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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: usagainstalzheimers

Mad as Hell: Creating a Movement

28 Sunday Sep 2014

Posted by Ann Napoletan in Advocacy and Awareness, Facts & Figures, USAgainstAlzheimer's, Washington, World ALZ Month

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alzheimers, alzheimers research, dementia, usagainstalzheimers, womenagainstalzheimers, world alzheimers month

PLEASE contact your representatives… please. If you aren’t sure who or how, click here to find your House representative and here to find your Senate representatives.

We MUST let Washington know that we’re mad as hell and need their support NOW.

When I was in DC at the WomenAgainstAlzheimer’s Out of the Shadows Summit earlier in the month, we heard research leaders Reisa Sperling (Brigham and Women’s, Harvard), Kate Zhong (Cleveland Clinic), and others, talking about the great work being done in labs across the country. Hope is there, we just need funding to match that of the other leading causes of death: cancer, heart disease, and HIV/AIDS.

Don’t think your voice doesn’t count. You + your neighbor + his brother + his co-worker + her neighbor + so on and so on and so on. It’s time to make this a movement, just like the movement to cure cancer and HIV/AIDS. Time is of the essence.

What do we want them to do?

  • Increase funding for the National Institute on Aging by at least $100 million from the fiscal year 2014 level.
  • Recognize the immense contributions of family caregivers by enacting the Social Security Caregiver Credit Act.
  • Honor Legendary Coach and Alzheimer’s champion Pat Summitt with the Congressional Gold Medal.

200 vs 465

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Register Now: USAgainstAlzheimer’s Activists Network Call

31 Friday Jan 2014

Posted by Ann Napoletan in Advocacy and Awareness, Events, Helpful Resources, Pharma, Research, USAgainstAlzheimer's

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alzheimers, alzheimers clinical trials, alzheimers research, sniff insulin study, usagainstalzheimers

Two major Alzheimer’s clinical trials will soon begin enrolling participants — the Insulin Study (also know as SNIFF) and the so-called A-4 Trial.

Join USAgainstAlzheimer’s on Thursday, February 6 from 12-1pm ET for the next Activists Network conference call to hear Dr. Suzanne Craft of Wake Forest Medical School, who is the director of the Insulin Study (SNIFF). This study will examine whether a type of insulin, when administered as a nasal spray, improves memory in adults with a mild memory impairment or mild Alzheimer’s disease. Dr. Craft will explain SNIFF and answer your general trial questions, including who is eligible, study locations and how to sign up. Enrollment is scheduled to begin in the coming weeks.

To register for this call please go to: http://actions.usagainstalzheimers.org/p/salsa/web/common/public/signup?signup_page_KEY=8587.

Ginny Biggar at USAgainstAlzheimer’s can answer any questions you have. Her email is vbiggar[at]usagainstalzheimers.org.

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Buy a Gift, Help #ENDALZ

15 Wednesday Jan 2014

Posted by Ann Napoletan in Advocacy and Awareness, USAgainstAlzheimer's

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Etsy for Alzheimers, usagainstalzheimers

Hey all!

My friend, amazing Alzheimer’s advocate, and founder of Help Stamp Out Alzheimer’s, Lynda Everman, has started an Etsy store with her son.

TwoAgainstALZThey are donating 50% of all sales to USAgainstAlzheimer’s whose bold but doable mission is to STOP Alzheimer’s & related disorders by 2020.

Visit the TwoAgainstAlz store soon – and stop back often to see new items! I bought two of the adorable baby hats, and in addition to being as cute as can be, they are beautifully made.

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Marilyn, BA (before Alzheimer's)

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