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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Caregivers

World Alzheimer’s Day: How Can You Make a Difference?

17 Thursday Sep 2015

Posted by Ann Napoletan in Advocacy and Awareness, ALZ Assn - National, Caregivers, Fundraising, Helpful Resources, Life After Caregiving, Prevention, Quotes, Ruminations, Tips, USAgainstAlzheimer's, Volunteering, Walk to End ALZ, Washington, World ALZ Month

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alzheimers, Alzheimers advocacy, alzheimers awareness, alzheimers caregivers, alzheimers prevention, alzheimers volunteerism, dementia, world alzheimers day

According to the World Alzheimer Report 2015: The Global Impact of Dementia, published by Alzheimer’s Disease International (ADI), there are 46 million people living with dementia globally. Without a medical breakthrough, that number will rise to 131.5 million by 2050. Worldwide, in 2015 alone, there will be 9.9 million new cases of dementia; that’s a new case every THREE seconds.

World Alzheimer’s Day is September 21, 2015, and it’s a great time to pause and think about what you can do to make a difference. You don’t have to be a brilliant scientist or a millionaire to make a significant impact.

Here are a few ideas to consider. If you have others, please share them by posting a comment below!

Take Care of a Caregiver

  • Deliver lunch, dinner, or a plate of homemade cookies. Send a restaurant gift card, or put together a group of folks willing to take turns cooking a couple of meals each week.
  • Mow the lawn, rake leaves, or offer to help with another household task.
  • Put together a spa basket! Think bath salts, lotion, candles, lavender essential oil, comfy slippers, et cetera.
  • Offer to hold down the fort for a couple of hours to give a caregiver a much-needed break. Perhaps they’d like to go shopping, see a movie, read a book, or just relax!
  • Simply send a card to say you care and offer your support.

Volunteer Your Time and Talent

  • Spend time visiting with memory care residents.
  • Volunteer at an Alzheimer’s Association event, join a committee, help with a special project, or offer to make phone calls.
  • Form a volunteer group to make fidget quilts or comfy blankets for people living with Alzheimer’s.
  • Volunteer to provide respite care during a caregiver support group meeting.
  • Become a support group leader.

Donate or Fundraise

  • Make a monetary donation to your favorite Alzheimer’s organization.
  • Sign up for Walk to End Alzheimer’s or The Longest Day and set a fundraising goal.
  • Donate puzzles, picture books, dolls, art supplies, or CDs to a nearby memory care unit or adult day care.
  • Sign up for AmazonSmile and designate your favorite Alzheimer’s organization as your charity.

Be an Advocate

  • Write or call your representatives in Washington and ask for their support on Alzheimer’s issues.
  • Commit to sharing an Alzheimer’s-related fact or statistic with three friends.
  • Use social media to help raise awareness.
  • Join the Alzheimer’s Prevention Registry!
  • Sign a petition.
  • Share your story!
  • Check out the Action Center at UsAgainstAlzheimer’s for more ideas!

Focus on Prevention

  • Commit to walking for 30 minutes at least 3x per week.
  • Each day, replace one unhealthy item in your diet with a healthier choice.
  • Make a monthly date to get together with friends!
  • Take the stairs instead of the elevator.

As Margaret Mead said, “Never doubt that a small group of thoughtful, committed, citizens can change the world. Indeed, it is the only thing that ever has.”

I’ve been told plenty of times that I’m wasting my energy. After all, I’m just one person can’t change the world My response to that is simple. I may not be able to change the world, but I can certainly make a positive difference – and you can too!

Here’s to World Alzheimer’s Day. May it be more than just another Monday – let’s all do a little something to further the #ENDALZ movement!

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Audio-Visual Books for People Living With Dementia

11 Friday Sep 2015

Posted by Ann Napoletan in Activities for Your Loved One, Books, Caregivers, Helpful Resources, Products

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books for people living with dementia, living with alzheimers, living with dementia

novelsWhat if you were once a voracious reader, but mild cognitive impairment, and ultimately full-blown Alzheimer’s took away one of your greatest pleasures?

Last week, Dr. Tonia Vojtkofsky announced the release of her Audio-Visual Books for Dementia explaining, “They are short stories that have text, narration, and pictures all together, so a person who enjoys reading but now finds it difficult because of dementia, can still have the experience of reading.

They can follow the text along with the narration, reinforcing their reading ability, and then as they decline, they can just listen to the familiar story. So these books are both cognitive stimulation and entertainment.”

Dr. Vojtkofsky says she is curious to see over time as someone declines if they will find it comforting to hear the familiar voice, see same pictures, etc, repetitively, finding it calming and reassuring. She will be testing these stories at a memory care facility to get clients’ feedback.

The books are available for download (onto any electronic device: computer, tablet or phone) on the CCS website for a small fee $3.50 per book or 4 for $12.

Learn more at http://cognitivecaresolutions.com/books/.

___

Tonia Vojtkofsky, Psy.D. is Founder and President of Cognitive Care Solutions​ and a researcher at UC Irvine MIND & ADRC. She is also a founding member of WomenAgainstAlzheimer’s, a network under the UsAgainstAlzheimer’s ​umbrella. This summer she released her first book, Keep Your Brain Stronger For Longer, 201 Brain Exercises for People With Mild Cognitive Impairment.

 

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Honoring Ken: An Alzheimer’s Short Film

06 Sunday Sep 2015

Posted by Ann Napoletan in Advocacy and Awareness, Caregivers, Early Onset, Face of Alzheimer's, Films, Inspiration, Washington

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alzheimers, alzheimers advocate, alzheimers caregivers, brenda bouchard, dementia, honoring ken

Ken Bouchard, photo courtesy of Brenda Bouchard

I met Brenda Bouchard online, like so many other advocates across the country – and the world – that I’ve had the pleasure and honor of crossing paths with. This lady is something special. Her fearless determination, poise, and grace are so inspiring.

She has directly addressed the topic of Alzheimer’s with Hillary Clinton, Marco Rubio, John Kasich, Bernie Sanders, Jeb Bush, Scott Walker, Rick Santorum, Rand Paul, and Donald Trump at town hall meetings in her home state of New Hampshire. And now, she has released this incredible short film.

The film is 20 minutes long, but I ask you to please take the time to watch it. Learn about her husband Ken and his incredible life, how Alzheimer’s has affected their marriage – and their entire world, and how Brenda has stepped out of her comfort zone to become a courageous advocate.

Please watch and then share with others to help further Brenda’s mission.

You can also find Brenda on Facebook on her Honoring Ken page and on Twitter at @HonoringKen.

To see the various town hall meetings where Brenda has addressed 2016 presidential candidates, click here. 

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Marilyn, BA (before Alzheimer's)

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