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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: alzheimers

Mad as Hell: Creating a Movement

28 Sunday Sep 2014

Posted by Ann Napoletan in Advocacy and Awareness, Facts & Figures, USAgainstAlzheimer's, Washington, World ALZ Month

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alzheimers, alzheimers research, dementia, usagainstalzheimers, womenagainstalzheimers, world alzheimers month

PLEASE contact your representatives… please. If you aren’t sure who or how, click here to find your House representative and here to find your Senate representatives.

We MUST let Washington know that we’re mad as hell and need their support NOW.

When I was in DC at the WomenAgainstAlzheimer’s Out of the Shadows Summit earlier in the month, we heard research leaders Reisa Sperling (Brigham and Women’s, Harvard), Kate Zhong (Cleveland Clinic), and others, talking about the great work being done in labs across the country. Hope is there, we just need funding to match that of the other leading causes of death: cancer, heart disease, and HIV/AIDS.

Don’t think your voice doesn’t count. You + your neighbor + his brother + his co-worker + her neighbor + so on and so on and so on. It’s time to make this a movement, just like the movement to cure cancer and HIV/AIDS. Time is of the essence.

What do we want them to do?

  • Increase funding for the National Institute on Aging by at least $100 million from the fiscal year 2014 level.
  • Recognize the immense contributions of family caregivers by enacting the Social Security Caregiver Credit Act.
  • Honor Legendary Coach and Alzheimer’s champion Pat Summitt with the Congressional Gold Medal.

200 vs 465

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What is Alzheimer’s?

27 Saturday Sep 2014

Posted by Ann Napoletan in Advocacy and Awareness

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#endalz, alzheimers, alzheimers awareness, dementia

A 3-minute video that explains Alzheimer’s in layman’s terms. Simple, yet compelling.

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Words

26 Friday Sep 2014

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Grieving

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alzheimers, alzheimers grief, alzheimers poem, caregiving, conversations with God, Susan Macaulay

I saw this poem for the first time tonight and felt compelled to share. I remember feeling torn, much in the way Susan Macaulay describes, two years ago. The internal struggle and conversations with God. Bargaining. Begging. Questioning. Not wanting her to suffer any longer, yet not wanting to let her go. Because at least when she was here, I could hold her hand, see her face, hear her voice, and just simply be with her. Susan found just the right words – this is beautiful and heartbreaking.

a daughter’s prayer to god

by Susan Macaulay

dear god Continue reading →

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Marilyn, BA (before Alzheimer's)

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