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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: thanksgiving with alzheimers

Alzheimer’s, Thanksgiving, and Expectations

21 Wednesday Nov 2018

Posted by Ann Napoletan in Caregivers, Expectations, Holidays, Mom, Ruminations, Tips

≈ 1 Comment

Tags

alzheimers, alzheimers holiday tips, caregiving, caregiving at the holidays, dementia, holiday stress, holidays with alzheimers, thanksgiving, thanksgiving with alzheimers

There’s one Thanksgiving that is forever etched in my mind for all the wrong reasons. Although it occurred eight years ago, in many ways, it feels like yesterday. When I think of the November holiday that I once looked so forward to, the first image that comes to mind is from 2010.

As I thought about writing this post and what tips I might offer to help you make the most of your holiday, I found myself overwhelmed. It took several days of contemplation for me to come to the realization that it really all boils down to one simple – yet extremely difficult – concept.

Expectations.

Weeks before that fateful Thanksgiving in 2010, I had unwittingly crafted an idyllic vision of how it would go. This wasn’t deliberate, but my subconscious went to work on how the day would unfold, what the preparation would look like, how the meal would come together, and most importantly, how my mom would be that day – her mood, frame of mind, level of agitation, ability and desire to participate, and all the other things that go along with Alzheimer’s.

Of course, at some point, my subconscious went off the rails – thus the dreaded idyllic vision. I’m sure memories of beautiful holidays complete with cherished traditions, found their way into the mix. Without even realizing it, I had set myself up for disappointment, profound sadness, anger, grief, and a dozen other emotions. Naturally, there was no way this Thanksgiving could be compared to or measured against those blissful memories.

In this particular case, our reality bore no resemblance to idyllic. Mom was having a bad day.  A very bad day.

That evening, I, along with Mom’s two caregivers and my daughter sat down to Thanksgiving dinner. By then, the food was cold, and my stomach was in a million knots. My dear mother was pacing and screaming as she had been all day. She was utterly inconsolable. Severe aphasia had long ago robbed her of the ability to communicate verbally, leaving her unable to express what was bothering her – or anything else, for that matter.

To Mom, that Thursday was just another day. It wasn’t her fault; it wasn’t anyone’s fault. It was this damn disease, all part of the unexpected hand we’d been dealt. Simply put, the picture-perfect holiday I had envisioned dissolved into a pool of tears and when it was over, I swore off all future Thanksgivings.

I could close by listing my top 10 tips for a successful holiday celebration, but instead, I’ll gently remind you to be careful of your expectations. Keep them reasonable. Check yourself along the way and make sure your subconscious isn’t taking over and creating an expectation that the day can’t possibly meet.

Rather than working to create a holiday just like those of years gone by, focus on the current reality. Remember that too many people, a lot of noise and commotion, and sudden changes to routines can really throw your loved one for a loop. Plan accordingly. Spending quality time together and making cherished memories – when it’s all said and done, those things are much more important than setting an impeccable table or serving a perfectly plump juicy bird at 4pm sharp. Flexibility is your friend and goes hand in hand with maintaining reasonable expectations.

It sounds cliché, but the past is in the past, and today is all we have. Try to go with the flow, relax, and create moments of joy wherever you can. Treasure the simple things – an unexpected smile, warm hug, or the expression on his face when he tastes a favorite dish that just might trigger a moment of clarity.

Here’s wishing you a blessed Thanksgiving with the people who mean the most to you. And, don’t forget to be gentle with yourself…

 

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Alzheimer’s: Last Minute Tips for Thanksgiving

22 Sunday Nov 2015

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Expectations, Family, Helpful Resources, Holidays, Tips

≈ 4 Comments

Tags

alzheimers, alzheimers and the holidays, alzheimers caregiving, alzheimers tips, dementia, thanksgiving with alzheimers

With Thanksgiving just a few days away, I wanted to leave you with my thoughts on making the holiday the best it can be for your loved one living with Alzheimer’s or another form of dementia – and for YOU.

Only you know what’s best for your unique situation, so first and foremost listen to your heart. Remember that while things will never be what they once were, it is still possible to find blessings and create moments of joy. If your loved one is still in a place where a gathering is feasible, here are some tips to help.

  • Set realistic expectations right from the get-go. When planning, consider where your loved one is in the progression of the disease and prepare accordingly.

  • Let go of the need for everything to be perfect. You are not Martha Stewart and no one expects you to be. If you need help, ask.
  • If you are hosting, set aside some quiet one-on-one time to spend with your loved one before guests arrive. During this time, shut out all distractions and focus on your time together.
  • During a larger gathering, keep noise to a minimum. Speak clearly in a calm, soothing tone.
  • If your loved one is still able to help with simple tasks, by all means, let them! This gives them a sense of purpose and pride.
  • Minimize distractions, and remember that if you are tense, your loved one will pick up on that feeling.
  • Create a quiet, comfortable area where one or two people at a time can visit.
  • Watch for signs of overstimulation in your loved one and recognize it may be time for a quiet break. Soft music may help with relaxation.
  • Keep some old photographs handy as a conversation starter and for reminiscing. Avoid questions like, “Do you remember?” Instead, talk about the photographs and follow their lead.
  • Realize that sometimes just sitting and holding their hand or rubbing their back makes for the perfect visit.
  • Don’t argue or correct. Remember the best visits involve you entering their world, rather then expecting them to come to yours. This is a key to every positive interaction!
  • Know that the emotions stirred by your visit will last long after the memory of your time together has faded. Let them feel your love.

If you are having visitors who don’t see your loved one on a regular basis, prepare them ahead of time so they know what to expect. You might even consider sharing this list with them in advance of the gathering.

Last but not least, if you have a chance, listen to this recorded call. You’ll hear Susy Favaro, LCSW, from the Banner Alzheimer’s Institute, and myself along with other caregivers and several individuals living with Alzheimer’s. The call is from 2013, but the content is timeless.

I’d love to hear your tips, suggestions, and lessons learned, so feel free to leave a comment below!

Wishing you and yours a blessed holiday….

 

 

 

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Between 2009 and 2015, Marilyn’s Mighty Memory Makers have raised over $22,000 in the fight to #ENDALZ! To all who have supported us, THANK YOU!!

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