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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: dementia awareness

Please Lend Your Voice

30 Thursday Jan 2014

Posted by Ann Napoletan in Advocacy and Awareness, Facts & Figures, Research, USAgainstAlzheimer's, Washington

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Tags

alzheimers, Alzheimers advocacy, alzheimers research, dementia awareness

graph-2011_national_institutes_of_healthDid you know….

The National Institutes of Health spends over $6 billion a year on cancer research, over $4 billion on heart disease research and over $3 billion on HIV/AIDS research. But it spends only $480 million on Alzheimer’s research. While passage of the recent omnibus bill will add another $100 million, we are still well below where we need to be.

President Obama made broad supportive comments regarding the nation’s priorities in innovation and federally-funded research in his State of the Union address last night, but we are disappointed that he did not take the opportunity to advance America’s internationally-recognized leadership in the global fight against Alzheimer’s.

PLEASE lend your voice. This is one fight we cannot afford to lose. Urge President Obama to make this crucial investment by clicking this link ->  Lend Your Voice

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The Impact of Long-Term Caregiving and Dementia

13 Wednesday Nov 2013

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, USAgainstAlzheimer's

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Tags

Alzheimers advocacy, alzheimers awareness, caregiver, caregiving, dementia awareness, usagainstalzheimers

“This is unacceptable for our future…” ~Meryl Comer, President, Geoffrey Beene Foundation, Alzheimer’s Initiative

Please watch this short video and then share it with several others. It’s a step toward increasing awareness and understanding…

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November: Alzheimer’s Awareness Month

03 Sunday Nov 2013

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Facts & Figures, Helpful Resources, November-National ALZ Awareness Month, Petition, Research, Ruminations, USAgainstAlzheimer's, Washington

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Tags

Alzheimers advocacy, alzheimers awareness, dementia awareness, national alzheimers awareness month

Image-1November is Alzheimer’s Awareness Month – a great time for everyone to help shine a spotlight on this impending national health crisis.  It’s estimated that 5.3 million Americans are currently living with Alzheimer’s, and 4% of those cases qualify as younger onset, attacking people in their 30’s, 40’s, and 50’s.

The Facts

ALZ org bar-graphAD is the 6th leading cause of death in the United States (5th among those over age 65).  It’s also the only one of the top 10 causes of American deaths that can’t be prevented, cured, or even slowed.  Simply put, there are no survivors.

Between 2000 and 2010, Alzheimer’s deaths rose 68% while deaths from all other major diseases, including heart disease, cancer, stroke, and HIV, have dropped.

Big numbers? Well, consider this:

  • Within the next 12 years, there will be 7.2 million adults, age 65 and older, living with Alzheimer’s and other dementias.
  • Unless there is a major medical breakthrough, it’s projected that 13.8 million older Americans (age 65 and over) will have Alzheimer’s by 2050.

ALZ org pie-graph

Cost of Care

The cost of care is astronomical and growing every day. Estimates indicate that this year alone, the direct costs of caring for those living with Alzheimer’s will total $203 billion.  At the rate we’re going, without significant progress toward preventing or treating the disease, costs will rise to $1.2 trillion (in current dollars) by 2050.

Research Dollars

graph-2011_national_institutes_of_healthResearch funding isn’t where it needs to be – not by a long shot. The National Institutes of Health spends over $6 billion/year on cancer research, over $4 billion/year on heart research, and over $3 billion/year on HIV/AIDS research. Less than $500 million/year is spent on Alzheimer’s – the disease that’s shaping up to be the health crisis of our generation.

Government can’t afford additional funding? Well, the alternative only exacerbates that situation. Should we reach the numbers mentioned above by 2050, we’re looking at a 500% increase in Medicare and Medicaid spending. Now who wants to talk about breaking the bank????

Facing the Fear and Raising Awareness

The fact is, there’s a generation of Alzheimer’s caregivers who are terrified about what the future may hold. I know because I’m one of them. Am I destined to follow in my mother’s footsteps? The thought of putting my daughter through that is – well, there’s no doubt – it’s my worst nightmare.  sunday-w-mom-1

The time is NOW, not tomorrow, next week, or next year. Sign a petition, contact your lawmakers, support organizations like USAgainstAlzheimer’s and the Alzheimer’s Association, and TALK ABOUT IT every time an opportunity presents itself.

We need to get this issue out in the forefront and do everything we can to keep it there for as long as necessary, so that someday we won’t need an Alzheimer’s Awareness Month.

 

Source for statistics and graphs: http://www.alz.org

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Marilyn, BA (before Alzheimer's)

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