheimer's

≈ Leave a comment

Tags

alzheimers, alzheimers blood test, alzheimers research, alzheimers study, dementia

Important information and an invitation from George Vradenburg, co-founder and Chairman of USAgainstAlzheimer’s. Take advantage of this unique opportunity to hear directly from a key researcher!

 

USA2


Researchers have discovered a first-of-its-kind blood test for Alzheimer’s disease that can predict – with 90 percent accuracy – if a healthy person will develop this cruel disease within three years.

Dr. Howard Federoff, the Executive Vice President for Health Sciences and Executive Dean of Georgetown University School of Medicine, led the team and will brief us in our next Alzheimer’s Talks conversation on May 16 on why his biomarker study is a potential game-changer.

The possibility of catching the disease before a patient ever shows symptoms brings us even closer to finding effective means of prevention. A blood test will enable us to identify people who will get Alzheimer’s disease and give them a drug to prevent symptoms. That’s why Dr. Federoff’s work is so essential to moving toward our 2020 goal.

I hope you can join me to be briefed by Dr. Federoff about his preliminary – but potentially consequential – findings and what they could mean to our mission to stop this disease. Click the button below to register for our call on Friday, May 16, from 1 p.m. – 2 p.m. ET.

Yes, I will attendSorry, I can't make it (but send me a recap afterwards)

This call is made possible by the generous support of the Zickler Family Foundation. I hope to talk with you soon, and thanks for being a part of our mission to end Alzheimer’s by 2020.

___

* Please note that everyone who registers will be called on Friday, May 16 around 1:00 p.m. ETand will be connected automatically to the free teleconference.

 

 

Share this:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Tumblr (Opens in new window) Tumblr
  • Email a link to a friend (Opens in new window) Email
Like Loading...
← Older posts
Newer posts →
© Copyright 2025
All Rights Reserved
The Long and Winding Road

Marilyn, BA (before Alzheimer's)

Contributor

Contributor

Recent Posts

  • The Latest Alzheimer’s Research Developments
  • National Caregivers’ Day: February 21, 2025
  • June 7, 2021: A Historic Day
  • UsAgainstAlzheimer’s National Alzheimer’s Summit: Don’t Miss It!
  • Happy 84th Birthday, Mom.

Enter your email address to follow this blog and receive notifications of new posts by email.

Join 443 other subscribers

Archives

Blog Directory & Business Pages at OnToplist.com

Blog Stats

  • 144,633 hits

Meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com
stats for wordpress

Categories

Popular Posts

  • About Me
  • Thank you!
  • A Special Bond
  • Monday ... on Caregivers
  • Telling the Story
  • Hiding In the Canned Goods Aisle...and Other Stuff
  • Walking a mile in his shoes...
  • CGSN: Focus on YOU!
  • Look for me on VoiceQuilt!
  • Caregiving: Imperfections, Weaknesses, Acceptance, and Forgiveness

Recent Comments

  • Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s | The Long and Winding Road… (alzjourney.com) | Ann Campanella on Motherhood: Lost and Found, a Memoir of a Mother’s Alzheimer’s
  • Betty Trimble on Film Review: Angel’s Perch
  • Carol on Caregiver PTSD: Fact or Fiction?
  • (3) Ritamae Reichardt on When Caring Takes Courage: A MUST HAVE Caregiving Guide
  • Mary Jo George on June 7, 2021: A Historic Day

Pages

  • 2013-2014 News Archive
  • Helpful Resources
  • Latest News & Events
  • Postmaster General Letter – Alzheimer’s Semipostal
  • R E S I S T Resources
  • Reading List
  • Recommended Blogs
  • About Me
  • Contact Me
Coming Soon!
Marilyn's Legacy: A World Without Alzheimer's, Inc.
Stay tuned!!

Blog at WordPress.com.

  • Subscribe Subscribed
    • The Long and Winding Road...
    • Join 443 other subscribers
    • Already have a WordPress.com account? Log in now.
    • The Long and Winding Road...
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d