Dear Mr. Wolgamott,
My name is Ann Napoletan and I lost my mother to Alzheimer’s disease two years ago. I’m a passionate advocate in the fight to end this horrific disease and I found your recent reference to Still Alice as a “depressing ‘disease of the week’ movie” disturbing, disrespectful, and beyond insensitive.
The journey through Alzheimer’s with my mother changed my life forever, and I hope and pray you are never faced with watching a loved one slip away, over the course of years, in such a heartbreaking way.
My mother retired from a successful career at age 61 and began to show signs of cognitive decline shortly thereafter. She declined rapidly. Before my eyes, she transformed from a vibrant, independent woman – my rock – overflowing with life – to a terrified child who could not speak and needed around the clock care.
I have witnessed things no daughter should ever have to see; and she experienced things that no human being should ever have to suffer through.
I was robbed of too many years with this woman I loved so much; I was in my late 30’s when she became ill. She was robbed of the beautiful retirement she worked so hard for and dreamed of.
Take a look at this photo taken shortly after my mother retired, then compare it to the one accompanying this article. Aside from Alzheimer’s, she had no medical problems. THAT, my dear misinformed friend, is how someone DIES at the hand of the “disease of the week.”
In the space of four little words, you managed to blatantly disparage the suffering of over 5 million Americans living with this disease as though what they and their loved ones are living through is little more than a case of the chicken pox.
Shame on you for using the phrase, and shame on the Lincoln Journal Star for publishing these words.
Sincerely,
Ann Napoletan
#ENDALZ
Well said.
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Powerfully put. Thank you, Ann. So important to push back against this stupidity and you do it with grace, eloquence, and heart.
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Thank you for the kind words, Elaine. Believe me, it took several attempts before I could muster anything remotely resembling grace or eloquence.
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Her loss is a great one, our prayers, and hopeful cure,
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Perfectly stated, Ann. Had I been able, I’d have signed on to this letter, as I’m sure many would.
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Thank you. ❤
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Yep. Share on my various socmed. Let us know if an when you get a reply please and thanks.
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I never received a reply, Susan, from the columnist or the paper.
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Thank you for telling this arrogant uneducated heartless poor excuse of a human being where to go! My story of my moms Alzheimer’s diagnosis is almost identical to yours! She was diagnosed way to young shortly after retirement, physically healthy, declined quickly and after caring for her at home for 7 years I had to make the heartbreaking decision 2 years ago to place her in a nursing home where she needs 24/7 care! I always tell people until you see what this dreaded disease does to someone you love you can’t begin to imagine how horrific it really is!!!!
Thank you for speaking up for everyone who has been faced with this awful disease!!!!
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Thank you, Camile. Blessings to you and your dear mother. ❤
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You speak volumes for us caretakers as well as those who suffered from the severe decline this affliction causes. Karma usually alows those who critisize to live with what they have scorned…not wishing it on anyone…just saying…May God Bless, Chris
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❤
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Well said. I am to an Alzheimer’s warrior, advocate and voice. Both of my parents died from Alzheimer’s and it has been a journey to heal and find my voice to spread the word about this devastating Disease. I am sharing your very poignant words♥
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Thanks Lori – all we can do is continue the fight, my friend.
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