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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: usagainstalzheimers

Exciting News from the Hill!!

16 Wednesday Dec 2015

Posted by Ann Napoletan in Advocacy and Awareness, Research, USAgainstAlzheimer's, Washington

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Alzheimers advocacy, alzheimers research, alzheimers research spending, alzheimers spending, dementia research, usagainstalzheimers


A press release from UsAgainstAlzheimer’s.

Washington, DC – The agreement reached between the House and Senate on a massive Fiscal Year 2016 omnibus spending package includes an increase of $350 million for the National Institutes of Health (NIH) for Alzheimer’s and dementia research.   (Read Full Press Release)

Contact your representative NOW to ask for their “yes” vote on Friday!

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Alzheimer’s Talks: Dr. Rudy Tanzi

16 Sunday Nov 2014

Posted by Ann Napoletan in Advocacy and Awareness, Events, Helpful Resources, Research, USAgainstAlzheimer's

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alzheimers, alzheimers in a dish, alzheimers research, dementia, rudy tanzi, usagainstalzheimers

If you missed the October Alzheimer’s Talks call, I hope you’ll take time to listen to the recording. We don’t often have the opportunity to hear directly from a leading researcher, but thanks to our friends at USAgainstAlzheimer’s, we were able to spend 60 minutes with Dr. Rudy Tanzi last month. The discussion was fascinating, informative, and full of reasons to be hopeful.

Take a listen as Dr. Tanzi talks about his team’s recent “Alzheimer’s in a Dish” discovery and how it will allow researchers to screen potential drugs 10 times faster and cheaper than ever before. During the second half of the call, he takes questions from listeners – again, giving us rare insight into the latest research.

To listen, click here –> A Major Breakthrough: Alzheimer’s in a Dish – Dr. Rudy Tanzi, Alzheimer’s Talks – October 2014

Also, be sure to register for the November Alzheimer’s Talks discussion with Olivia Mastry of ACT on Alzheimer’s. Ms. Mastry will share Minnesota’s very successful model for creating dementia friendly communities.

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WomenAgainstAlzheimer’s Launches Shadow Box Memory Project!

28 Tuesday Oct 2014

Posted by Ann Napoletan in Advocacy and Awareness, Face of Alzheimer's, Inspiration, Life After Caregiving, Mom, November-National ALZ Awareness Month, USAgainstAlzheimer's, Washington

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alzheimers, alzheimers awareness, dementia, shadow box memory project, usagainstalzheimers, womenagainstalzheimers

Last month, I had the pleasure of attending the WomenAgainstAlzheimer’s Out of the Shadows Summit held in Washington, DC. While there were many memorable moments over those two days, one of the highlights was our evening at the National Museum of Women in the Arts.  That night, the WomenAgainstAlzheimer’s (WA2) Network launched its Shadow Box Memory Project.

Photo Credit: WomenAgainstAlzheimer’s

Prior to the Summit, attendees were invited to create shadow boxes containing pictures and memorabilia honoring loved ones affected by Alzheimer’s disease. Each shadow box was as unique and beautiful as the person that inspired it. Seeing the display was a powerful, moving reminder of why we are determined to keep fighting until we stop Alzheimer’s in its tracks.

Now WomenAgainstAlzheimer’s wants to know what you think about expanding this project, creating a national campaign to raise awareness about the disease – much like the AIDS Quilt did for AIDS. Did you know the quilt boasts an impressive 48,000 panels and a nomination for the Nobel Peace Prize??!

As we prepare to mark the beginning of National Alzheimer’s Awareness Month, please take 2-3 minutes to respond to this brief survey. Your feedback is very valuable to WomenAgainstAlzheimer’s, and your time and opinions are truly appreciated.

Click here to take the survey:  https://www.surveymonkey.com/s/GLLXNHK

Thank you so much and feel free to share this with others who have been touched by Alzheimer’s. Together we can and will make a difference!

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Marilyn, BA (before Alzheimer's)

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