06 Wednesday Mar 2013
A couple of months ago, I signed up to receive daily emails from GriefShare – some are more pertinent than others, but now and again there’s one that really hits home. That was the case with today’s message. I wrote about it last night on Caregivers in hopes that it might touch someone else in need. What Happens When Grieving Begins Before Loss?
05 Tuesday Mar 2013
Posted in Books, Caregivers, Grieving, Helpful Resources, Inspiration, Life After Caregiving, Quotes, Ruminations
After seeing my recent piece on using writing as therapy, one of my Caregivers readers recommended the book Thinking Anew: Harnessing the Power of Belief by Eugene F. Moynihan Jr. & Richard F. Quis.
I checked it out on Goodreads and was sold at “Writing can be an antibiotic for distorted thinking. It clears the mind, provides access to your subconscious and soothes the soul.” I’ll be picking up a copy for myself very soon!
04 Monday Mar 2013
Posted in Helpful Resources, Mom, Pharma, Research
Should my loved one be taking one of the few Alzheimer’s medications currently approved by the FDA? It’s something that we have all wondered during the course of this journey. What, if anything, are the drugs promising? Is there really a benefit? Is there a down side? At what point should he/she be taken off the drugs?
These are excellent questions, and many are addressed by Carole Larkin, an expert in Alzheimer’s care, in her recent piece on Alzheimer’s Speaks. Click HERE to read more about:
According to Larkin, it is currently estimated that the ALZ medications are helping approximately 30% of people who are taking them, while 70% are seeing no benefit. The bottom line is that, like so many aspects of this disease, it’s a guessing game. A gamble.
In our case, getting the meds right was a constant struggle. My mom took Aricept for approximately six years, until she went on hospice in November. Her neurologist didn’t feel strongly one way or the other, and I had heard of cases where patients who stopped taking it experienced a rapid decline. My inclination was to keep her on it; I wasn’t willing to take the chance only to find out I was wrong. Right decision? I have no idea.
That’s the kicker about this disease – no one knows the answers; all we can do is educate ourselves as much as possible so we can make informed decisions. At the end of the day, we do the best we can based on what we know and what our gut tells us… Not terribly scientific, but until research turns up some more conclusive evidence one way or another, we often find ourselves wedged soundly between a rock and a hard place.
The Long and Winding Road... 