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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: caregiving

Book Review: Elegy for Mom

28 Thursday Jul 2016

Posted by Ann Napoletan in Advocacy and Awareness, Books, Caregivers, Helpful Resources, Inspiration, Tips

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Tags

alzheimer's books, alzheimers, alzheimers caregivers, caregiving, dementia

Elegy-for-Mom_BookCvrI’m often asked to review books on the topic of Alzheimer’s/dementia caregiving. I’d love to have time to get to all of them, but with limited bandwidth, I’m forced to pick and choose. Today, I’m happy to share Elegy for Mom: A Memoir of Family Caregiving, Alzheimer’s, and Devotion, by Vicki M. Kaufmann. At just over 100 pages, it’s a quick, easy read, yet covers a lot of ground!

In writing Elegy for Mom, Kaufmann’s goal was to share useful ideas and resources based on her own experience caring for her mother. To the degree possible, she wanted not only to offer support, but also to help bring meaning to the journey and reveal some of the blessings that can be found along the way.

Although the author has a background as a counselor, the book is really a very personal look at caring for a loved one with Alzheimer’s. In fact, Kaufmann states early on that despite her clinical experience, she was unprepared for the job of caregiver.

She describes feeling emotions so many of us can relate to: first comes denial, followed by anger and depression, and finally, resignation. Kaufmann believes caring for a family member is a spiritual calling and often a “pathway to new levels of grace, courage, creativity, and love.” This resonates with me; through my own journey with my mother, I found courage I didn’t know I had, became a more compassionate human being, and felt a depth of love I didn’t know existed. Ultimately, like the author, I found purpose in sharing our story to help other families.

While no one would choose this journey, I truly appreciate those who can find something positive in the experience. Long-time caregiver and leading advocate Meryl Comer refers to this as “flipping the pain,” which is so fitting. We can wallow in grief and sorrow, or we can find something to be grateful for and even use our experience to ease the pain of others and affect change. Choosing the latter doesn’t mean there will never be sorrowful times when tears flow like a river; it just means that at the deepest level, we choose gratitude over bitterness.

vicki-imgElegy for Mom is filled with moving original poetry, snippets from Kaufmann’s personal journals, family photographs, and samples of her mother’s original artwork. Each chapter tackles a unique sub-topic, ultimately painting a picture of what could be any family making their way through life with Alzheimer’s – one day at a time.

Throughout the book, the author also includes tips for caregivers, grouped by topic: making the most of visits, dealing with the stress of caregiving, finding the best facility, and even simple affirmation exercises to fuel the spirit of the weary caregiver.

I found Elegy for Mom to be a lovely blend of storytelling, practical tips, helpful resources, touching poetry, and wonderful artwork. It’s a unique compilation based on one family’s experience – both a loving tribute to the author’s mother, Sophia, and a thoughtful, reflective gift to other caregivers. Kaufmann succeeded in crafting a gem that would make a great addition to any collection.

* Update (08.14.16) – Elegy for Mom has received a gold medal in the “Health and Fitness” category and a silver medal in the “How To/Self-Help” category in the Florida Authors and Publishers Association annual contest. Congratulations to Vicki Kaufmann on this well deserved recognition!!

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Lost Innocence

20 Sunday Mar 2016

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alzheimers, alzheimers caregivers, caregiving, dementia

Lost-Innocence_web

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Posted by Ann Napoletan | Filed under Advocacy and Awareness

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36-Hour Live Chat: Christmas Eve & Christmas Day

18 Friday Dec 2015

Posted by Ann Napoletan in Caregivers, Events, Helpful Resources, Holidays, Support system

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Tags

alzheimers holiday support, caregiver holiday support, caregiver resources, caregiving, caregiving.com

Purple AngelWe all know the holidays can be exceedingly difficult and often lonely for families dealing with dementia. When I saw this 36-hour live chat announcement on Facebook, it caught my eye because I think it’s something so many caregivers might benefit from.

There’s an indescribable sense of comfort that comes from simply knowing you aren’t alone. Thank you to Caregiving.com for putting this together!

“From 5 p.m. ET on Christmas Eve until 5 a.m. ET on December 26, we’ll keep our chat room open. To join the chat on Christmas Eve or Christmas Day, simply click the orange “chat” button and then head into our Caregiving Chatroom. Typically, you need to be a CareGiving.com member to join our chat. For 36 hours, any visitor can join the chat without having to register a CareGiving.com account.”

To see the full announcement and all pertinent information, click here!

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Marilyn, BA (before Alzheimer's)

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