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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: alzheimers research

Alzheimer’s Association International Conference – Days 1 & 2

20 Monday Jul 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Alzheimer's Association International Conference (AAIC), Pharma, Research

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AAIC, alzheimers, alzheimers association international conference, alzheimers research, dementia, lewy body dementia, parkinsons

This is a big week in the world of Alzheimer’s research. More than 4,000 scientists hailing from at least 65 countries are gathered in Washington, DC, for the 2015 Alzheimer’s Association International Conference. From Sunday until Thursday, the most brilliant minds in science, almost half from outside the United States, will collaborate in the interest of advancing Alzheimer’s research.

Hopeful News

In this NPR article, Marcia Taylor of biotech company Treventis describes a compound they are currently working on that targets both beta-amyloid and tau to prevent tangles from forming. According to Taylor, the compound works in a test tube and is now being tested in animals.

Fernando Goni of NYU describes a potential treatment that could help not only people with Alzheimer’s, but also individuals living with Parkinson’s and Lewy Body Dementia – an exciting prospect. Goni’s monoclonal antibodies work like “guided missiles to find and neutralize” tau and amyloid clumps in the brain. He says studies in mice indicate the treatment can actually reverse symptoms of the disease.

Image Source: http://www.alz.org

Finally, a potential treatment comes from NeuroPhage Pharmaceuticals. When Beka Solomon was a researcher Tel Aviv University in Israel, she accidentally discovered that a virus she was using for another purpose seemed to reverse Alzheimer’s in mice. Additional research yielded a treatment that appears to work for both Alzheimer’s and Parkinson’s. NeuroPhage plans enroll participants in Phase 1 trails in 2016

News Releases

We will see news releases from the Alzheimer’s Association throughout the conference, including these from the first two days of meetings.

Researchers Report New Ways To Predict The Development Of Alzheimer’s Disease

Promising New Treatments For Alzheimer’s Target Multiple Disease-Related Proteins, May Have Benefits For Several Brain Diseases

Childhood School Performance And Type 1 Diabetes Identified As Risk Factors For Alzheimer’s Disease, Dementia

New Analysis Shows More Than 28 Million Baby Boomers Will Develop Alzheimer’s Disease; Will Consume Nearly 25% Of Medicare Spending

Lifetime Acheivement Awards Presented To Four Leading Researchers At Alzheimer’s Association International Conference®

Metlife Foundation And GHR Foundation Honored At Alzheimer’s Association International Conference®

Two Leading Researchers Receive 2015 MetLife Foundation Awards for Medical Research at Alzheimer’s Association International Conference®

Stay tuned for more as the week unfolds.

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Alzheimer’s: When Will the Government Put Their Money Where Their Mouth Is?

03 Tuesday Feb 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Face of Alzheimer's, Facts & Figures, Helpful Resources, Life After Caregiving, NAPA, Research, Ruminations, USAgainstAlzheimer's, Washington

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alzheimers, Alzheimers advocacy, alzheimers funding, alzheimers research, dementia

 


In recent days, staunch supporters including Senators Susan Collins (ME), Edward Markey (MA), Amy Klobuchar (MN), and Jerry Moran (KS) have encouraged President Obama to include an increase for Alzheimer’s research in his FY 2016 budget. After all, what’s a “plan” to end Alzheimer’s by 2025 without the funding necessary to do so?

And the Verdict is in

Disappointment ensued as the Obama Administration released the proposed budget yesterday, and Alzheimer’s was overlooked. In a press release, George Vradenburg, co-founder of USAgainstAlzheimer’s said, “If we as a nation do not make Alzheimer’s research a top priority, we simply cannot meet our national goal of preventing and treating Alzheimer’s by 2025.”

What will it take to convince our government that unless we do something to stop it, Alzheimer’s will be the public health crisis of our lifetime? Perhaps the powers-that-be need to listen carefully to Michael Auslin’s story, or that of Karen Garner, whose husband was diagnosed before his 50th birthday. What about Rebecca Emily Darling, who was just 26-years-old when her mother was diagnosed?

Proof in the Numbers

  • Alzheimer’s is the only cause of death among the top 10 in America that cannot be prevented, cured, or even slowed. More than 500,000 people die annually from Alzheimer’s.
  • Deaths from Alzheimer’s increased 68 percent between 2000 and 2010, while deaths from other major diseases decreased.
  • More than 5 million Americans are living with some form of dementia. If we remain on the current trajectory, that number will rise to 16 million by 2050.
  • Every 67 seconds, someone in the U.S. develops Alzheimer’s. By 2050, it will be every 33 seconds.
  • In 2014, the direct costs to American society of caring for those with Alzheimer’s totaled over $200 billion, including $150 billion in costs to Medicare and Medicaid.
  • Unless something is done to stop it, Alzheimer’s will cost an estimated $1.2 trillion (in today’s dollars) in 2050. Costs to Medicare and Medicaid will increase nearly 500 percent.

For more information, check out the Alzheimer’s Association’s 2014 Facts and Figures report.

Take Action

Consider this: Alzheimer’s research spending currently stands at less than 1% of the cost of care.

Please write or call your Senate and Congressional representatives. Ask them to support the fight to #ENDALZ.

If not now, when?

It’s been said there are two kinds of people: those who have been personally touched by Alzheimer’s and those who will be.

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Alzheimer’s Talks: Dr. Rudy Tanzi

16 Sunday Nov 2014

Posted by Ann Napoletan in Advocacy and Awareness, Events, Helpful Resources, Research, USAgainstAlzheimer's

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alzheimers, alzheimers in a dish, alzheimers research, dementia, rudy tanzi, usagainstalzheimers

If you missed the October Alzheimer’s Talks call, I hope you’ll take time to listen to the recording. We don’t often have the opportunity to hear directly from a leading researcher, but thanks to our friends at USAgainstAlzheimer’s, we were able to spend 60 minutes with Dr. Rudy Tanzi last month. The discussion was fascinating, informative, and full of reasons to be hopeful.

Take a listen as Dr. Tanzi talks about his team’s recent “Alzheimer’s in a Dish” discovery and how it will allow researchers to screen potential drugs 10 times faster and cheaper than ever before. During the second half of the call, he takes questions from listeners – again, giving us rare insight into the latest research.

To listen, click here –> A Major Breakthrough: Alzheimer’s in a Dish – Dr. Rudy Tanzi, Alzheimer’s Talks – October 2014

Also, be sure to register for the November Alzheimer’s Talks discussion with Olivia Mastry of ACT on Alzheimer’s. Ms. Mastry will share Minnesota’s very successful model for creating dementia friendly communities.

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