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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: alzheimers caregivers

Presidential Candidates Carly Fiorina & Ben Carson on Alzheimer’s

17 Saturday Oct 2015

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Face of Alzheimer's, Washington

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alzheimers, alzheimers caregivers, alzheimers funding, alzheimers research, ben carson, brenda bouchard, candidates on alzheimers, carly fiorina, dementia, honoring ken

New Hampshire resident, Brenda Bouchard, has a full plate and then some! She cares for her husband who is living with younger onset Alzheimer’s, as well as her 89-year-old-mother who also has Alzheimer’s.

All of this, yet she’s managing to find time to attend town halls in her state – and she isn’t just there to observe! To date, Brenda has been called on to ask 11 candidates about their plans regarding the Alzheimer’s crisis.

If you’ve missed the previous posts, click here to see all of them. Brenda has asked her question of Clinton, Kasich, Santorum, Bush, Sanders, Trump, Paul, Walker, and Rubio. In this post, you’ll see and hear her address Carly Fiorina and Ben Carson.

Take a look and draw your own conclusions.


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World Alzheimer’s Day: How Can You Make a Difference?

17 Thursday Sep 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Caregivers, Fundraising, Helpful Resources, Life After Caregiving, Prevention, Quotes, Ruminations, Tips, USAgainstAlzheimer's, Volunteering, Walk to End ALZ, Washington, World ALZ Month

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alzheimers, Alzheimers advocacy, alzheimers awareness, alzheimers caregivers, alzheimers prevention, alzheimers volunteerism, dementia, world alzheimers day

According to the World Alzheimer Report 2015: The Global Impact of Dementia, published by Alzheimer’s Disease International (ADI), there are 46 million people living with dementia globally. Without a medical breakthrough, that number will rise to 131.5 million by 2050. Worldwide, in 2015 alone, there will be 9.9 million new cases of dementia; that’s a new case every THREE seconds.

World Alzheimer’s Day is September 21, 2015, and it’s a great time to pause and think about what you can do to make a difference. You don’t have to be a brilliant scientist or a millionaire to make a significant impact.

Here are a few ideas to consider. If you have others, please share them by posting a comment below!

Take Care of a Caregiver

  • Deliver lunch, dinner, or a plate of homemade cookies. Send a restaurant gift card, or put together a group of folks willing to take turns cooking a couple of meals each week.
  • Mow the lawn, rake leaves, or offer to help with another household task.
  • Put together a spa basket! Think bath salts, lotion, candles, lavender essential oil, comfy slippers, et cetera.
  • Offer to hold down the fort for a couple of hours to give a caregiver a much-needed break. Perhaps they’d like to go shopping, see a movie, read a book, or just relax!
  • Simply send a card to say you care and offer your support.

Volunteer Your Time and Talent

  • Spend time visiting with memory care residents.
  • Volunteer at an Alzheimer’s Association event, join a committee, help with a special project, or offer to make phone calls.
  • Form a volunteer group to make fidget quilts or comfy blankets for people living with Alzheimer’s.
  • Volunteer to provide respite care during a caregiver support group meeting.
  • Become a support group leader.

Donate or Fundraise

  • Make a monetary donation to your favorite Alzheimer’s organization.
  • Sign up for Walk to End Alzheimer’s or The Longest Day and set a fundraising goal.
  • Donate puzzles, picture books, dolls, art supplies, or CDs to a nearby memory care unit or adult day care.
  • Sign up for AmazonSmile and designate your favorite Alzheimer’s organization as your charity.

Be an Advocate

  • Write or call your representatives in Washington and ask for their support on Alzheimer’s issues.
  • Commit to sharing an Alzheimer’s-related fact or statistic with three friends.
  • Use social media to help raise awareness.
  • Join the Alzheimer’s Prevention Registry!
  • Sign a petition.
  • Share your story!
  • Check out the Action Center at UsAgainstAlzheimer’s for more ideas!

Focus on Prevention

  • Commit to walking for 30 minutes at least 3x per week.
  • Each day, replace one unhealthy item in your diet with a healthier choice.
  • Make a monthly date to get together with friends!
  • Take the stairs instead of the elevator.

As Margaret Mead said, “Never doubt that a small group of thoughtful, committed, citizens can change the world. Indeed, it is the only thing that ever has.”

I’ve been told plenty of times that I’m wasting my energy. After all, I’m just one person can’t change the world My response to that is simple. I may not be able to change the world, but I can certainly make a positive difference – and you can too!

Here’s to World Alzheimer’s Day. May it be more than just another Monday – let’s all do a little something to further the #ENDALZ movement!

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Honoring Ken: An Alzheimer’s Short Film

06 Sunday Sep 2015

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Early Onset, Face of Alzheimer's, Films, Inspiration, Washington

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alzheimers, alzheimers advocate, alzheimers caregivers, brenda bouchard, dementia, honoring ken

Ken Bouchard, photo courtesy of Brenda Bouchard

I met Brenda Bouchard online, like so many other advocates across the country – and the world – that I’ve had the pleasure and honor of crossing paths with. This lady is something special. Her fearless determination, poise, and grace are so inspiring.

She has directly addressed the topic of Alzheimer’s with Hillary Clinton, Marco Rubio, John Kasich, Bernie Sanders, Jeb Bush, Scott Walker, Rick Santorum, Rand Paul, and Donald Trump at town hall meetings in her home state of New Hampshire. And now, she has released this incredible short film.

The film is 20 minutes long, but I ask you to please take the time to watch it. Learn about her husband Ken and his incredible life, how Alzheimer’s has affected their marriage – and their entire world, and how Brenda has stepped out of her comfort zone to become a courageous advocate.

Please watch and then share with others to help further Brenda’s mission.

You can also find Brenda on Facebook on her Honoring Ken page and on Twitter at @HonoringKen.

To see the various town hall meetings where Brenda has addressed 2016 presidential candidates, click here. 

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Marilyn, BA (before Alzheimer's)

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