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The Long and Winding Road…

~ An Alzheimer's Journey and Beyond

The Long and Winding Road…

Category Archives: Music and Art

Round Up: The Latest From Around the Web

26 Tuesday Aug 2014

Posted by Ann Napoletan in Advocacy and Awareness, Books, Caregiver Burnout, Caregivers, Early Onset, Face of Alzheimer's, Helpful Resources, Music and Art, Round Up, Safety, Sandwich Generation, Silver Alert, Technology, Tips, Wandering, Washington

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alzheimers, alzheimers art, caregivers, caregiving, dementia, sandwich generation, wandering

lasso.gifCheck out these tidbits gathered from around the web over the past week….

Listen to this edition of the Diane Rehm radio show as Emmy award winning journalist, Meryl Comer, talks about her new book, Slow Dancing with a Stranger. Meryl’s husband was diagnosed with early onset Alzheimer’s at age 58, and she cared for him at home for two decades. Dr. Harvey Gralnick led hematology and oncology research at the National Institutes of Health; a brilliant man and a sobering reminder that Alzheimer’s does not discriminate. Don’t miss this poignant and enlightening conversation.

Kudos to U.S. Senator Bob Casey who announced his plans to introduce the Caregiver Corps bill. This legislation is intended to empower community agencies to build and train a pool of volunteer caregivers to provide assistance to families in need. Read more about Casey’s proposed bill in this article from LancasterOnline.

With the percentage of the U.S. population age 65 and older exploding in coming years, what exactly are we doing to prepare? As Anne Hays Egan suggests in this piece for NonProfits Online, communities should be addressing plans for the “Silver Wave” now. Time is of the essence – we can’t afford to wait.

Alzlive shares an interesting article about Evermind, a small device that plugs into wall outlets and connects to various household appliances (e.g. coffee maker, television, bedside lamp). The gadget monitors when each appliance is turned off or on and sends notifications via text message or email. A change in routine serves as an alert to distant caregivers that they should check in to ensure their loved one is okay.

This fascinating piece from The Atlantic explores the emergence of artistic talents after a dementia diagnosis. How is it that someone with severe dementia can sometimes communicate beautifully through music or art? The key is in understanding that while dementia doesn’t impact the entire brain. Undamaged areas may actually “wake up” to reveal these artistic abilities that had been previously suppressed by healthy parts of the brain.

Learn more about Project Lifesaver, a program aimed at finding missing persons and returning them safely to their homes.  Over 1,300 first responder agencies in 47 states participate, and PLI states their recovery times average 30 minutes – 95% less than standard search operations. Members wear a small GPS device that tracks their whereabouts, and rescuers are trained in how to approach and communicate with individuals suffering from cognitive impairment.

In her recent article for MariaShriver.com, Ellen Woodward Potts focuses on the sandwich generation, offering coping tips for caregivers who are stretched too thin. More and more Americans find themselves caring for aging parents while still raising children, and the associated stress can be overwhelming at best and a serious health risk at worst.

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Dementia Activities: Six Options to Encourage Engagement

19 Saturday Jul 2014

Posted by Ann Napoletan in Activities for Your Loved One, Books, Caregivers, Children's Toys & Books, Communication, Helpful Resources, Mom, Music and Art, Products, Smiles, Tips

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alzheimers, alzheimers activitiies, dementia, dementia activities, dementia art therapy, montessori

As dementia progresses, it becomes challenging to find activities that encourage mental, emotional, and sensory stimulation. At the same time, we are often in search of ways to connect with our loved one when conversation is no longer an option. Possibilities are as wide and varied as one’s imagination, but here are a few ideas to get you started.

Photographs & Picture Books

My mom enjoyed looking at photos, so I always kept a scrapbook and some photo albums on hand. Later, I added a digital frame that continually scrolled through favorite photographs. Those pictures provided so many smiles, and I have fond memories of sitting next to her on the sofa flipping through the books. It’s impossible to know whether she recognized the people in the pictures – or whether they triggered any memories, but I do know they brought her joy in those moments, and that was the important thing.

Coffee table books full of large colorful images are also a nice option. Think about some of your loved one’s favorite things, and find a book on those topics. Children and animals are always a popular choice, but other potential topics include travel/scenery, cars, food, sports, and many more.

A few examples (all available on Amazon) include:

  • Dogs
  • Sweet Dreams: Wishes For Our Children
  • Journeys of a Lifetime: 500 of the World’s Greatest Trips
  • Life: Wonders of The World
  • Smitten: A Kitten’s Guide to Happiness

Dolls & Stuffed Animals

There was a woman at Mom’s first assisted living facility that had a profound and lasting impact on me. She had advanced dementia and struggled to speak. The woman was confined to a wheelchair, and every time I saw her, she was holding the same disheveled baby doll.

It was a poignant sight, and I recall feeling so sad for that woman. At the time, my mom was in the mid/moderate stages of the disease, so thinking of her with a doll wasn’t something I could even comprehend. She would never get to that point…

But, alas, she would and she did, yet when one of the caregivers asked if she could give Mom a doll, I was caught off guard. I remembered that woman from several years back and realized we had now arrived at that place in our journey – a place I never dreamed we’d be.

Mom immediately fell in love with her Dora the Explorer doll. The initial discomfort I felt dissipated instantly as I watched my mom’s genuine, heartwarming interactions with Dora. I was continually astounded at the delight and enjoyment the doll brought.

Dolls and stuffed animals allow our loved ones the unique opportunity to give care instead of receiving it. They also offer a distraction while providing positive sensory stimulation and they can even trigger memories. While there are expensive life-like therapy dolls on the market, in my experience, a regular doll works just as well and costs much less.

Fidget Quilts & Fiddle Boxes

Fidget quilts use a variety of colors, textures, and objects to keep busy hands occupied. Some quilts feature zippers, buttons, and Velcro, but the possibilities are endless. Many people design quilts around their loved one’s pre-dementia interests.

A “fiddle box” is a similar concept; simply a box (or basket) filled with items that provide a variety of tactile experiences. You might also consider your loved one’s hobbies or interests when putting this together. Ideas: buttons, ribbon, shoelaces, keys, marbles, jewelry, photos, small bits of pipe or safe small hardware items, various size paintbrushes, cookie cutters, measuring spoons.

How about a Busy Hands Fidget Apron or a handyman version for the gentleman in your life? Or if neither one of those strike your fancy, consider a Twiddle Muff or a sensory cushion. The Internet is overflowing with creative ideas, and Pinterest is an excellent starting point.

Art

According to the folks at Cognitive Dynamics, “Art therapy is the deliberate use of art-making to address psychological and emotional needs. Its benefits include fostering self-expression, enhancing coping skills, managing stress, and strengthening a sense of self. This translates into improved communication, behavior, and cognition.”

When the ability to communicate verbally is gone, art is lovely method of self-expression and creativity. Like music, art brings people together, and it doesn’t require a lot of fancy materials or special skills. Start with some heavy paper or card stock, a basic set of watercolors and a paintbrush, colored pencils or markers – it’s that simple!

Clay is another fantastic way to encourage creativity, interaction, and hand-eye coordination. I recommend good old Play-Doh since it’s brightly colored and more pliable than some of the modeling clay on the market. Combine the clay with a rolling pin and cookie cutters and you’ve created a form of reminiscence therapy for someone who once loved baking cookies!

Puzzles

My mom loved puzzles; we always had one going during the winter months. However, by the moderate stages of Alzheimer’s, large jigsaw puzzles overwhelmed and frustrated her. I hesitated to buy children’s puzzles, which had fewer (and larger) pieces because the designs were intended for kids. She was declining, no doubt, but still, I was afraid the children’s puzzles might be degrading in her moments of clarity.

Now there are puzzles designed specifically with dementia patients in mind. Max Wallack’s non-profit, Puzzles to Remember has partnered with Springbok to create puzzles with 12 or 36 large pieces that are much easier for Alzheimer’s patients to manipulate. Themes are adult-friendly, colorful, and pleasing to the eye. The puzzles provide a great way to stimulate cognition while offering your person an opportunity to achieve success!

Sorting & Organizing

Providing a loved one with sorting and organizing tasks is another beneficial way to keep dementia patients engaged and active. On a recent visit to a care facility, I observed one of the residents organizing the newspaper – apparently a daily ritual. Each morning, caregivers take apart the paper and lay the sections out on the kitchen table. With no prompting, the woman sits down and organizes the mess just perfectly, laying each section on top of the one before it about an inch below the last, creating a fan or stair step like pattern.

Consider using brightly colored marbles, several different kinds of fruit, socks, silverware, or various hardware items, such as nuts, screws, and washers. It makes little difference how well these things are sorted; the idea is to keep hands and mind busy, and help your person feel a sense of purpose.

Proponents of the Montessori method for dementia suggest these types of activities can reduce aggression, agitation, and other negative behaviors, improving quality of life.

Follow Their Lead

If you’re looking for other ideas, pick up a copy of The Alzheimer’s Creativity Book, by Jytte Lokvig, Ph.D. The book is full of suggestions to get the creative juices flowing, which in turn improves engagement, provides positive reinforcement, and promotes an overall feeling of well being for your loved one.

As you consider activities, remember this is not a “one size fits all” proposition. There are few things more unpredictable than dementia. Depending on the time of day, level of agitation, and mental status, preferences may vary. In fact, some days no activity is the right activity. Most importantly, don’t force the issue. The key is to offer options, then follow your person’s lead. In the process, you’ll create some extraordinarily beautiful moments of joy.

Please consider sharing your own experience or a favorite activity by leaving a comment!

 

 

 

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Introducing Sing Along With John – and a DVD Giveaway!

19 Wednesday Mar 2014

Posted by Ann Napoletan in Activities for Your Loved One, Behaviors, Caregivers, Giveaways, Helpful Resources, Music and Art, Products, Smiles

≈ 8 Comments

Tags

alzheimers, dementia, music for alzheimers, music therapy

UPDATE: I’ve decided to extend the giveaway a bit longer. Submit an entry now through April 14.

It’s been proven that music provides many benefits to Alzheimer’s and dementia patients, from easing anxiety to improving relationships and boosting engagement.

Many care partners report witnessing an awakening of memories triggered by music, while others note cases where music therapy reduced the need for psychotropic drugs. The bottom line is this: Music is almost guaranteed to fuel happiness, therefore improving overall quality of life. My mom absolutely loved music.

Sing Along With John

I recently stumbled upon a collection of DVDs featuring singer/pianist John Moorhouse whose musical career has spanned over four decades. Music has taken Moorhouse around the world, opening for the likes of Sly & the Family Stone, Deep Purple, and Janis Joplin. These days, he finds great joy in entertaining seniors at retirement and assisted living communities in Ontario, Canada.

Our clients always have a great time when John performs. There are smiles from ear to ear, toes tapping and people up out of their chairs dancing! He brings so much joy to our day center and a pleasure to work with. His talent and enthusiasm are unmatched! -Bonnie Robertson Koepke, Activity Coordinator, VON Adult Day Program and Overnight Respite, Hamilton, ON

The DVD collection, aptly titled Sing Along With John, features six titles, and includes something for just about everyone:

  • Best of the Crooners (Route 66, Blue Moon, Misty, Ain’t She Sweet)
  • All Time Sing Along Favourites (Let Me Call You Sweetheart, Bill Bailey, Five Foot Two Eyes of Blue)
  • Rockin’ Country (San Antonio Rose, Release Me, Take These Chains From My Heart)
  • Songs of the British Isles (When Irish Eyes Are Smiling, Bye Bye Blackbird, I’m Looking Over a Four Leaf Clover)
  • Old Time Gospel (The Old Rugged Cross, How Great Thou Art, Onward Christian Soldiers)
  • Christmas Celebration (Jingle Bells, Auld Lang Syne, We Wish You a Merry Christmas)

I previewed Best of the Crooners and thought the format was perfect; the manner in which the video is staged creates a feeling of being right there for a live performance. Each DVD includes a printable songbook and provides the option to display easy-to-read lyrics at the bottom of the screen – perfect for singing along!

Our residents love Sing Along With John DVDs. As soon as the DVD starts to play, everyone starts to sing and they remain engaged for the entire DVD performance.   –Lisa Hardisty, Activity Director, Bay Haven, Collingwood, ON

Several facilities report that residents enjoy the Old Time Gospel DVD during on-site church services, while others enthusiastically attest to the happiness and rekindling of memories all of the DVDs spawn.

Music: A Universal Language

The collection, distributed by Roses in Winter Productions, has won fans in assisted living facilities, retirement communities, and Alzheimer’s care centers extending from Canada and the U.S. to England, Ireland, New Zealand and Australia.

As the senior demographic changes, the company plans to produce 1950’s and 1960’s DVDs featuring music for the baby boomer generation. They also intend to produce another gospel DVD in the future.

How Do I Get The DVDs?

The DVDs are available individually as well as in two different sets of three, or the entire collection can be purchased together. While these would certainly be a great addition to the music/video library of any facility, I believe they are equally appropriate for a home setting.

Each DVD contains 10-12 songs (30-40 minutes of music). For more information or to place an order, visit http://singalongwithjohndvds.com.

I’m also very happy to announce that the generous folks at Roses in Winter Productions have sent me five DVDs for YOU! If you’d like to win one, leave a comment on this post and tell me what kind of music you enjoy listening to. I’ll select five random winners on April 1st. Good luck!!

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Marilyn, BA (before Alzheimer's)

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