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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Mom

Friday’s news…

21 Friday Sep 2012

Posted by Ann Napoletan in Blogging, Caregivers.com, Mom

≈ 2 Comments

Not much news at all. Mom was sleeping very peacefully when I got there after work, but the girls said it had been a comparatively good day. She had part of a banana, a piece of toast, and of course a “milkshake” (aka Ensure). Baby Nico was in, and she happily played with him. Emily visited as well, and said that she was very tired, but otherwise pretty good. All in all, it beats yesterday.
My first piece for Caregivers was published yesterday, but I hesitate to post a link, as we have had some problems. Seems as though it might be a browser issue, but they have the developers looking into it. The URL worked for me, so I had no idea there was a problem until I received emails from a few friends. How about that? Day one, and I blew up the site! Nothing like starting with a bang!! 

On a humorous note, some of the people who have been able to get to the article have left comments. I love getting feedback; it’s always nice to know that someone is reading and even better if you find you’ve truly struck a chord with someone. Last night, I pulled up the comments and was mortified to find that they had posted as though I had authored them. So, for some reason, the system thought the commenters were logged on as me?!

Imagine seeing lovely comments – then realizing it looked like I wrote them! Nothing like patting myself on the back a little… yep, my imaginary friends are apparently my biggest fans, and they were pretty darn busy last night! Moral of the story: Sometimes, you just have to laugh. Embarrassing? Oh yes! But, not much I could do at midnight, other than chuckle.

My contact at APFM was able to go out and edit the comments so that it no longer looks like I’m some kind of egomaniac, but the issue with the URL is still being investigated. Stay tuned – hopefully it’ll be resolved soon.

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What was that I was saying…

20 Thursday Sep 2012

Posted by Ann Napoletan in Mom

≈ 2 Comments

A good day?

Short lived. Today, right back to where we were. Only had 8 oz Ensure and not a bite of food. Agitated. Exhausted. No reaction to seeing me.

I know there’s no chance of “getting well,” that’s just not how this disease rolls… So I’m not sure why I feel like someone has taken all the wind out of my sails. I didn’t even know my sails had wind in them, for crying out loud.

It’s the ups and downs that kill you… just suck the life right out of you. I guess yesterday I thought maybe, just maybe, she’d had a bad few weeks and was possibly getting past it.

On a bright note, Jess was in a car accident tonight. Yes, I said on a bright note. And yes, another one. God is really testing me, but dammit, I’m going to keep finding the good stuff no matter what. She’s okay, and that is all that matters. Someone rear ended her on 270 at full speed. The more I think about it, the more I realize how blessed we are that she is alright. The other driver’s bumper was dangling. Jess thinks she just has scratches. She was on her way to her next appointment, but said if the trunk opens/closes properly, she isn’t even going to turn it in. She just got the car back from the body shop (from her last accident) less than a week ago… (((sigh)))

BUT, she is okay – and THAT is a blessing. Thank you, God.

I don’t know. It’s just one of those nights. Thought I was fine, and here I am having an emotional meltdown. Sometimes, having a glass of wine and a good cry is all you can do…

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Up, down, and all around.

19 Wednesday Sep 2012

Posted by Ann Napoletan in Heartland, Mom, Pharma

≈ 6 Comments

So, Susie called me this evening with some great news. Mom ate more today than she’s had in the past three weeks combined. Who knew that having 11 grapes, 8 crackers, a piece of toast (minus the crust), a cookie, 2 Ensures, 5 glasses of tea, and an ice cream bar would be worthy of a celebration! May not have hit all food groups, but it’s some solid food, and a LOT of fluids – I’m not complaining.

Trying not to get my hopes up. It was just one day, and she’s still sleeping a lot. Let’s see what tomorrow holds, but I don’t think she’s ready to give up quite yet…

And to think just four days ago, Heartland was on the verge of loading her up with Haldol and turning her into a zombie… 

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