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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Tag Archives: world alzheimers month

World Alzheimer’s Month: Do One Thing!

06 Tuesday Sep 2016

Posted by Ann Napoletan in Advocacy and Awareness, Call to Action, Caregivers, Galaxy A List, Help Stamp Out Alzheimer's, Helpful Resources, Mom, USAgainstAlzheimer's, Washington, World ALZ Month

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alzheimers, Alzheimers advocacy, alzheimers stamp, alzheimers support, help stamp out alzheimers, world alzheimers month

Labor Day has come and gone, and we’ll soon be thinking about the holidays. This month, though, is World Alzheimer’s Month, and it’s a great time to think about that ONE THING you can do to make a difference!! You don’t have to donate thousands of dollars or invest hundreds of hours to make an impact.

 

Here are six things you can do right now!

Register for the A List 1000. Click here to read more, share with others who may be interested, and join today to honor your loved one and mark World Alzheimer’s Month. I joined to honor my mom, Marilyn, and it makes me feel good to know the A List will bring voice and purpose to our story. I need to know our experience wasn’t in vain. 

Leave a comment on the USPS site urging issuance of an Alzheimer’s fundraising stamp.  Take a few minutes and to leave a comment for the Postmaster General encouraging her to approve an Alzheimer’s fundraising stamp. The Breast Cancer semipostal stamp has raised over $81 million since its inception and we can do the same for Alzheimer’s disease! Click here to visit the site. 

Join a support group.  I didn’t join a support group until after my mom had died, and waiting was such a big mistake. I had no idea how much I could benefit from interacting with others who understood what I was going through. If you aren’t able to attend a local group, join an online group. I co-moderate the UsAgainstAlzheimer’s Online Support Group – it’s a safe, welcoming place where we share our experiences, seek support, and offer support to others. Although my mother has been gone for almost four years, I still find great comfort and validation in the group.

Write a letter to your representative. Our leaders have the power to increase spending on Alzheimer’s care and research. As voters, it’s up to us to let them know this issue is critical. Click here to find your senator and here to find your representative.

Share your story.  Your story matters and sharing it can inspire others and let them know they aren’t alone on this journey. Talk to others about your experience or click here or here for places to share your story online. Also, please consider joining the A List 1000.

Make a donation to your favorite Alzheimer’s charity. Two of my favorites are UsAgainstAlzheimer’s and the Cure Alzheimer’s Fund. A full 100% of your donation to these organizations goes directly to the mission. The founders and board of directors, respectively, cover all overhead.

 

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September is World Alzheimer’s Month

01 Thursday Sep 2016

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Alzheimers advocacy, alzheimers awareness, dementia advocacy, world alzheimers month

World-ALZ-Month---Convertible---Meme

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Posted by Ann Napoletan | Filed under Advocacy and Awareness, Face of Alzheimer's, Inspiration, Marilyn's Legacy, Mom, World ALZ Month

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Mad as Hell: Creating a Movement

28 Sunday Sep 2014

Posted by Ann Napoletan in Advocacy and Awareness, Facts & Figures, USAgainstAlzheimer's, Washington, World ALZ Month

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Tags

alzheimers, alzheimers research, dementia, usagainstalzheimers, womenagainstalzheimers, world alzheimers month

PLEASE contact your representatives… please. If you aren’t sure who or how, click here to find your House representative and here to find your Senate representatives.

We MUST let Washington know that we’re mad as hell and need their support NOW.

When I was in DC at the WomenAgainstAlzheimer’s Out of the Shadows Summit earlier in the month, we heard research leaders Reisa Sperling (Brigham and Women’s, Harvard), Kate Zhong (Cleveland Clinic), and others, talking about the great work being done in labs across the country. Hope is there, we just need funding to match that of the other leading causes of death: cancer, heart disease, and HIV/AIDS.

Don’t think your voice doesn’t count. You + your neighbor + his brother + his co-worker + her neighbor + so on and so on and so on. It’s time to make this a movement, just like the movement to cure cancer and HIV/AIDS. Time is of the essence.

What do we want them to do?

  • Increase funding for the National Institute on Aging by at least $100 million from the fiscal year 2014 level.
  • Recognize the immense contributions of family caregivers by enacting the Social Security Caregiver Credit Act.
  • Honor Legendary Coach and Alzheimer’s champion Pat Summitt with the Congressional Gold Medal.

200 vs 465

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