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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Eason House

“I Love You”

30 Friday Nov 2012

Posted by Ann Napoletan in Eason House, HomeReach, Hospice, Mom, Ruminations, Support system

≈ 4 Comments

Three little words that mean so very much. Mom was mostly peaceful today. She wanted to walk quite a bit early this afternoon, so we walked, but she was clearly exhausted and could barely hold her eyes open. She had a piece of toast, two Ensures, ice cream, and some grapes. Once she finally settled down in her favorite chair, she was full of kisses and a very clear “I love you.” Amazing how that phrase becomes more and more precious with every day. I’m not sure how many more times I’ll hear it, but I’ll treasure each one.

I’m glad this day is over. We met with Bonnie, an absolutely wonderful, compassionate, genuine nurse from OhioHealth’s HomeReach Hospice. The way she approached my mom was night and day from the way the nurse from Heartland came at her. In fact, she was able to take her blood pressure, pulse, listen to her lungs and heart all without Mom making a peep.

So, the admission process is complete and the team assigned to my mom will be out on Monday. I feel as good as possible in a sh*tty situation. I am 100% confident in the decision to bring hospice on board at this time, and I think HomeReach is the right choice. Bonnie called me back a few hours after our meeting to update me on her discussion with Dr. Mestemaker, and I feel like we have a plan in place. Should things get worse, we can call at any time over the weekend and they will send someone out. Kobacker House – on a temporary basis until meds are worked out – is also an option, but I have made it clear that I will only consider that if we have no other alternative. I want her to stay put where she is comfortable and surrounded by people who know and love her.

It was an emotional day… an emotional week, actually, and the first part of next week will likely be the same as we meet individually with members of our HomeReach team (social worker, chaplain, etc.). After that, I imagine we will fall into a routine of sorts, but we’ll know we have another layer of support anytime we need it.

Jess and I are both absolutely overwhelmed by the love and support we’ve received throughout this ordeal and particularly this week. Texts, emails, FB messages, and calls, all of which are more helpful than anyone can imagine. Just knowing people are praying for us and sending so many positive thoughts is helping to lift us up and give us strength when we need it the most. We truly can’t say thank you enough.

Our Eason House family continues to be incredible, and there are no words to describe the blessing they are. They’ve been there every step of the way, caring for my mom as if she was their own mother or grandmother, always there when we need them, and right alongside us with tears of their own. Such a rare and special group of people…

photo(5)

Tim sat with mom for awhile. We were shocked when he mentioned the little watusi dance they used to do and she actually started doing it in the chair!

Tim sat with mom for awhile. We were shocked when he mentioned the little watusi dance they used to do and she actually started doing it in the chair!

This is what pure unconditional love looks like...

This is what beautiful, pure unconditional love looks like…

photo(4)

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Sunday…

18 Sunday Nov 2012

Posted by Ann Napoletan in Eason House, Falls, Mom, Pharma

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No doubt, sometimes you just have to (((stop))) and turn it all off, literally. For me last night, that meant turning off every light in the house, getting a fire going in the fireplace, and lighting about ten candles. After a good night’s sleep, I woke up feeling like everything would be fine.

Well, sort of. I realized I had forgotten to turn my ringer on before falling asleep and missed a 7:30am call from Eason House. Mom had fallen. She was okay, the wall had not fared so well. Based on the way she was positioned, the thinking is that it was her elbow that went through the drywall. (((Sigh…)))  Again, just thankful she is alright.

After that phone conversation, I went on a cleaning/purging rampage around the house, which also served as excellent therapy. Very cleansing. God, that felt good!!!! 

When I got here to the house, Mom was in the recliner fussing. Apparently taking the ortho BPs did not make her very happy. There’s a surprise, huh? Get a load of these readings, though.

    • Sitting:  96/59, pulse 68
    • Standing:  75/38, pulse 108

With those numbers, it’s a wonder she isn’t passing out. Plan to call the doc in the morning and ask that we d/c the diltiazem entirely. And, perhaps the inderal as well. I’m starting to think (hope) that between the dangerously low bp and the UTI, we may be on the right path.

After 3pm meds, she fell peacefully asleep…  what a joy to see her calm and relaxed. Just a few minutes ago, she opened her eyes, and I got several smiles and a half dozen kisses. And then I caught her biting the hell out of her hand. Good lord, the gremlins in that brain must be going bonkers – the changes are just instantaneous. In a couple of hours time: screaming at imaginary people, grabbing things that aren’t there, taking a swing at my face, giving me kiss after kiss, smiling, sleeping, whining, crying, clapping… For anyone out there still thinking Alzheimer’s is nothing more than memory loss, boy do I have news for you…

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Weekend Update…

11 Sunday Nov 2012

Posted by Ann Napoletan in Eason House, Mom, Pharma

≈ 2 Comments

Not as bad of a weekend as I had imagined. Sometimes, I guess it’s good to expect the worst and be pleasantly surprised. It was certainly no “piece of cake,” but the screaming wasn’t quite as bad and we actually had some amazing moments yesterday. It took awhile, but I finally got her to settle down and rest in her room, and she seemed very comforted to have me there by her side – more about that tomorrow on Caregivers.

Today, she was very restless. Lots of pacing until about an hour before dinner when she finally curled up in the recliner. Unfortunately, her mind just wouldn’t let her relax and she whined, fussed, clapped, and generally looked miserable. I gave her an Ensure, and she practically inhaled it – I held the glass and she never opened her eyes. Once that was in her tummy, she did relax and by the time I left she seemed to be sleeping peacefully.

The neurologist will see her tomorrow, and we’ll go from there. Perhaps the increased dose of Buspar is helping, but I would like for them to be able to give her something ‘as needed’ when she reaches the height of misery. Just can’t stand seeing the terror and agony in her face. Plain and simple, she shouldn’t have to go through that.

Tonight, I’m extremely grateful for Eason House and our wonderful family of caregivers. I don’t know where we’d be without them.

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Marilyn, BA (before Alzheimer's)

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