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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: alzheimers

Alzheimer’s Book Giveaway!!

02 Wednesday Nov 2016

Posted by Ann Napoletan in Books, Caregivers, Giveaways, Helpful Resources, Inspiration, November-National ALZ Awareness Month

≈ 10 Comments

Tags

alzheimer's books, alzheimers, alzheimers book giveaway, alzheimers caregivers, national alzheimers awareness month, national family caregivers month

book-cover-sm

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The contest is closed and our randomly chosen winners are Sandra Collard and Jeffrey Brown (check your inboxes for an email from me!). Thank you to all who entered! 

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Did you know that November is National Family Caregivers Month as well as National Alzheimer’s Awareness Month?

With that in mind, I’ll be giving away two signed copies of Chicken Soup for the Soul: Living With Alzheimer’s and Other Dementias. I’m blessed to have been a contributor to this compilation of 101 stories that will touch your heart and provide inspiration even during the most challenging moments.

To enter the contest, all you need to do is leave a comment on this post. I’ll draw two winners on Friday, November 11. Contest is open to anyone in the contiguous United States.

Good luck!!

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teleCalm Helps Put Alzheimer’s Caregivers in Control

30 Sunday Oct 2016

Posted by Ann Napoletan in Caregivers, Helpful Resources, Mom, Products, Safety, Scam, Technology, The Early Years, Tips

≈ 4 Comments

Tags

alzheimers, alzheimers and dementia safety, alzheimers products, dementia, preventing scams, technology for alzheimers caregivers

scamIf you’re caring for someone with Alzheimer’s or another form of dementia, you know the phone can be a real source of consternation. Something as benign as a telephone can not only cause frustration, but also some rather challenging – and expensive – predicaments.

While still living alone and in the early stages of cognitive decline, my mom wrote checks to every single organization that called asking for a donation. It didn’t matter whether she had heard of the charity or not; if they asked for money, she gave. Ultimately, she fell victim to a scam that resulted in thousands of dollars in “donations” to a bogus food pantry/homeless shelter. Unbeknownst to me, it all began with a phone call from a woman who was preying on the elderly.

Solving a Problem

I recently had an opportunity to speak with Tavis Schriefer, Co-Founder and President of teleCalm. His company has introduced a service to help caregivers create a safety net for the person they’re caring for. The idea was born of Schriefer’s own experience caring for his mother when she was in the early stages of dementia.

To help understand the problem they were trying to solve, founders of teleCalm interviewed hundreds of caregivers during the design process. After all, who knows these challenges better than those on the front lines?  The feedback led to a comprehensive, flexible, and easy-to-use service offered at an affordable price point.

teleCalm puts caregivers in control by allowing them to monitor and filter calls. The system considers every caller a “stranger” until they are added as a contact. Rules are then set up to determine how to handle calls. Not only can loved ones be protected from incoming telemarketer or scam calls, but outbound calls to infomercial ads and shopping networks are easily prevented.

Incoming calls from “strangers” can be directed straight to voice mail. Call history and voice mail messages are then accessible to the caregiver through the teleCalm app (available for iPhone and Android). The caregiver can also receive a text message each time a new voice mail comes in.

List of Features

boxToday, teleCalm offers the following capabilities:

  • Block undesired inbound or outbound calls.
  • See who loved one is speaking with in real time via the live dashboard.
  • Set up rules and messages for “quiet hours.”
  • Review call history.
  • Retrieve voicemails from your own (caregiver) cell phone.
  • Set alerts and reminders.

Developers are currently working on a feature that will notify the caregiver via text message if a call was placed to or received from a specific contact. For example, the caregiver might want to be alerted immediately if a call is placed to the doctor or a particular family member. Schriefer told me he expects the company to continue rolling out additional functionality as it becomes available.

The Technology and Cost

phoneThe technology behind the service is a common one referred to as voice over IP (VoIP), and requires only an internet connection and small VoIP box (provided by teleCalm). The unit is about the size of a hockey puck, and set up is as simple as plugging in the power, ethernet cable, and phone.

teleCalm can be used with your loved one’s existing phone and they can keep their existing phone number. Service includes unlimited minutes, free long distance, and free international calling.

At the time of our interview, teleCalm was priced at $49.99/month with an initial $50 activation fee. Keep in mind that in many cases, this can replace existing phone service.

Does this sound like something that could protect your loved one and bring you some peace of mind? I can’t help but think it would have been useful for us when my mom was living independently. I would be curious to hear your thoughts. Feel free to leave a comment if you have an opinion you’d like to share! 

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Marilyn’s Legacy: 2016 Annual Giving Campaign

11 Tuesday Oct 2016

Posted by Ann Napoletan in Advocacy and Awareness, Fundraising, Marilyn's Legacy, Mom, Quotes, USAgainstAlzheimer's

≈ 8 Comments

Tags

alzheimers, alzheimers awareness, alzheimers caregivers, alzheimers families, alzheimers funding, alzheimers research, dementia, Marilyn's Legacy

It was a year ago on my mom’s birthday, October 12, that I publicly announced my intent to establish a non-profit to keep her memory – and legacy – alive. In early 2016, Marilyn’s Legacy: A World Without Alzheimer’s was born, and shortly thereafter, we were granted tax-exempt status under section 501(c)(3) of the federal tax code.

Our inaugural fundraiser was a great success, and we’ve been pleased to contribute $900 to UsAgainstAlzheimer’s this year. This is an organization near and dear to my heart. I have co-moderated their online support group for three years and have come to know and deeply respect their tireless, determined leadership team. Founders George & Trish Vradenburg personally cover 100% of overhead expenses, ensuring that every dime contributed goes directly toward the goal of ending Alzheimer’s by 2020.

We are optimistic about the potential of preventative and disease-modifying drugs in the pipeline; however, in 2017, Marilyn’s Legacy will broaden our mission slightly. We will seek out opportunities and projects to directly benefit individuals currently living with Alzheimer’s and other forms of dementia.

While a focus on research funding remains critical to our organization’s purpose, we also recognize that millions of Americans are currently in the throes of the illness and need help now. For them, the therapies won’t come soon enough. We feel our mission statement should reflect our profound and passionate belief in person-centered care and each individual’s right to the best possible quality of life at every stage.

This December will mark four years since my mom left this earth, and there are days when it still doesn’t seem real. I suppose people think it should get easier, but I’m not sure that’s the case. Indeed the intense, searing pain subsides over time, but it gives way to a dull ever-present ache. With each milestone or important life event, the list of things I want to share with her grows. Even the mundane, routine happenings can be a stark reminder of her absence and the void in my heart that will never be filled.

Weeks like this are difficult. Mom would have celebrated her 80th birthday on October 12. I’m feeling especially emotional, but equally tenacious. I won’t rest until people understand the devastation of this disease. If your life hasn’t been touched directly yet, count yourself among the lucky ones, but also realize the odds are not in your favor. In the United States, someone develops Alzheimer’s every 66 seconds.

250x126-whiteBecause of my mom’s birthday, we’ve chosen October for our Annual Giving Campaign. Will you help Marilyn’s Legacy change the trajectory of this disease? Will you join the fight to end Alzheimer’s and to support the families currently living its torment on a daily basis? Those who know me well know I find it very difficult to ask for help, but this is one area where that is not the case. I need you. WE need you. Please consider making a tax-deductible contribution today by visiting http://marilynslegacy.org/donate. Thank you!


“ … at age 59, I was diagnosed with early onset Alzheimer’s after a serious head injury doctors say unmasked a disease in the making. Years earlier, I had a front row seat as Alzheimer’s devoured my maternal grandfather and my mother. Now it’s calling for me.”   ~Greg O’Brien, author On Pluto: Inside the Mind of Alzheimer’s

 

 

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Marilyn, BA (before Alzheimer's)

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